RECAPDOC - a questionnaire for the documentation of rehabilitation care utilization in individuals with disorders of consciousness in long-term care in Germany: development and pretesting

Klingshirn, Hanna; Mittrach, René; Braitmayer, Kathrin; Strobl, Ralf; Bender, Andreas; Grill, Eva; Müller, Martin

doi:10.1186/s12913-018-3153-3

Cited by 4 publications

(5 citation statements)

References 30 publications

(27 reference statements)

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“…This could be helpful by providing guidance to researchers undertaking the development of RUM instruments, and also by providing insight into the context in which methodological choices behind the current instrument were made. Several previous studies reported the development process of either a disease-specific RUM instrument [ 25 ] or an instrument intended for measuring resource use related to productivity losses [ 27 , 53 ], which limits the generalizability of the process to the development of generic multi-sectoral RUM instruments. In contrast, the current study provides a structured stepwise approach to instrument development based on available best practices [ 2 ] and presents the development process of an instrument that relies significantly less on existing RUM instruments.…”

Section: Discussionmentioning

confidence: 99%

“…The growing interest in adopting a societal perspective in economic evaluations calls for appropriate measurement tools that enable measurement of multi-sectoral resource use [23]. There is little existing research on the feasibility, validity and reliability of RUM instruments [3,11,18,19,24], and even fewer studies report the process of instrument development [25][26][27]. This is particularly relevant because the decisions taken during the development process of an instrument, such as the framing and order of the questions, can affect the structure of the instrument and responses to its questions [28].…”

Section: Key Points For Decision Makersmentioning

confidence: 99%

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Development of an Instrument for the Assessment of Health-Related Multi-sectoral Resource Use in Europe: The PECUNIA RUM

Pokhilenko

Janssen

Paulus

et al. 2023

Appl Health Econ Health Policy

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Background Measuring objective resource-use quantities is important for generating valid cost estimates in economic evaluations. In the absence of acknowledged guidelines, measurement methods are often chosen based on practicality rather than methodological evidence. Furthermore, few resource-use measurement (RUM) instruments focus on the measurement of resource use in multiple societal sectors and their development process is rarely described. Thorn and colleagues proposed a stepwise approach to the development of RUM instruments, which has been used for developing cost questionnaires for specific trials. However, it remains unclear how this approach can be translated into practice and whether it is applicable to the development of generic self-reported RUM instruments and instruments measuring resource use in multiple sectors. This study provides a detailed description of the practical application of this stepwise approach to the development of a multisectoral RUM instrument developed within the ProgrammE in Costing, resource use measurement and outcome valuation for Use in multi-sectoral National and International health economic evaluAtions (PECUNIA) project. Methods For the development of the PECUNIA RUM, the methodological approach was based on best practice guidelines. The process included six steps, including the definition of the instrument attributes, identification of cost-driving elements in each sector, review of methodological literature and development of a harmonized cross-sectorial approach, development of questionnaire modules and their subsequent harmonization. ResultsThe selected development approach was, overall, applicable to the development of the PECUNIA RUM. However, due to the complexity of the development of a multi-sectoral RUM instrument, additional steps such as establishing a uniform methodological basis, harmonization of questionnaire modules and involvement of a broader range of stakeholders (healthcare professionals, sector-specific experts, health economists) were needed. Conclusion This is the first study that transparently describes the development process of a generic multi-sectoral RUM instrument in health economics and provides insights into the methodological aspects and overall validity of its development process.The members of the PECUNIA Group are mentioned in Acknowledgments section.

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Section: Discussionmentioning

confidence: 99%

Section: Key Points For Decision Makersmentioning

confidence: 99%

Development of an Instrument for the Assessment of Health-Related Multi-sectoral Resource Use in Europe: The PECUNIA RUM

Pokhilenko

Janssen

Paulus

et al. 2023

Appl Health Econ Health Policy

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“…A systematic evaluation of patients’ convenient therapy periods could enable therapists to deliver a more personalised and efficient delivery of neurological rehabilitation services [ 68 ]. Consequently, a measurement instrument is needed to assess and address convenient therapy periods in the clinical practice.…”

Section: Discussionmentioning

confidence: 99%

Patients’ and professionals’ perspectives on the consideration of patients’ convenient therapy periods as part of personalised rehabilitation: a focus group study with patients and therapists from inpatient neurological rehabilitation

Dür

Wenzel

Simon

et al. 2022

BMC Health Serv Res

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Background Research on the optimal period for administering health services, especially rehabilitation interventions, is scarce. The aims of this study were to explore the construct of patients’ convenient therapy periods and to identify indicators based on the perspectives of patients and different health professionals from inpatient neurological rehabilitation clinics. Methods This study was part of a larger project on patients’ convenient therapy periods following a mixed methods approach. In the current study a grounded theory approach was employed based on the use of focus group interviews. Focus group interviews were conducted in three different inpatient neurological rehabilitation clinics. Patients and therapists from inpatient neurological rehabilitation clinics who were able to speak and to participate in conversations were included. Results A total of 41 persons, including 23 patients and 18 therapists, such as music and occupational therapists, participated in a total of six focus group interviews. The analysis of the focus group interviews resulted in the identification of a total of 1261 codes, which could be summarised in fifteen categories. However, these categories could be divided into five indicators and ten impact factors of convenient therapy periods. Identified indicators were verbal and non-verbal communication, mental functions, physiological needs, recreational needs, and therapy initiation. Conclusions The results provide initial evidence that convenient therapy periods are clinically relevant for patients and therapists. Different states of patients’ ability to effectively participate in a rehabilitation intervention exist. A systematic consideration of patients’ convenient therapy periods could contribute to a personalised and more efficient delivery of intervention in neurological rehabilitation. To our knowledge, this study is one of the first attempts to research convenient therapy periods.

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“…Cognitive interviews are usually undertaken in rounds, with several participants interviewed and changes to the questionnaire only made after each round. 11 12 Problems in comprehension, recall or response choices to the questionnaire items emerge from the interviews themselves 22 without the interviewer anticipating or having a hypothesis of which items or layout in the questionnaire may require change. Using small tests for change through PDSA cycles, on the other hand, enabled better structuring of questionnaire items with improved ease of comprehension, recall and response choices to items within this questionnaire.…”

Section: Discussionmentioning

confidence: 99%

Using rapid cycle tests of change to develop the Carers Assistive Technology Experience Questionnaire: a cognitive interview study in the UK

2021

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We describe the use of rapid cycle tests of change to pretest and develop a Carers Assistive Technology Experience Questionnaire for a survey of informal carers of persons with dementia. The Plan-Do-Study-Act (PDSA) cycle is a commonly used improvement process in healthcare settings. We used this method for conducting rapid cycle tests of change through cognitive interviews to pretest the questionnaire. The items for the questionnaire were developed based on an earlier systematic review and qualitative study. PDSA cycles were used incrementally with learning from each cycle used to inform subsequent changes to the questionnaire prior to testing on the next participant.DesignQualitative with use of cognitive interviews through rapid cycle tests of change.SettingUK.ResultsNine participants were recruited based on eligibility criteria and purposive sampling. Cognitive interviewing using think aloud and concurrent verbal probing was used to test the comprehension, recall, decision and response choice of participants to the questionnaire. Seven PDSA cycles involving the participants helped identify problems with the questionnaire items, instructions, layout and grouping of items. Participants used a laptop, smartphone and/or tablet computer for testing the electronic version of the questionnaire and one participant also tested the paper version. A cumulative process of presenting items in the questionnaire, anticipating problems with specific items and learning from the unanticipated responses from participants through rapid cycle tests of change allowed rich learning and reflection to progressively improve the questionnaire.ConclusionUsing rapid cycle tests of change in the pretesting questionnaire phase of research provided a structure for conducting cognitive interviews. Learning and reflections from the rapid testing and revisions made to the questionnaire helped improve the process of reaching the final version of the questionnaire, that the authors were confident would measure what was intended, rapidly and with less respondent burden.

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RECAPDOC - a questionnaire for the documentation of rehabilitation care utilization in individuals with disorders of consciousness in long-term care in Germany: development and pretesting

Cited by 4 publications

References 30 publications

Development of an Instrument for the Assessment of Health-Related Multi-sectoral Resource Use in Europe: The PECUNIA RUM

Development of an Instrument for the Assessment of Health-Related Multi-sectoral Resource Use in Europe: The PECUNIA RUM

Patients’ and professionals’ perspectives on the consideration of patients’ convenient therapy periods as part of personalised rehabilitation: a focus group study with patients and therapists from inpatient neurological rehabilitation

Using rapid cycle tests of change to develop the Carers Assistive Technology Experience Questionnaire: a cognitive interview study in the UK

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