Racial disparities and online health information: YouTube and prostate cancer clinical trials

Borno, Hala; Zhang, Sylvia; Bakke, Brian; Bell, Alexander Melville; Zuniga, Kyle B.; Li, Patricia; Chao, Kelly; Sabol, Alexis; Killeen, T Colin; Hong, Haemin; Walter, Dawn; Loeb, Stacy

doi:10.1111/bju.15081

Cited by 13 publications

(20 citation statements)

References 5 publications

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“…These results corroborate our previous findings suggesting underrepresentation of Black and Latinx adults in YouTube videos about clinical trials. 17 To leverage the full potential of these large online networks, it is important that a greater proportion of websites and videos include representation of racial and ethnic diversity. Further, we recommend that professional organizations and other content creators disseminate more actionable and understandable health information.…”

Section: Discussionmentioning

confidence: 99%

Representation in Online Prostate Cancer Content Lacks Racial and Ethnic Diversity: Implications for Black and Latinx Men

et al. 2022

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Purpose:Black men have the highest incidence and mortality from prostate cancer (PCa) and lower quality of life compared to other U.S. racial groups. Additionally, more Latinx men are diagnosed with advanced disease and fewer receive guideline-concordant care. As many men seek medical information online, high-quality information targeting diverse populations may mitigate disparities. We examined racial/ethnic representation and information quality in online PCa content.Materials and Methods:We retrieved 150 websites and 150 videos about “prostate cancer” using the most widely used search engine (Google) and social network (YouTube). We assessed quality of health information, reading level, perceived race/ethnicity of people featured in the content and discussion of racial/ethnic disparities.Results:Among 81 websites and 127 videos featuring people, 37% and 24% had perceived Black representation, and racial/ethnic disparities were discussed in 27% and 17%, respectively. Among 1,526 people featured, 9% and 1% were perceived as Black and Latinx, respectively. No content with Black or Latinx representation was high quality, understandable, actionable and at the recommended reading level.Conclusions:Black and Latinx adults are underrepresented in online PCa content. Online media have significant potential for public education and combating health disparities. However, most PCa content lacks diversity and is not readily understandable.

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Section: Discussionmentioning

confidence: 99%

Representation in Online Prostate Cancer Content Lacks Racial and Ethnic Diversity: Implications for Black and Latinx Men

et al. 2022

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“…A previous study evaluating PCa YouTube content more generally observed high degrees of frank misinformation. 13 Another analysis examining PCa clinical trial YouTube content classified most as poor quality, 4 suggesting a need for consumer feedback on available online information. A large subset of participants (n = 25, 37.9%) indicated being satisfied/very satisfied with TL; however, this did not meet the target to reject the null hypothesis.…”

Section: Discussionmentioning

confidence: 99%

Mobile Clinical Trial Matching Technology in Medical Oncology Clinic: A Pilot Feasibility Study

Borno

Zhang

et al. 2022

JCO Clinical Cancer Informatics

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PURPOSE The internet is a common source of health information for patients and can be leveraged to provide patient-facing clinical trial information. This pilot study integrated an online prostate cancer clinical trial matching technology, called Trial Library (TL), in an academic medical oncology clinic from February 2019 to April 2021. PATIENTS AND METHODS This is a single-arm interventional pilot study among patients with a known prostate cancer diagnosis. Participants were given access to TL before seeing a provider. The primary and secondary study end points were the overall satisfaction with TL and the proportion of participant-initiated clinical trial discussion with providers after exposure to TL, respectively. The null hypothesis or true satisfaction rate (acceptability) was tested against a one-sided alternative and was rejected if 29 or more satisfactions were observed. RESULTS Among 272 patients approached, 66 provided informed consent to participate in the study. The mean age was 70.8 years (standard deviation = 7.9). The majority of participants were White (82%) and had metastases present at the time of enrollment (65%). The baseline clinical trial discussion rate ascertained via electronic medical record review was 28%. After accessing TL, a significantly larger proportion of participants (48.5%) discussed clinical trials during the clinic visit ( P = .007), half of which were patient-initiated. The majority of participants indicated that TL increased their interest in clinical trials (68.2%); however, satisfaction/extreme satisfaction with the technology was 38%. CONCLUSION Access to TL resulted in a significant increase in patient-initiated discussions regarding clinical trials and an increase in interest in clinical trial participation although these data do not address if this resulted in increased accrual to clinical trials. The satisfaction rate did not meet the target to reject the null hypothesis, suggesting the need for iterative design of patient-facing health information.

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“…En este sentido, Basch, Brown, et al (2018) destacan que la probabilidad de un interés comercial en los vídeos sobre blanqueamiento de piel cuya fuente es un medio digital fue 17 veces mayor a la de los vídeos procedentes de usuarios 'anónimos'. Similarmente, en la investigación para examinar YouTube como fuente de información respecto a ensayos clínicos sobre cáncer de próstata, realizada por Borno et al (2020), se halló un sesgo publicitario en el 10% de los vídeos analizados.…”

Section: Discussionunclassified

“…),Borno et al (2020) y Tripathi et al (2020 también incluyen este instrumento en su diseño metodológico.…”

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Información sobre la salud: una revisión de la literatura existente sobre YouTube como fuente de información sanitaria

Betancourt

Campillo

Mieres

2021

RCyS

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El objeto de esta investigación es evaluar la literatura académica existente sobre el uso de YouTube como fuente de información médica. Para ello, se ha realizado una revisión de la literatura disponible en la base de datos PubMed. Se seleccionaron los artículos publicados entre enero de 2017 y abril de 2020, cuyas técnicas de investigación incluyesen análisis de contenido y revisiones de vídeos de acceso abierto colgados en YouTube. Resultados: el 40% de los artículos revisados tienen como objeto de estudio la información sobre una enfermedad o afección; la mediana de vídeos analizados por artículo es de 94; los criterios de puntuación más empleados son DISCERN (n=16), seguido de JAMA y de escalas GQS; la mayor parte recoge análisis de variables descriptivas intrínsecas a cualquier vídeo de YouTube, complementadas con indicadores propios para determinar su popularidad; en la revisión predominan los contenidos calificados como poco fiables y de baja calidad, particularmente aquellos subidos por canales no especializados. Esta revisión concluye que es necesario mejorar los contenidos médicos y sanitarios en YouTube, especialmente en los que respecta a la calidad, fiabilidad y utilidad de los vídeos, así como la presencia de fuentes profesionales e instituciones médicas en la plataforma.

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Racial disparities and online health information: YouTube and prostate cancer clinical trials

Cited by 13 publications

References 5 publications

Representation in Online Prostate Cancer Content Lacks Racial and Ethnic Diversity: Implications for Black and Latinx Men

Representation in Online Prostate Cancer Content Lacks Racial and Ethnic Diversity: Implications for Black and Latinx Men

Mobile Clinical Trial Matching Technology in Medical Oncology Clinic: A Pilot Feasibility Study

Información sobre la salud: una revisión de la literatura existente sobre YouTube como fuente de información sanitaria

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