Quelle théorie de la justice pour l’épigénétique?

Lafaye, Caroline Guibet

doi:10.1017/s0012217315000657

Cited by 6 publications

(2 citation statements)

References 61 publications

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“…Instead of focusing, then, on the potential evaluation of epigenetics from the standpoints of distinct theories of justice in healthcare (cf. 39,40 ), here I will focus on whether epigenetics substantively reconfigures the moral exercises required by these approaches to justice in health.…”

Section: Political Normativitymentioning

confidence: 99%

“…In fact, understanding epigenome-based health disadvantages as one or the other has also an impact over their evaluation as unjust social inequalities. As shown by different authors 39,40,44 , the categories pertinent to distinct theories of justice may provide a limited framework from which to construct an evaluation of the complexity of epigenetic processes in terms of health equity. To illustrate this point, let us refer to one example of this difficulty highlighted by Loi and colleagues 40 in relation to Rawlsian egalitarianism.…”

Section: Political Normativitymentioning

confidence: 99%

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Epigenetics: ethics, politics, biosociality

Chiapperino

2018

British Medical Bulletin

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BackgroundEpigenetics is a burgeoning field of contemporary biosciences, which has attracted a lot of interest both in biomedical and in social sciences Sources of dataUnsystematic literature analysis and retrospective mapping of highly cited work (source: Web of Science core collection) in the social sciences and humanities engaging with epigenetics Areas of agreementEpigenetics poses no new ethical issue over and above those discussed in relation to genetics Areas of controversyHowever, it encourages a different framing and reflexivity on some of the commonly held categories in the moral uptake of scientific discoveries. Growing pointsEpigenetics presents us with normative questions that touch upon privacy, responsibility for individual health and for the wellbeing of future generations, as well as matters of health justice and equality of opportunities. Areas timely for developing researchEpigenetic thinking could help us adjust and refine the problem-frames and categories that inform our ethical and political questions with a complex biosocial description of situations, of persons or actions

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Section: Political Normativitymentioning

confidence: 99%

Section: Political Normativitymentioning

confidence: 99%

Epigenetics: ethics, politics, biosociality

Chiapperino

2018

British Medical Bulletin

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Épigénétique : les écueils d’une transposition du biologique au social

Pelletier

2019

Dialogue

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Nous effectuons dans cet article un survol des dangers liés à certaines représentations des phénomènes épigénétiques lors de la formulation de recommandations sociales et médicales. Après avoir exploré les représentations de l’épigénétique dans différents ouvrages de vulgarisation et discours médiatiques, nous critiquons certaines des conclusions susceptibles d’émerger de tels discours qui peuvent paraître prématurées. Nous insistons en particulier sur les enjeux relevant de la responsabilité parentale —notamment celle des femmes — quant à la transmission de marqueurs épigénétiques. Enfin, nous proposons quelques considérations épistémologiques concernant la biologie du développement qui viennent nuancer la portée des discours concernant une éventuelle responsabilité épigénétique. Une telle clarification est susceptible, selon nous, de lever plusieurs difficultés relatives à la compréhension des recherches en épigénétique ainsi qu’à leur application éventuelle hors du champ scientifique.

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Human rights in the postgenomic era: Challenges and opportunities arising with epigenetics

Dupras

Joly

Rial‐Sebbag

2020

Social Science Information

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Over the past twenty-five years, international organizations have adopted human rights declarations in an attempt to address emerging ethical, legal and social concerns associated with genetic research and technologies. While these declarations point to important challenges and potential issues in genetics, the focus on genetics has been criticized for promoting the idea that there is something unique about our genes, and that therefore, they deserve special protections in our laws. It is also argued that this ‘genetic exceptionalism’ perspective has contributed to a reinvigoration of genetic essentialism and determinism. In this article, we add to this criticism by pointing out gaps and flaws in current gene-focused human rights declarations in light of recent developments in the field of epigenetics. First, we show that these documents do not provide guidance for a responsible governance of epigenetic data (e.g., privacy protection) and an ethical use of individual epigenetic information (e.g., nondiscrimination). This is particularly concerning given the interest recently demonstrated by insurance companies, forensic scientists and immigration agencies in using epigenetic clock technologies. Second, we argue that findings in epigenetics could contribute to the promotion of second- and third- generation human rights, i.e., respectively, economic, social and cultural rights, and solidarity rights. We conclude by calling for international bioethics and human rights organizations to pay greater attention to epigenetics and other postgenomic sciences in the coming years.

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Quelle théorie de la justice pour l’épigénétique?

Cited by 6 publications

References 61 publications

Epigenetics: ethics, politics, biosociality

Epigenetics: ethics, politics, biosociality

Épigénétique : les écueils d’une transposition du biologique au social

Human rights in the postgenomic era: Challenges and opportunities arising with epigenetics

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