Recherche participative : contribution à partir d’un travail effectué avec des migrants dans la ville de Coimbra

Lechner, Elsa

doi:10.3917/lsdlc.004.0222

Cited by 1 publication

(2 citation statements)

References 6 publications

(7 reference statements)

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“…Different models of participation are now encouraged in health research, all advocating the engagement of patients, members of the public, and other service users throughout the research process ( Abma et al, 2019 ; E. Wilson et al, 2018 ). It is assumed that patients are not merely “research objects,” but could be partners ( Lechner, 2013 ), because of their experiential knowledge. Their involvement in research should not only acknowledge their participation, but also allow the co-creation of knowledge ( Abma et al, 2019 ).…”

Section: Introductionmentioning

confidence: 99%

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Research Partnerships with Patients Living with Type 2 Diabetes: Practices and Challenges in Quebec Among People New to Canada

Balla

Dogba

Kastner³

2022

Global Qualitative Nursing Research

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Patients are increasingly encouraged to participate in health research programs as partners, with the aim to ensure that studies address their priorities. In response, the Strategy for Patient-Oriented Research (SPOR) has been created in Canada to transform the patient’s role in research from a passive beneficiary to a more proactive partner of change within the healthcare system. This research investigates what people new to Canada living with type 2 diabetes think about participating in research partnerships. Using an ethnographic approach, 31 people new to Canada with a diagnosis of type 2 diabetes were interviewed. Findings indicated that few people new to Canada were represented among the Diabetes Action Canada (DAC) Network’s Circles of Patient Partners in Quebec. Barriers to engagement in research were: lack of information; competing priorities; language barrier and privacy concerns; preconceptions about being a patient partner; prejudices on research engagement as something demanding and binding; and the matter of religious and gender differences. Some participants questioned the extent to which involvement in research can really meet their expectations considering institutional control over research, funding requirements that often dictate priorities and the biomedical approach which still, in many respects, dominates health research. Implications for achieving equity, diversity, and inclusion of patient partners in research are discussed.

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Section: Introductionmentioning

confidence: 99%

“…Wilson et al, 2018). It is assumed that patients are not merely “research objects,” but could be partners (Lechner, 2013), because of their experiential knowledge. Their involvement in research should not only acknowledge their participation, but also allow the co-creation of knowledge (Abma et al, 2019).…”

Section: Introductionmentioning

confidence: 99%