Abstract:Disclosure of a dementia diagnosis does not prompt a catastrophic emotional reaction in most people, even those who are only mildly impaired, and may provide some relief once an explanation for symptoms is known and a treatment plan is developed.
“…I was informed of her diagnosis, which might help in relieving some of her anxiety. 60 Her husband is instructed in general ways that might help with her anxiety, such as having a predictable routine to the day, simplifying tasks, reducing excess stimulation, and following the 3 R's (repeat, reassure and redirect). 61 For her insomnia, Mrs.…”
Section: Interventions For Behavioural and Psychological Symptomsmentioning
“…I was informed of her diagnosis, which might help in relieving some of her anxiety. 60 Her husband is instructed in general ways that might help with her anxiety, such as having a predictable routine to the day, simplifying tasks, reducing excess stimulation, and following the 3 R's (repeat, reassure and redirect). 61 For her insomnia, Mrs.…”
Section: Interventions For Behavioural and Psychological Symptomsmentioning
“…Un estudio sobre discusión de diagnóstico de demencia con el paciente, no mostró que se gatillara una reacción emocional catastrófi ca al saber el diagnóstico, incluso podía ser un factor de reducción de ansiedad al tener una explicación de los síntomas y proveer un plan de tratamiento 25 .…”
“…It is widely understood that the way bad news is communicated can have a significant impact on the way patients and families adjust to serious illness. It has been found that dementia patients in the general population don't experience a catastrophic emotional reaction when they are told their diagnosis; rather, they experience relief that there is an explanation for their symptoms and that a treatment plan can be developed (Carpenter et al 2008). There is no reason to believe that this would be any different for people with learning disabilities (Watchman 2013).…”
People with learning disabilities are now enjoying a longer life expectancy than ever before as a result of enhanced medical and social interventions and improved quality of life. As a consequence of this we now know that some people with a learning disability, particularly individuals with Down syndrome, are susceptible to dementia at a significantly younger age.Currently there is limited guidance on how to talk about dementia to someone with a learning disability. Yet until information is shared about dementia, we are unable to position people with a learning disability as an authority on their condition. The new model presented in this article suggests a way of supporting staff and family to have enabling conversations about dementia with people with a learning disability that centre around their current situation and level of understanding and capacity.
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