Question prompt list responds to information needs of myelodysplastic syndromes patients and caregivers

Awareness of acute myeloid leukaemia risk induced by diagnosis of a myelodysplastic syndrome

“…One way to tailor information to patients' wishes and to help people controlling the flow of information is the use of a question prompt list. In a previous analysis, patients surveyed here welcomed our proposal of intervention through such a tool, that could address specific patient needs regarding prognosis information [13]. This kind of intervention might also help to better inform low literate patients by selecting only the more important information from their point of view and by providing this information orally with opportunity to check their understanding.…”

“…A cross-sectional survey was conducted with a broader objective of developing a question prompt list for MDS patients and family caregivers [13]. A self-administered questionnaire was mailed to all members of the Leukaemia Foundation of Australia patients' association and of the French CCM (Connaître et Combattre les Myélodysplasies) patients' association.…”

“…The specific information needs of patients were assessed by asking patients to rate (on a scale of 0-4) the usefulness of each of 53 questions in the question prompt list [13]. Ten dimensions emerged from factorial analysis: tests, prognosis, life expectancy, initial treatment, specific treatments, complementary treatments, side-effects, practical aspects and social issues.…”

“…We recently conducted a survey [13] to evaluate MDS patients' information needs and their interest in a question prompt list, a simple tool listing questions they may wish to ask their doctor, which could help them to gain greater control over the flow of information. MDS patients were also particularly interested in knowing more about their prognosis.…”

Beyond Oncology: Question Prompt Lists in Healthcare—A Scoping Review Protocol

“…Research has shown that their use is associated with more question asking by patients, higher levels of information satisfaction, and a reduction of unmet information needs [14,[29][30][31][32][33]. Patients rate QPL as helpful [30,[34][35][36][37][38] and are more satisfied with consultations in which QPL were used [39].…”