Raising a Child with Down Syndrome: Do Preferred Coping Strategies Explain Differences in Parental Health?

Alexander, Tatjana; Walendzik, Julia

doi:10.4236/psych.2016.71005

Cited by 7 publications

(11 citation statements)

References 56 publications

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“…Within the context of parenting, the predominant view is that intellectual disabilities create stress and burden for the caregivers (Sethi, Bhargava, & Dhiman, 2007). Additionally, parents may experience the impact of financial burden, restricted social interactions, and mental worries and so on (Alexander & Walendzik, 2016).…”

Section: Introductionmentioning

confidence: 99%

Effect of Coping Strategies on Stress of Parent with Intellectual Disabilities Children

Bonab¹,

Motamedi²,

Zare³

2017

AES

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Background: Raising a child with intellectual disability is stressful for the parent because it requires an intensive physical engagement as well as coping with emotional reactions to the child's condition. Parents have different modes of adapting to stress and demands caused by the disorder. Method: The current descriptive research design is aimed to identify existing coping strategies of parents who have children with intellectual disabilities. This study included 60 parents with intellectual disabilities children (30 mothers and 30 fathers) that were selected by random sampling. Parent's coping strategies were assessed by Collaborative Coping Strategies in Challenging Life Events (Ghobary et al., 2003) and Questionnaire on Resources and Stress (Friedrich, short form: QRS-F) was used to examine the degree of parental stress. Result: The correlation and regression analysis was used. The most of parent were used kind of coping strategies for coping with stress. Recognition of coping strategies of the parents is important and useful for the development of therapeutic interventions aimed at facilitating family adaptation in families with a child with intellectual disabilities.

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Section: Introductionmentioning

confidence: 99%

Effect of Coping Strategies on Stress of Parent with Intellectual Disabilities Children

Bonab¹,

Motamedi²,

Zare³

2017

AES

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“…Families must spend a great deal of energy and patience in coping with the child's behavioural, emotional and health problems. They must also address the social consequences of the disease -as there is a potential threat of stigmatization (Alexander and Walendzik, 2016). After the birth of a child with Down syndrome, parents face a number of new facts that force them to change their way of life and thinking.…”

Section: Kontakt / Journal Of Nursing and Social Sciences Related To mentioning

confidence: 99%

“…The most common are congenital heart disease, respiratory, visual and hearing problems, hypothyroidism, gastrointestinal diseases and growth disorders (Roizen et al, 2014). These require extra care and special attention and may be an additional source of concern and fear for parents (Alexander and Walendzik, 2016). Mental disability of children with Down syndrome (Pugnerová and Konečný, 2012) affecting their development, personality and socialization is a special symptom -and it is also the hardest to cope with.…”

Section: Introductionmentioning

confidence: 99%

Research into the needs of families who have children with Down syndrome (in the Slovak framework)

Slaná¹,

Letovancová²,

Dobríková³

et al. 2020

Kontakt

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Objective: The objective of the research was to identify the current needs of parents who have children with Down syndrome (DS); needs which were not satisfied at the time when DS was diagnosed in the child, and to describe the nature of the relationship between the needs of parents who have children with DS and their quality of life. Methods: Two valid standardized scales were applied in the research: the Family Needs Survey (FNS) and the Family Quality of Life Scale (FQOL). The research sample consisted of 102 parents of children with DS. The obtained data were processed using content analysis of data and statistical data processing through SPSS. Results: The research shows that it was right after the birth of their DS child that parents felt they most lacked information and psychological assistance. As their children grew older, they needed more formal or informal support, financial assistance, engagement of their DS child in the educational process, and they also felt a shortage of time. At the same time, a strong factor with a positive impact on the needs of parents of DS children (U = 448; p < 0.05) and their quality of life (U = 146; p < 0.05) was the support of grandparents and self-help communities (α = 52.78; p < 0.05). The higher the quality of the parents life, the lower the needs in terms of family functioning (r s = -0.267; p > 0.01), use of community services (r s = -0.278; p > 0.01) or the necessity to acquaint the community with the child's disability (r s = -0.280; p > 0.01). Conclusions: In order to satisfy the needs of families with DS children, formal and informal support is equally important. The types of support vary throughout the children's lives. Services provided to these families should not only be complex, but also coordinated and continuous.

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“…Mayse Itagiba Rooke e Sarah de Rezende Crolman aspectos do desenvolvimento e do organismo da pessoa, tais como, atraso na aquisição de marcos motores e linguísticos (Marchal et al, 2017). Além disso, a SD tem implicações para a saúde física de seus acometidos, tais como cardiopatia congênita, doença gastrointestinal, hipotireoidismo e problemas respiratórios (van Riper et al, 2018), o que faz com que a criança demande mais cuidado do que aquela sem deficiência (Alexander & Walendzik, 2016;Fatima & Suhail, 2019).…”

Section: Cylene Siqueira Medrado Danyelle Freitas Scali Nara Liana unclassified

Caracterização do sistema familiar de pessoas com deficiência intelectual: Uma análise sociodemográfica

et al. 2020

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Este artigo tem como objetivo caracterizar pessoas com deficiência intelectual (DI) e suas famílias, a partir de uma análise de dados sociodemográficos e das redes de apoio desse sistema. Foram participantes 71 famílias, cujos responsáveis responderam ao Questionário de Caracterização do Sistema Familiar. Os resultados indicam que a maioria das crianças e adolescentes com DI frequenta escola inclusiva, enquanto os adultos não estudam e não trabalham. Em geral, a mãe é a principal responsável pelas tarefas domésticas e as atividades de lazer são realizadas com todos os membros, havendo uma variedade delas de acordo com a fase de desenvolvimento da pessoa com DI. Entretanto, os adultos com DI são os que apresentam maior restrição de contatos sociais. As crianças com DI são as que mais frequentam serviços especializados em comparação aos adolescentes e aos adultos. Os dados indicam a necessidade de investigações futuras para que se possa implementar programas de intervenção baseados em evidências empíricas dirigidos às famílias.

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Raising a Child with Down Syndrome: Do Preferred Coping Strategies Explain Differences in Parental Health?

Cited by 7 publications

References 56 publications

Effect of Coping Strategies on Stress of Parent with Intellectual Disabilities Children

Effect of Coping Strategies on Stress of Parent with Intellectual Disabilities Children

Research into the needs of families who have children with Down syndrome (in the Slovak framework)

Caracterização do sistema familiar de pessoas com deficiência intelectual: Uma análise sociodemográfica

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