Realizing Children’s Right to Health

Spronk, Sarah I.

doi:10.1163/15718182-55680013

Cited by 3 publications

(2 citation statements)

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“…Further, Article 13 of the CRC states that children have the right to seek, receive, and impart information and ideas of all kinds. The realisation of children’s participation rights requires their translation into policy and practice, as well as CYP’s participation in conceptualising and realising these rights [ 30 ]. Children’s rights have been reflected in CYP’s involvement becoming an increasing priority in UK healthcare [ 3 , 20 , 38 ] and increasing interest in CYP’s involvement in health, public health and social care research (e.g.…”

Section: Introductionmentioning

confidence: 99%

“We know that our voices are valued, and that people are actually going to listen”: co-producing an evaluation of a young people’s research advisory group

et al. 2023

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Background Children and young people’s (CYP) involvement is an increasing priority in UK healthcare and in heath research, alongside recognition that involving CYP in research requires different considerations to involving adults. Underpinned by children’s rights and a co-production ethos this paper, co-authored with young evaluators, explores the learning from a co-produced evaluation of eyeYPAG, a young persons’ research advisory group (YPAG) for eye and vision research based at Moorfields Eye Hospital, London, UK. Methods A team of young evaluators, supported by the eyeYPAG facilitator, conducted focus groups and online surveys with YPAG members, their parents and carers, researchers, group facilitators and funders. Qualitative data was analysed using a collaborative reflexive thematic analysis approach. Quantitative data, limited by the small number of participants, was analysed in Excel and reported as descriptive data. Results CYP valued the social and creative aspects of the group as well as learning about research and developing skills and confidence. Learning was a two-way process, with both researchers and facilitators reflecting on how much they had learnt from working with the YPAG. All participants talked about the importance of impact, feeling that CYP are making a difference to research, as well as CYP’s right to be involved. Effective planning and facilitation were key to the success of the group, in relation to accessibility and the development and delivery of sessions both online and in-person. Resourcing and administration were key challenges to this, as was engaging researchers who were not already converted to the public involvement cause. As the nature of a YPAG is that it primarily focuses on advising researcher-led projects, co-production was identified as something that the group was ‘working towards’, including through this evaluation. Co-producing with CYP involves building up knowledge, confidence and acknowledging power dynamics. Conclusions Co-producing an evaluation enabled us to learn about the benefits and challenges of involving CYP in research, as well as how to involve them in the development of that evidence. An ethos of co-production and children’s rights helped to shift the balance of power and develop more engaging and inclusive ways of working.

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Section: Introductionmentioning

confidence: 99%

“We know that our voices are valued, and that people are actually going to listen”: co-producing an evaluation of a young people’s research advisory group

et al. 2023

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“…Furthermore, Article 13 states that children have the right to seek, receive and impart information and ideas of all kinds, and Article 24 states that they have the right to the best possible health and access to good-quality health care. The realization of children's rights requires their translation into policy and practice, as well as children and young people's participation in conceptualizing and realizing these rights (Spronk, 2014). Children's rights have been reflected in increasing interest in children and young people's involvement in research (for example, INVOLVE, 2016; Powell and Smith, 2009;Brady and Graham, 2019), both as sources of data and -the focus of this article -through their active involvement in the research process.…”

Section: The Case For Involving Children and Young Peoplementioning

confidence: 99%

How do we know what works? Evaluating data on the extent and impact of young people’s involvement in English health research

Brady

Preston

2020

RFA

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The case for children and young people’s involvement in health research has been well documented, but less attention has been paid to the experiences and impact of involving children and young people rather than adults. This paper explores these issues in relation to a project undertaken for the James Lind Initiative on the availability, quality and reliability of existing data on young people’s involvement in studies supported by the National Institute for Health Research (NIHR). The project found that there was no systematic way of getting reliable and comparable information about which young people are involved in health research in England, what form that involvement may have taken or the impacts of involvement. There is a need to better collate and disseminate evidence on young people’s involvement in research, using both existing systems and processes, and the possible development of new metrics and measures. Not having this information risks children and young people’s involvement continuing to develop in a piecemeal fashion. Further research is needed about how, when and where children and young people are involved in health research, and about the impact of involvement on research and on the children and young people involved.

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Les droits des enfants en milieu hospitalier

Favretto¹,

Crocetta²

2020

revss

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Realizing Children’s Right to Health

Cited by 3 publications

References 1 publication

“We know that our voices are valued, and that people are actually going to listen”: co-producing an evaluation of a young people’s research advisory group

“We know that our voices are valued, and that people are actually going to listen”: co-producing an evaluation of a young people’s research advisory group

How do we know what works? Evaluating data on the extent and impact of young people’s involvement in English health research

Les droits des enfants en milieu hospitalier

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