Randomized Trial of a Peer-Led, Telephone-Based Empowerment Intervention for Persons With Chronic Spinal Cord Injury Improves Health Self-Management

Houlihan, Bethlyn; Brody, Miriam; Everhart-Skeels, Sarah; Pernigotti, Diana; Burnett, Sam; Zazula, Judi; Green, Christa; Hasiotis, Stathis; Belliveau, Timothy; Seetharama, S.; Rosenblum, David S.; Jette, Alan M.

doi:10.1016/j.apmr.2017.02.005

Cited by 84 publications

(95 citation statements)

References 44 publications

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“…Thus, the use of direct to consumer teleSCI seems feasible. This is also what Houlihan et al [16] found in their study, evaluating the impact of "My Care My Call" (MCMC)-a peer-led, telephone-based empowerment intervention. The authors concluded that "the MCMC peer-led, health self-management intervention achieved a positive impact on self-management to prevent secondary conditions in adults with SCI".…”

Section: Direct To Consumermentioning

confidence: 54%

Telehealth for people with spinal cord injury: a narrative review

et al. 2018

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Study design Narrative review. Objectives To find and discuss what has been published about the use of telehealth, on people with spinal cord injury (teleSCI). Setting International. Method Cochrane Library, Ovid Medline, EMBASE and CINAHL, from 1996 till June 2017 have been searched. Searches in PsycINFO, from 1996 till September 2017, were included afterwards. Extracted data include studies in English language, containing information about spinal cord injury and disorders, and telehealth. Literature reviews, systematic reviews, and studies containing other types of neurological disorders, were excluded. Studies were grouped based on how and to whom telehealth was offered.Results Twenty nine studies were included in the review. They were categorized according to the way teleSCI was provided, and to what modality was used. Some studies utilized more than one modality. TeleSCI seems to be favorable concerning treatment and follow-up, as well as favorable socioeconomically and environmentally. The studies spanned across several aims and outcomes. There was also heterogeneity in number of participants, the differences in modalities, and in the level of evidence. Thus it was challenging to compare studies and make future recommendations. Conclusions TeleSCI can be used for examination and guiding purposes. Further research is warranted to evaluate optimal utilization, methodology and efficacy. Sponsorship The first author has received funding from the Norwegian Extra Foundation.

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Section: Direct To Consumermentioning

confidence: 54%

Telehealth for people with spinal cord injury: a narrative review

et al. 2018

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“…The MCMC study is described in detail elsewhere. 21,30 This RCT enrolled 42 individuals in the intervention group compared with 42 control individuals who received usual care. Eligibility criteria included: age ⩾ 18 years, chronic traumatic SCI (⩾1 year postinjury), endorsement of an unmet primary prevention or self-management need, and telephone access.…”

Section: Methods Designmentioning

confidence: 99%

“…1 Community-based peer support is valuable to both individuals with SCI and the multidisciplinary healthcare team and results in positive self-management outcomes. 2,30 Little remains known about how SCI peer mentors interact with communitydwelling peers beyond the first year post-injury. 2,22,23,31 Results of an SCI self-management intervention called 'My Care My Call' (MCMC) show promising impact of a trained SCI peer health coach (PHC).…”

Section: Introductionmentioning

confidence: 99%

“…MCMC reported statistically significant improvements in: health self-management skills and behavior, experiences with primary care engagement, health-related quality of life, and social medical support for those who received self-management coaching from a PHC via telephone for 6 months compared with those who did not. 30 PHCs are people with chronic conditions who are trained to provide self-management education and support to others with the same chronic condition. 32,33 The results of MCMC warrant secondary analysis to advance the understanding of the SCI PHC.…”

Section: Introductionmentioning

confidence: 99%

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SCI peer health coach influence on self-management with peers: a qualitative analysis

et al. 2017

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“…Given the benefits of self-management strategies for the management of SCI, 36,37 as well as the prevalence and complexity of pain and depression, there is a need to improve our knowledge on existing self-management strategies and interventions to help people with SCI better cope with these significant complications. An individual's ability to self-manage their pain may be hindered by comorbid depression.…”

Section: Introductionmentioning

confidence: 99%

Self-management of pain and depression in adults with spinal cord injury: A scoping review

Cadel

DeLuca

Hitzig

et al. 2018

The Journal of Spinal Cord Medicine

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Context: Pain and depression are two prevalent secondary complications associated with spinal cord injury (SCI) that negatively impact health and well-being. Self-management strategies are growing in popularity for helping people with SCI to cope with their pain and depression. However, there is still a lack of research on which approaches are best suited for this population. Objective: The aim of this scoping review was to determine what is known about the self-management of pain and depression through the use of pharmacological and non-pharmacological therapies in adults with SCI. Methods: Seven electronic databases were searched for articles published between January 1, 1990 and June 13, 2017. Grey literature was searched and additional articles were identified by manually searching the reference lists of included articles. Results: Overall, forty-two articles met the inclusion criteria; with the majority reporting on the self-management of pain, rather than on depression or on both complications. Non-pharmacological interventions were more likely to include self-management strategies than pharmacological interventions. A limited number of studies included all of the core self-management tasks and skills. Conclusions: There are significant knowledge gaps on effective self-management interventions for pain and depression post-SCI. There is a need to develop interventions that are multi-faceted, which include both pharmacological and non-pharmacological therapies to address multimorbidity. PT and kinesiology studentsReduced stress, pain, and depression, better physical selfconcept and quality of life.PT, physical therapist; OT, occupational therapist; RN, registered nurse; CBT, cognitive behavioral therapy; NP, neuropathic pain; CNSCIP, chronic neuropathic spinal cord injury pain.Cadel et al. Self-management of pain and depression in adults with SCI

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Randomized Trial of a Peer-Led, Telephone-Based Empowerment Intervention for Persons With Chronic Spinal Cord Injury Improves Health Self-Management

Cited by 84 publications

References 44 publications

Telehealth for people with spinal cord injury: a narrative review

Telehealth for people with spinal cord injury: a narrative review

SCI peer health coach influence on self-management with peers: a qualitative analysis

Self-management of pain and depression in adults with spinal cord injury: A scoping review

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