Real-Time Dissemination of Aggregate Data on Presentation and Outcomes of Patients With Venous Thromboembolism: The RIETE Infographics Project

Abstract

In the current era of patient empowerment and precision medicine, access to timely information is critical to decision-making. Unfortunately, we currently lack patient-specific, real-time data about clinical presentation, risk of thrombotic or hemorrhagic events, key risk factors, and adverse outcomes in patients with venous thromboembolism (VTE). Accordingly, the Registro Informatizado Enfermedad TromboEmbólica (RIETE) investigators developed a tool to provide an open-source, real-time graphic representation of VTE-related data derived from over 90 000 patients with confirmed VTE. This information is intended to facilitate discussion in the informed decision-making process. The current article describes the aims, rationale, methods, and ongoing and future efforts of the real-time VTE infographics developed by the RIETE registry collaborators.

Preparing Infographics for Post-publication Promotion of Research on Social Media

“…Still, they may also act as a beneficial tool for shared decision-making among future healthcare policymakers. 5 6 In the time of coronavirus disease 2019 (COVID-19) pandemic, infographics have emerged as an effective tool to deliver credible medical information with relevance to public health due to the rise of unverified pandemic related information on SMPs. 7 They are particularly used for disseminating clinical recommendations and prevention strategies 8 9 10 11 and in telemedicine for guidance on home-based care.…”