Re-claiming the Power of Definition—The Value of Reflexivity in Research on Mental Health at Risk

Lorke, Mariya; Schwegler, Carolin; Jünger, Saskia

doi:10.1007/978-3-030-65331-6_7

Cited by 2 publications

(1 citation statement)

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“…The status of being at risk has shown to be an identity-relevant shift from a person’s self-perception as healthy to (soon-to-be) ill. This normative potential of risk prediction is addressed by “healthy-sick debates” (Meier et al, 2017) and elaborations on the power of definitional dynamics in risk prediction (Lorke et al, 2021). This is of high ethical relevance when a person’s health and liberty are disregarded by overseeing psychological factors of public perceptions of at-risk statuses (Perhac, 1996).…”

Section: Discussionmentioning

confidence: 99%

The Promotion of Health Literacy

et al. 2023

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Progress in predictive medicine has increased the challenges to navigating complex risk information for patients and healthcare professionals. This contribution investigates how people facing the risk of developing Alzheimer’s dementia perceive risk, what aspects are relevant to their health literacy, and how to promote individual health literacy in predictive medicine. We conducted a qualitative study analyzing narrative interviews, body maps, and sociodemographic data from persons who had undergone early predictive procedures in a memory clinic. We understand the promotion of health literacy as an ethical task in predictive medicine and argue for (1) emphasizing personal resources to promote subjective health literacy, (2) reframing communication and decision-making about disease risk, and (3) teaching skills for value-sensitive, individualized risk communication.

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Section: Discussionmentioning

confidence: 99%