Recommendations for Promoting Quality and Safety in Health Care Systems

Stalter, Ann M.; Mota, Altagracia

doi:10.3928/00220124-20170616-04

Cited by 6 publications

(2 citation statements)

References 19 publications

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“…They often serve as educators on key clinical topics that include but are not limited to health care quality, efficiency, and safety; the provisioning of health care services; population health management; and informed consent in clinical research and genomic medicine research. 2,3,4,5 Thus, AA nurses are well placed as partners for promoting the importance of racial/ethnic diversity in genomic medicine research.…”

Section: Introductionmentioning

confidence: 99%

African American Nurses' Perspectives on Genomic Medicine Research

Hendricks‐Sturrup

Edgar

Johnson-Glover

et al. 2021

AMA Journal of Ethics

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Background: There is a lack of African American (AA) community engagement in genomic medicine research. Recent popular interest in the experience of AAs, such as that of Henrietta Lacks, has perhaps prompted interest in research on how AA nurses can provide strategies to better engage AA communities in genomic medicine research.Methods: The authors conducted one-on-one semi-structured interviews with 11 National Black Nurses Association (NBNA) chapter leaders from 8 different US states, representing 782 NBNA members.Results: Our results quantified NBNA chapter leader agreement on known themes from the literature, captured newly emerging themes, and produced a set of actionable strategies to help overcome barriers to AA engagement in genomic medicine research that fall under 6 themes: (1) engagement, support, information dissemination, and implementation recommendations in general and to address health disparities; (2) addressing language barriers; (3) addressing research implementation barriers; (4) getting physicians to participate; (5) overcoming privacy concerns; and (6) nursing education recommendations.Conclusions: Actionable strategies presented herein can help researchers better engage AA communities in genomic medicine research.

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Section: Introductionmentioning

confidence: 99%

African American Nurses' Perspectives on Genomic Medicine Research

Hendricks‐Sturrup

Edgar

Johnson-Glover

et al. 2021

AMA Journal of Ethics

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“…Important community health topics have included, but are not limited to health care quality, efficiency, and safety; the provisioning of health care services; population health management; and informed consent in clinical research. [1][2][3][4] Genomic medicine research is an important consideration for the African American community because genetics and ancestry can provide scientific clues about responses to certain medications in African Americans. As a key example, the underrepresentation of African Americans in genomic medicine research has led to a poor understanding of the effectiveness of genetic-based interventions in diverse Africans American populations.…”

Section: Introductionmentioning

confidence: 99%

Exploring African American community perspectives about genomic medicine research: A literature review

Hendricks‐Sturrup

Edgar²,

Johnson-Glover

et al. 2020

SAGE Open Medicine

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Genomic medicine research is an important topic in the African American health care community. African American nurses and advance practice nursing professionals are poised to encourage and educate themselves and their communities about the importance of diversity in genomic medicine research. The Southern Nevada Black Nurses Association, a chapter within the larger National Black Nurses Association’s, recently engaged in the National Institutes of Health All of Us research program to educate their members about formularies and other treatment modalities that could clinically benefit African-Americans and other populations of color. During this event, the Southern Nevada Black Nurses Association discovered that National Black Nurses Association members held ethical, legal, and social concerns about engaging in genomic medicine research that align with respective concerns reported in the literature. In this review, we discuss National Black Nurses Association concerns and how they relate to qualitative themes emerging from the literature and a recent National Academies of Science, Engineering, and Medicine event on disparities in access to genomic medicine. We conclude that researchers should engage with African American health community leaders to effectively engage the African American community in genomic medicine research and help ensure that genomic medicine does not exacerbate existing health disparities.

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