Readability analysis of Spanish language patient-reported outcome measures in pediatric otolaryngology

Rao, Shambavi J.; Nickel, Joseph C; Kiell, Eleanor P.; Navarro, Noel I.; Madden, Lyndsay L.

doi:10.1016/j.ijporl.2021.110934

Cited by 4 publications

(1 citation statement)

References 16 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This might be due to its simplicity. The VELO instrument has the dominant place in the recent 3 years ( 20 , 51 – 61 ), followed by the type 8 family (VHI, pVHI, and VHI-9i) ( 57 , 61 – 64 ). The VELO instrument is specially designed for patients with velopharyngeal insufficiency who accounted for the majority of patients with velopharyngeal inadequacy, thereby enabling its widespread.…”

Section: Discussionmentioning

confidence: 99%

Velopharyngeal Inadequacy-Related Quality of Life Assessment: The Instrument Development and Application Review

2022

View full text Add to dashboard Cite

ObjectiveFor the patient-reported outcome (PRO) measures related to patients with velopharyngeal inadequacy (VPI), different quality of life (QOL) instruments have been developed. The present systematic review was designated to identify current VPI-related QOL instrument development, validation, and applicability.MethodsPubmed, Cochrane, Embase, Web of Science, and EBSCO databases were searched in January 2022. “Velopharyngeal” or “palatopharyngeal” and “quality of life” or “life quality” were searched in title, abstract, and keywords. This study followed Preferred Reporting Items for Systematic Review and Meta-analysis (PRISMA) guidelines. Two investigators independently reviewed abstracts and full texts of the identified literature. An established checklist was used to evaluate the measurement properties of each identified instrument.ResultsA total of 375 articles and 13 instruments were identified, which can be divided into nine types of families according to their development procedures. Developmental and measurement characteristics, evidence of conceptual model, content validity, reliability, construct validity, scoring, interpretation, respondent burden, and presentation for all instruments were shown.ConclusionThe patient's self-report assessment and parent-proxy assessment are both valuable. The conclusion that any QOL instrument is absolutely the best for patients with velopharyngeal inadequacy could not be drawn. Understanding the development and characteristics of different QOL instruments, including their reliability, validity, aim, target, language, and resource, should be important before application in clinic or research.

show abstract

Section: Discussionmentioning

confidence: 99%

Velopharyngeal Inadequacy-Related Quality of Life Assessment: The Instrument Development and Application Review

2022

View full text Add to dashboard Cite

show abstract

Use of patient-reported outcome measures after breast reconstruction in low- and middle-income countries: a scoping review

Malapati,

Hyland,

Liang

et al. 2024

J Patient Rep Outcomes

View full text Add to dashboard Cite

Background Patient-reported outcome measures (PROMs) are increasingly administered in high-income countries to monitor health-related quality of life of breast cancer patients undergoing breast reconstruction. Although low- and middle-income countries (LMICs) face a disproportionate burden of breast cancer, little is known about the use of PROMs in LMICs. This scoping review aims to examine the use of PROMs after post-mastectomy breast reconstruction among patients with breast cancer in LMICs. Methods MEDLINE, Embase, Web of Science, CINAHL, and PsycINFO were searched in August 2022 for English-language studies using PROMs after breast reconstruction among patients with breast cancer in LMICs. Study screening and data extraction were completed. Data were analyzed descriptively. Results The search produced 1024 unique studies, 33 of which met inclusion criteria. Most were observational (48.5%) or retrospective (33.3%) studies. Studies were conducted in only 10 LMICs, with 60.5% in China and Brazil and none in low-income countries. Most were conducted in urban settings (84.8%) and outpatient clinics (57.6%), with 63.6% incorporating breast-specific PROMs and 33.3% including breast reconstruction-specific PROMs. Less than half (45.5%) used PROMs explicitly validated for their populations of interest. Only 21.2% reported PROM response rates, ranging from 43.1 to 96.9%. Barriers and facilitators of PROM use were infrequently noted. Conclusions Despite the importance of PROM collection and use in providing patient-centered care, it continues to be limited in middle-income countries and is not evident in low-income countries after breast reconstruction. Further research is necessary to determine effective methods to address the challenges of PROM use in LMICs.

show abstract

What Are the English to Spanish Translation Methods Used on Written Health-Related Information?

Aponte,

Tejada,

Figueroa

2023

Res Theory Nurs Pract

View full text Add to dashboard Cite

Objective:This systematic review was conducted to examine methods and tools used to translate written health-related information from English to Spanish.Methods:The design of this study was a systematic review. This review search was of all published articles up to July 2022. Three databases were used: CINAHL Plus, MEDLINE, and PubMed. The Preferred Reporting Items for Systematic Reviews and Meta-Analysis flowchart was used in the systematic review.Results:A total of 17 articles were used in the analysis. Six (35.3%) of the articles used a machine and human translation method, and eight (47%) used Google Translate as the machine translation tool. The screening, full-text review, and data extraction were done using the Covidence software.Discussions:As translating health-related information accurately is crucial, using metrics or standardizing one is urgently needed.Nursing implications:This review highlights that in addition to a lack of standardized metrics, there currently is no criterion on the qualifications or credentials required by individuals who translate written information from English to Spanish, allowing anyone to do so. This is concerning because it is critical that Spanish speakers and those with limited English proficiency receive linguistically accurate and appropriate resources that allow them to improve their health literacy and promote health.

show abstract

Readability analysis of Spanish language patient-reported outcome measures in pediatric otolaryngology

Cited by 4 publications

References 16 publications

Velopharyngeal Inadequacy-Related Quality of Life Assessment: The Instrument Development and Application Review

Velopharyngeal Inadequacy-Related Quality of Life Assessment: The Instrument Development and Application Review

Use of patient-reported outcome measures after breast reconstruction in low- and middle-income countries: a scoping review

What Are the English to Spanish Translation Methods Used on Written Health-Related Information?

Contact Info

Product

Resources

About