Recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa: a consensus‐based guideline*

Greenblatt, Danielle; Pillay, Elizabeth; Snelson, Karen; Saad, Rebecca Anne; Pradilla, M. Torres; Widhiati, Suci; Diem, Anja; Knight, Caroline; Thompson, Kim M.; Azzopardi, Nazzareno; Werkentoft, Mia; Moore, Zena; Patton, Declan; Mayre-Chilton, K. M.; Murrell, Dédée F.; Mellerio, Jemima E.

doi:10.1111/bjd.20809

Cited by 6 publications

(3 citation statements)

References 50 publications

(382 reference statements)

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“…Pregnancy in affected individuals may be associated with malnutrition, severe anemia, and chronic infection and should be considered. (15) In 2022, experts from all over the world came together and based on previously published studies, they presented a consensus-based guideline for the management of pregnancy and delivery in patients with epidermolysis bullosa, which we used in patient management (20) .…”

Section: Discussionmentioning

confidence: 99%

Pregnancy and delivery in late diagnosed Kindler syndrome: A case report and review of the literature

Ghasemi,

Najafi,

Milani

et al. 2023

Preprint

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Epidermolysis bullosa is a collection of infrequent, diverse, and genetic disorders with four primary classifications, identified by the skin's vulnerability and, in some cases, mucosal fragility. The skin and mucosal layers separate when subjected to friction or mechanical stress, leading to blisters and erosions within these tissues. A woman aged 29, afflicted with Kindler syndrome, presented at our hospital experiencing labor contractions. Her skin condition remained unaltered throughout her pregnancy and post-childbirth period. A cesarean section was carried out at the 38-week gestation mark due to an unplanned membrane rupture and dense meconium presence. The healing of the surgical wound proceeded without complications. In this instance, the patient's pregnancy did not intensify the skin-related symptoms of Kindler syndrome. It is critical to manage perioperative care to safeguard susceptible skin and mucosa carefully. The patient's journey throughout pregnancy and the postnatal period proceeded without notable incidents. Individuals with EB giving birth often require substantial assistance due to their condition.

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Section: Discussionmentioning

confidence: 99%

Pregnancy and delivery in late diagnosed Kindler syndrome: A case report and review of the literature

Ghasemi,

Najafi,

Milani

et al. 2023

Preprint

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“…Limited evidence from small case series suggests that women with epidermolysis bullosa (EB) can have successful pregnancies and deliveries. Consensus-based guidelines that provide recommendations for improving the preconception, pregnancy, childbirth, and postpartum management of women affected with EB have been recently published 4. They provide detailed guidance for the care of patients with EB who desire to plan a pregnancy.…”

Section: Dermatology — Other Dermatologymentioning

confidence: 99%

UpToDate®

2022

The Nurse Practitioner

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UpToDate ® and The Nurse Practitioner are collaborating to present select "What's New" content. UpToDate is an evidence-based, clinical support resource used worldwide by healthcare practitioners to make decisions at the point of care. For complete, current "What's New" content, or to become a subscriber for full content access, visit go.uptodate.com/np. "What's New" is free for all medical professionals.Disclaimer: This content is provided for reference purposes only and represents a portion of the UpToDate topic. Readers should not rely on the content or any information cited here as being applicable to specifi c patient circumstances. All topics are updated as new evidence becomes available and our peer review process is complete. Family Medicine -PreventionLow-dose aspirin for primary cardiovascular disease prevention (June 2022) Low-dose aspirin may prevent cardiovascular disease (CVD) in some patients but also increases the risk of bleeding. The 2022 United States Preventive Services Task Force (USPSTF) statement concluded that among people 40 to 59 years of age with a ≥10 percent risk of CVD over the next ten years, there is a small potential benefi t of low-dose aspirin. 1 The USPSTF did not recommend starting low-dose aspirin in persons over 60 years without heart disease. We believe the decision to prescribe aspirin for primary prevention should be made by the patient and their provider after discussing individual risks and benefi ts.

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“…The ‘recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa: a consensus‐based‐guideline’, 1 published in this month’s BJD , fill a void in the medical literature. Epidermolysis bullosa (EB) is a group of rare genetic disorders characterized by fragile skin.…”

mentioning

confidence: 99%

Pregnancy in epidermolysis bullosa: long‐awaited guidelines of care

Lucky

Pope

2021

Br J Dermatol

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Recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa: a consensus‐based guideline*

Abstract: Linked Comment: A.W. Lucky and E. Pope. Br J Dermatol 2022; 186:602–603. Plain language summary available online

Cited by 6 publications

References 50 publications

Pregnancy and delivery in late diagnosed Kindler syndrome: A case report and review of the literature

Pregnancy and delivery in late diagnosed Kindler syndrome: A case report and review of the literature

UpToDate®

Pregnancy in epidermolysis bullosa: long‐awaited guidelines of care

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