Racial and ethnic differences in hospice enrollment among children with cancer

Thienprayoon, Rachel; Lee, Simon J. Craddock; Léonard, David; Winick, Naomi J.

doi:10.1002/pbc.24590

Cited by 47 publications

(84 citation statements)

References 17 publications

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“…79,80 By contrast, findings from a third centre suggested that race or ethnicity was associated with hospice enrolment after adjustment for payer status, diagnosis, and religion. 81 In no study was race or ethnicity associated with the death of a patient while receiving hospice care; a significant proportion of parents withdrew their child from hospice before his or her death, regardless of racial or ethnic background. 82 Nevertheless, the location of death might be associated with racial differences.…”

Section: Current Era Of Ppc Oncology Research (2010 To Present)mentioning

confidence: 99%

Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions

Rosenberg

Wolfe

2017

The Lancet Child & Adolescent Health

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Paediatric palliative care (PPC) endeavours to alleviate the suffering and improve the quality of life of children with serious illnesses and their families. In the past two decades since WHO defined PPC and called for its inclusion in paediatric oncology care, rigorous investigation has provided important insights. For example, the first decade of research focused on end-of-life experiences of the child and the family, underscoring the high prevalence of symptom burden, the barriers to parent–provider concordance with regards to prognosis, as well as the need for bereavement supports. The second decade expanded PPC oncology investigation to include the entire cancer continuum and the voices of patients. Other studies identified the need for support of parents, siblings, and racial and ethnic minority groups. Promising interventions designed to improve outcomes were tested in randomised clinical trials. Future research will build on these findings and pose novel questions about how to continue to reduce the burdens of paediatric cancer.

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Section: Current Era Of Ppc Oncology Research (2010 To Present)mentioning

confidence: 99%

Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions

Rosenberg

Wolfe

2017

The Lancet Child & Adolescent Health

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“…This need for health care services may be based on professional judgment about the infant’s current or deteriorating health status. The clinically evaluated need for hospice care is often driven by the infant’s health condition, so diagnoses were included in the model (Knapp et al, 2009; Mack et al, 2013; Thienprayoon, Lee, Leonard, & Winick, 2013). Families report that when physicians provide information regarding infant health and prognosis with supportive advice, they are able to make decisions about their infant’s health care at end of life (Sullivan, Monagle, & Gillam, 2014).…”

Section: Background and Significancementioning

confidence: 99%

Hospice Use for Infants With Life-Threatening Health Conditions, 2007 to 2010

Lindley¹,

Newnam²

2017

Journal of Pediatric Health Care

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Background Infant deaths account for a majority of all pediatric deaths. However, little is known about the factors that influence parents to use hospice care for their infant with a life- threatening health condition. Methods Data were used from the 2007 to 2010 California Medicaid claims files (n=207). Analyses included logistic and negative binomial multivariate regression models. Results Over 15% of infants enrolled in hospice care for an average of 5 days. Infant girls and infants with congenital anomalies were more likely to enroll in hospice care with longer stays. However, cardiovascular and respiratory conditions were negatively related to hospice enrollment and hospice length of stay. Conclusions The study provides insights for nurses and other clinicians caring for infants and their families at end of life and suggests nurses can assist families in identifying infant hospice providers that may help families understand their options for end-of-life care.

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“…23,27,33 As an example, African American families continue to have low hospice utilization, which is often attributed to their racialized experience with the healthcare system. 34-39 On the other hand, Hispanic families have been shown recently to be using the social structures such as strong kinship networks within Hispanic communities to navigate the healthcare system, resulting in increased healthcare utilization, including pediatric hospice care.…”

Section: Model Developmentmentioning

confidence: 99%

“…34-39 On the other hand, Hispanic families have been shown recently to be using the social structures such as strong kinship networks within Hispanic communities to navigate the healthcare system, resulting in increased healthcare utilization, including pediatric hospice care. 33,40 As a result, social structures may be a determinant of parental decision making to access pediatric hospice care.…”

Section: Model Developmentmentioning

confidence: 99%

“…17,18 Health insurance is a mechanism by which some families are able to afford hospice care, whether it be private insurance or public insurance (e.g., Medicaid, Medicare, CHIP). 33, 46-50 Insurance may mitigate the financial burden these families encounter by covering medical services, medical transportation, and equipment and supplies. Under most insurance plans, hospices cover these costs at no additional out-of-pocket expense to the family.…”

Section: Model Developmentmentioning

confidence: 99%

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Determinants of Access to Pediatric Hospice Care

Lindley

2015

Journal of Hospice & Palliative Nursing

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One of the many difficult moments for families of children with life-limiting illnesses is to make the decision to access pediatric hospice care. Although determinants that influence families’ decisions to access pediatric hospice care have been recently identified, the relationship between these determinants and access to pediatric hospice care have not been explicated or grounded in accepted healthcare theories or models. Using the Andersen Behavioral Healthcare Utilization Model, this article presents a conceptual model describing the determinants of hospice access. Predisposing (demographic; social support; and knowledge, beliefs, and values), enabling (family and community resources) and need (perceived and evaluated needs) factors were identified through the use of hospice literature. The relationships among these factors are described and implications of the model for future study and practice are discussed.

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Racial and ethnic differences in hospice enrollment among children with cancer

Cited by 47 publications

References 17 publications

Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions

Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions

Hospice Use for Infants With Life-Threatening Health Conditions, 2007 to 2010

Determinants of Access to Pediatric Hospice Care

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