Rasch analysis of the Pediatric Evaluation of Disability Inventory–computer adaptive test (PEDI‐CAT) item bank for children and young adults with spinal muscular atrophy

Pasternak, Amy; Sideridis, Georgios D.; Fragala-Pinkham, Maria; Montes, Jacqueline; Dunaway, Sally; Salazar, Rachel; Quigley, Janet; Pandya, Shree; O'Riley, Susan; Greenwood, Jonathan; Chiriboga, Claudia A.; Finkel, Richard S.; Tennekoon, Gihan; Martens, William; McDermott, Michael P.; Fournier, Heather Szelag; Madabusi, Lavanya; Harrington, Timothy; Cruz, Rosángel; LaMarca, Nicole; Videon, Nancy; Vivo, Darryl C. De; Darras, Basil T.

doi:10.1002/mus.25164

Cited by 18 publications

(16 citation statements)

References 35 publications

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“…Further, while two of the five domain comparisons revealed that significantly more participants scored at the floor on the PEDI-CAT, the remaining three domain comparisons were not significantly different between the PEDI-CAT and VABS-3. Other studies have also found that there are elevated floor effects using the PEDI-CAT in populations with significant functional needs [ 31 , 39 ] and likely represents insufficient items at the lower end of the assessments. These results highlight the need for additional measures or the validation of new scoring methods for both of these measures if adaptive domains are included in a research trial, as these measures would not likely capture changes well for this lower functioning subset of patients with the current scoring systems.…”

Section: Discussionmentioning

confidence: 99%

“…The PEDI-CAT has been translated and cross-culturally adapted into several versions, including Spanish, Dutch and Brazilian-Portuguese [ 19 , 20 ]. It has been used to assess motor functioning in children with learning disorders and children with spina bifida, as well as all domains of functioning in autism spectrum disorder (ASD), Down syndrome, cerebral palsy, Angelman syndrome, infants and toddlers receiving EI services and many others [ 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 ]. Several studies show strong psychometric evidence for the PEDI-CAT.…”

Section: Introductionmentioning

confidence: 99%

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Adaptive Skills in FXS: A Review of the Literature and Evaluation of the PEDI-Computer Adaptive Test (PEDI-CAT) to Measure Adaptive Skills

et al. 2020

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As adaptive skills (AS) are dynamic and may indicate the success of an intervention, they are a common domain measured in clinical trials. Typical interview tools for measuring AS are time-consuming, and questionnaire measures often lead to inconsistent information. The present study was designed to evaluate the feasibility, validity and test-retest performance of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) in Fragile X syndrome (FXS). The PEDI-CAT is administered via tablet and uses the item response theory to efficiently determine the items administered. The PEDI-CAT was administered to 42 individuals with FXS (27 males; 15 females) aged 1.6–50.9 years (M = 14.9; SD = 11.2), followed by the Vineland-3 (VABS-3) interview for comparison. Administration was efficient (M = 21.7 min; SD = 9.5; range 8–45 min; mode = 19). Males and females did not significantly differ on the PEDI-CAT domains, except for daily activities (t(40) = −2.22, p = 0.037). Floor effects were significant for both measures, although the PEDI-CAT showed more floor effects in the mobility (35.7%) and social-cognitive (50%) domains. PEDI-CAT daily activities, mobility, social-cognitive and responsibility domains were all significantly correlated with most of the VABS-3 domains (all rho > 0.5; p < 0.01). Test-rest of the PEDI-CAT was comparable to the VABS-3. Results suggest that the PEDI-CAT is efficient, and minimal training is needed to administer it; however, it lacks specificity and shares a high rate of floor effects with the VABS-3.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Adaptive Skills in FXS: A Review of the Literature and Evaluation of the PEDI-Computer Adaptive Test (PEDI-CAT) to Measure Adaptive Skills

et al. 2020

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“…The PEDI‐CAT in school aged children has been found to have strong construct validity and reliability (Shore et al, ). However Pasternak et al () found that it lacks sensitivity for measuring skills and progress in children with significant functional needs even when using all the item bank questions rather than the computer generated ones.…”

Section: Discussionmentioning

confidence: 99%

Accurate assessment of functional abilities in pre‐schoolers for diagnostic and funding purposes: A comparison of the Vineland‐3 and the PEDI‐CAT

Milne

Campbell

Cottier

2019

Aus Occup Therapy J

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Aim: Assessment of functional abilities is an essential component in the diagnosis of neurodevelopmental disorders in young children. Functional abilities, assessed using the Pediatric Evaluation of Disability Inventory-Computer Adapted Test (PEDI-CAT), are used to determine eligibility for early intervention funded under the National Disability Insurance Scheme in Australia (NDIS). This study aims to compare the use of the PEDI-CAT with the Vineland-3, a comprehensive parent interview for the determination of support needs, diagnosis, and eligibility for funding. Method: Seventy-five preschool aged children referred for formal diagnosis were assessed with the Vineland-3, and subscale scores reviewed for clinical judgement.These children were also assessed on the PEDI-CAT speedy version and the results on the two tests compared. Results: The PEDI-CAT was less sensitive than the Vineland-3 to the functional difficulties being experienced in this population of preschool aged children. The Vineland-3 had floor effects on some scales and deficits masked by skills in other areas in the same domain, but standard subscale scores allowed skills and areas needing support to be defined. Overall 25% of children clinically in need of support were not identified on the Pedi-cat compared to only 4% using Vineland Domain scores and 3% using Vineland-3 subscale scores. The PEDI-CAT also identified significantly lower levels of support required with only 32% of children found to need very substantial support compared to 40% of children on the Vineland Domain scores, and 59% using subscale scores. Conclusion: Based on the results of this study, the Vineland-3 comprehensive interview interpreted using subscale scores as well as domain scores is more sensitive than the PEDI-CAT in identifying young children in need of support as well as the areas and degree of support required. K E Y W O R D Sactivities of daily living, assessment, autism spectrum disorder, child-preschool, clinical decision making, developmental disabilities, developmental disorders, early intervention, functional assessment, NDIS

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“…Principal component analysis (PCA) on the residuals of the Rasch model verified the unidimensionality of the DA and MB domains. According to the criterion adopted by Pasternak et al [21], the amount of variance explained by the first dimension should be > 20% to consider the data to be one-dimensional.…”

Section: Data Analysesmentioning

confidence: 99%

“…Strong psychometric properties of the PEDI-CAT have been documented for individuals with and without disabilities [15][16][17]. Its application so far includes the evaluation of functioning in children and young people with autism spectrum disorders [18], complex medical conditions [19], HIV encephalopathy [20] and spinal muscular atrophy [21].…”

mentioning

confidence: 99%

Functioning of young patients with cerebral palsy: Rasch analysis of the pediatric evaluation of disability inventory computer adaptive test daily activity and mobility

Amaral

Sampaio

Coster

et al. 2020

Health Qual Life Outcomes

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Background People with cerebral palsy experience limitations in performing activities of daily living. Rehabilitation practitioners seek valid instruments to measure changes in the performance of those activities. The Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) is a new tool to assess functioning in children and youth with various health conditions. Its validity needs to be evaluated in a way that is consistent with the theoretical model on which it was based. We aimed to evaluate the fit of daily activity and mobility items and children with CP to the Rasch model and to compare the performance in daily activities and mobility of older children, adolescents, and young adults with CP based on manual function and gross motor function limitations. Methods Eighty-three parents of children and youth of 8–20 years old (mean age: 11.6) with different severity levels of cerebral palsy participated in this study. Ninety-one items of the PEDI-CAT Daily Activities and Mobility domains were analyzed through Rasch analysis to evaluate relative item difficulty and participant ability. Participants were described according to the Manual Ability (MACS) (level I: 21.7%; II: 32.5%; III: 24.1%; IV: 7.2% and V: 3.6%) and the Gross Motor Function (GMFCS) (level I: 37.3%; II: 26.5%; III: 6%; IV: 18.1%; and V: 7.2%) classification systems levels. Results Our data fit the Rasch Model. Parents had difficulty distinguishing some PEDI-CAT response categories. Participants from MACS and GMFCS levels IV and V showed lower ability to perform relatively more difficult items. There was a floor effect in both domains. Only 7.7% of the items presented differential item functioning when individuals with mild MACS and GMFCS levels (I, II) and moderate level (III) and individuals with moderate (III) and severe levels (IV, V) were compared. Conclusions PEDI-CAT daily activities and mobility domains are valid to evaluate children, adolescents and youth with CP of different severities, but the addition of items to these domains is recommended in order to address their floor effect.

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Rasch analysis of the Pediatric Evaluation of Disability Inventory–computer adaptive test (PEDI‐CAT) item bank for children and young adults with spinal muscular atrophy

Abstract: The PEDI-CAT may be used to measure functional performance in SMA, but additional items are needed to identify small changes in function and best represent the abilities of all types of SMA. Muscle Nerve 54: 1097-1107, 2016.

Cited by 18 publications

References 35 publications

Adaptive Skills in FXS: A Review of the Literature and Evaluation of the PEDI-Computer Adaptive Test (PEDI-CAT) to Measure Adaptive Skills

Adaptive Skills in FXS: A Review of the Literature and Evaluation of the PEDI-Computer Adaptive Test (PEDI-CAT) to Measure Adaptive Skills

Accurate assessment of functional abilities in pre‐schoolers for diagnostic and funding purposes: A comparison of the Vineland‐3 and the PEDI‐CAT

Functioning of young patients with cerebral palsy: Rasch analysis of the pediatric evaluation of disability inventory computer adaptive test daily activity and mobility

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