Randomised feasibility study of a novel experience-based internet intervention to support self-management in chronic asthma

Newhouse, Nikki; Martin, Angela; Jawad, Sena; Yu, Ly-Mee; Davoudianfar, Mina; Locock, Louise; Ziébland, Sue; Powell, John

doi:10.1136/bmjopen-2016-013401

Cited by 27 publications

(38 citation statements)

References 34 publications

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“…The number of studies on ehealth interventions has grown rapidly in the last few years. Studies among patient or general populations have shown that e-health interventions enhance health and wellbeing, improve lifestyle and increase self-management for a broad range of diseases or risk factors (16)(17)(18)(19)(20)(21). In occupational health, however, articles on e-health interventions are relatively scarce.…”

Section: Introductionmentioning

confidence: 99%

Effect of an eHealth Intervention to Reduce Sickness Absence Frequency Among Employees With Frequent Sickness Absence: Randomized Controlled Trial (Preprint)

Notenbomer¹,

Roelen²,

Groothoff³

et al. 2018

Preprint

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Effect of an e-health intervention to reduce sickness absence frequency among employees with frequent sickness absence: a randomized-controlled trial Effect of an e-health intervention to reduce sickness absence frequency among employees with frequent sickness absence: a randomized-controlled trial. AbstractBackground: Frequent sickness absence (SA), i.e., ≥3 episodes of SA in one year, is a problem for employers and employees. A high percentage of employees who have had frequent SA in a prior year also have frequent SA in subsequent years: 39% in the first follow-up year and 61% within 4 years. Also, 19% have long-term SA in the first followup year and 50% within 4 years. We developed an e-health intervention, consisting of fully-automated feedback and advice, to use either as a stand-alone tool (EHI-only) or combined with consultation with an occupational physician (EHI-OP).Objective: To evaluate the effect of an e-health intervention, with or without additional OP consultation, to reduce SA frequency for employees with frequent SA, versus care as usual (CAU). Method:This study was a three-armed randomized controlled trial. Employees with frequent SA received invitational letters, which were distributed by their employers. The follow-up period was 12 months. The primary outcome measure was register-based SA 1 frequency. Secondary outcome measures were register-based total SA days and selfassessed burn out, engagement and work ability. In a process evaluation 3 months after baseline, we examined adherence to the intervention and additional actions such as GP and OP visit, communication with the manager, and lifestyle change.Results: A total of 79 participants were included in the analyses, 20 in the EHI-only group, 30 in the EHI-OP group and 29 in the care as usual group (CAU). We found no significant difference in SA frequency between the groups at 1-year follow-up. SA frequency decreased in the EHI-only group from 3 (IQR 3-4) to 1 episode (IQR 0.3-2.8), in the EHI-OP group from 4 episodes ( IQR 3-5) to 3 episodes (IQR 1-4) and in the CAU group from 3 episodes (IQR 3-4) to 2 episodes (IQR 1-3). For secondary outcomes we found no significant differences between the intervention groups and the control group.The process evaluation showed that only 3 participants from the EHI-OP group visited the OP upon invitation. Conclusion:Among employees with frequent SA we found the e-health intervention as a stand-alone tool to have no effect in reducing SA frequency. We also found no effect on the secondary outcome measures (total SA days, burn out, engagement and work ability).This may be due to low adherence to the intervention because of insufficient urgency to act. We cannot draw any conclusion on the effect of blended care (EHI-OP), i.e. the EHItool combined with an OP consultation, due to very low adherence to the OP consultation. An OP consultation could increase a sense of urgency and lead to more focus and appropriate support. Recent meta-analyses showed that blended care is often more effective than stand-alone e...

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Section: Introductionmentioning

confidence: 99%

Effect of an eHealth Intervention to Reduce Sickness Absence Frequency Among Employees With Frequent Sickness Absence: Randomized Controlled Trial (Preprint)

Notenbomer¹,

Roelen²,

Groothoff³

et al. 2018

Preprint

View full text Add to dashboard Cite

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“…Responsiveness has been demonstrated in a population of ambulatory patients with osteoarthritis in Australia [42,43]. Items are rated on a nine-point scale and averaged for each domain, higher scores referring, for example, to a more active role.…”

Section: Questionnairesmentioning

confidence: 99%

Use and effects of patient online access to medical records in general practice through a personal health record in the Netherlands. A protocol for a mixed methods study. (Preprint)

Vreugdenhil¹,

Kool²,

Boven³

et al. 2018

Preprint

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“…(12)(13)(14) When faced with new health concerns or treatments, patients search not only for fact-based information but also seek other patient experiences (PEx). (15) There is limited but increasing research looking at the value of PEx. (15)(16)(17)(18)(19)(20)(21)(22)(23)(24)(25) The design and quality of these studies including PEx as an intervention varies.…”

mentioning

confidence: 99%

“…(15) There is limited but increasing research looking at the value of PEx. (15)(16)(17)(18)(19)(20)(21)(22)(23)(24)(25) The design and quality of these studies including PEx as an intervention varies. (19,25) Also, there is no agreed-upon operationalisation of PEx, which are also called narratives, exemplars, anecdotes, testimonials or case histories.…”

mentioning

confidence: 99%

Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised controlled trial in a mixed-methods design

Barabasch

Riemann-Lorenz

Kofahl

et al. 2020

Preprint

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Background: A variety of management options (e.g. immunotherapies, lifestyle interventions, and rehabilitation) are available for people with relapsing-remitting multiple sclerosis (RRMS). Besides coping with the diagnosis, people with MS (pwMS) have to make complex decisions such as deciding about immunotherapies. In addition to factual information, reports of patient experiences (PEx) may support patients in decision-making. The added value of PEx in decision-making is not clear and controlled studies are rare. Therefore, systematic methods are necessary to develop and analyse PEx. As there are no evaluated PEx for MS in Germany, we are currently creating a website presenting PEx structured according to topics and illustrated by video, audio and text files. We aim to determine the feasibility of an intervention using PEx and evaluate whether PEx may help pwMS in their immunotherapy decision-making processes as a supplement to evidence-based information.Methods: This project will follow the Medical Research Council framework for development and evaluation of complex interventions. After the development of a website with PEx, a randomised controlled pilot trial (pilot RCT) will be conducted in 2-3 MS centres, clinics or rehabilitation centres including 55 pwMS and accompanied by a process evaluation. Patients with a RRMS diagnosis considering immunotherapy are eligible. The primary outcome is decision self-efficacy. Secondary outcomes include preparation for decision-making, decisional conflict, risk knowledge, confidence in active participation, affective forecasting, social support and self-reported impact of eHealth on its users. Participants will be randomly assigned either to i) an intervention group with a four weeks access to an evidence-based patient information resource and the PExMS-website as an adjunct or to ii) the control group with access to evidence-based information alone. A 6-members advisory panel involving representatives of pwMS, researchers, and neurologists, who accompany the whole project will mentor this pilot RCT.Discussion: The intervention was developed with systematic methods, created with active patient involvement and in critical appraisal by an expert advisory panel. The study is innovative as it contributes to the controversial evidence on the use of PEx in the context of evidence-based patient information.Trial registration: ClinicalTrials.gov (Identifier: NCT04236544).

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Randomised feasibility study of a novel experience-based internet intervention to support self-management in chronic asthma

Cited by 27 publications

References 34 publications

Effect of an eHealth Intervention to Reduce Sickness Absence Frequency Among Employees With Frequent Sickness Absence: Randomized Controlled Trial (Preprint)

Effect of an eHealth Intervention to Reduce Sickness Absence Frequency Among Employees With Frequent Sickness Absence: Randomized Controlled Trial (Preprint)

Use and effects of patient online access to medical records in general practice through a personal health record in the Netherlands. A protocol for a mixed methods study. (Preprint)

Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised controlled trial in a mixed-methods design

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