Quality, Readability, and Understandability of German Booklets Addressing Melanoma Patients

Brütting, Julia; Reinhardt, Lydia; Bergmann, Max; Schadendorf, Dirk; Weber, Christiane; Tilgen, Wolfgang; Berking, Carola; Meier, Friedegund

doi:10.1007/s13187-018-1369-x

Cited by 14 publications

(13 citation statements)

References 20 publications

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“…Our results complement the currently available evidence on informational material available for other types of skin cancer, such as videos, brochures, or websites [ 14 , 27 , 28 ]. Our evaluation shows that currently available BCC videos were, overall, of medium to good quality and understandability but had low actionability and poor reliability.…”

Section: Discussionsupporting

confidence: 80%

Assessment of the Quality, Understandability, and Reliability of YouTube Videos as a Source of Information on Basal Cell Carcinoma: Web-Based Analysis

Steeb¹,

Reinhardt²,

Harlaß³

et al. 2022

JMIR Cancer

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Background Patients with skin cancer increasingly watch online videos to acquire disease-related information. Until now, no scientific evaluation of the quality of videos available for German-speaking patients with basal cell carcinoma (BCC) has been performed. Objective In this study, we aimed to identify and evaluate videos about BCC provided on YouTube. Methods A video search on YouTube was conducted in July 2020, using German BCC-related keywords (eg, “Basalzellkarzinom,” “Basaliom,” “weißer hautkrebs,” and “heller hautkrebs”). The first three pages (ie, 60 videos) were searched by two independent researchers for each keyword. Two authors evaluated videos that met the predefined eligibility criteria. The quality of the information of the videos was evaluated using the DISCERN tool and the Global Quality Scale (GQS). The understandability and actionability were assessed with the Patient Education Materials Assessment Tool for Audiovisual Materials (PEMAT-A/V). The reliability was assessed with the JAMA (Journal of the American Medical Association) criteria score. Subgroup differences were identified using the Kruskal-Wallis test. Results A total of 41 videos were included in the evaluation. The mean assessment scores were as follows: DISCERN, 3.3 (SD 0.80); GQS, 3.8 (SD 1.1); JAMA, 27.74% (SD 22.1%); understandability, 70.8% (SD 13.3%); and actionability, 45.9% (SD 43.7%). These values indicated that the videos were of medium to good quality and had good understandability, low actionability, and poor reliability. The quality of videos provided by health professionals was significantly higher than that of videos provided by laypersons. Conclusions Optimization of health-related videos about BCC is desirable. In particular, adaptation to reliability criteria is necessary to support patient education and increase transparency.

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Section: Discussionsupporting

confidence: 80%

Assessment of the Quality, Understandability, and Reliability of YouTube Videos as a Source of Information on Basal Cell Carcinoma: Web-Based Analysis

Steeb¹,

Reinhardt²,

Harlaß³

et al. 2022

JMIR Cancer

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“…The probability of rating the internet as an important information source was 2.2 times higher in melanoma patients aged ≤55 years [30]. However, an evaluation of German booklets has shown that most of them are of medium quality and difficult to read owing to incomplete reporting and insufficient meta-information [32].…”

Section: Discussionmentioning

confidence: 99%

Patient Attitudes and Their Awareness Towards Skin Cancer–Related Apps: Cross-Sectional Survey

Steeb¹,

Wessely²,

Mastnik³

et al. 2019

JMIR Mhealth Uhealth

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Background In the emerging era of digitalization and electronic health, skin cancer–related apps represent useful tools to support dermatologic consultation and examination. Yet, little is known about how patients perceive the value of such apps. Objective The aim of this study was to investigate patient attitudes and their awareness toward skin cancer–related apps. Methods A cross-sectional study including 200 patients from the oncological outpatient unit was conducted at the University Hospital (LMU Munich, Germany) between September and December 2018. Patients were asked to complete a self-administered questionnaire on the popularity and usefulness of health-related and skin cancer–related apps. A descriptive analysis was performed with the expression of categorical variables as frequencies and percentages. For continuous variables, the median and range were indicated. Contingency tables and chi-square tests were performed to investigate associations between sociodemographic data and selected items of the questionnaire. Results A total of 98.9% (195/197) of patients had never used skin cancer–related apps or could not remember. In 49.7% (93/187) of cases, patients were unsure about the usefulness of skin cancer apps, whereas 42.6% (78/183) thought that skin cancer apps could supplement or support the professional skin examination performed by a physician. However, 47.9% (90/188) were interested in acquiring more information by their dermatologists about skin cancer apps. Young age ( P =.002), male gender ( P =.02), a previous history of melanoma ( P =.004), and higher educational level ( P =.002) were significantly associated with a positive attitude. Nevertheless, 55.9% (105/188) preferred a printed patient brochure on skin cancer to downloading and using an app. Conclusions The experience and knowledge of skin cancer–related apps was surprisingly low in this population, although there was a high general interest in more information about such apps. Printed patient brochures were the preferred information source.

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“…In German-speaking countries, DISCERN [11] and the Patient Education Materials Assessment Tool (PEMAT) [13] have been used to assess cancer-related PIM [21,22].…”

Section: Pim Assessment Instrumentsmentioning

confidence: 99%

Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (UPIM-Check)

Salm

Mollenhauer

Hornbach

et al. 2021

IJERPH

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The aims of this study were (1) to design a user-friendly instrument to assess and optimize patient information material (PIM), (2) to develop an English version, and (3) to test its psychometric properties. The instrument was needed to optimize the top-down developed PIM of the psycho-oncological care programme isPO. First, a literature-based PIM checklist was developed by a team of patient representatives, cancer care experts and professional researchers. Next, the checklist’s reliability and validity were analysed by having cancer survivors assess the initial and optimized version of the isPO-leaflet. The User-friendly Patient Information Material Checklist (UPIM-Check), developed participatorily, was found to be effective for evaluating PIM. It uses a traffic light scale, and suggestions for improvement can be given for each criterion. Its reliability appeared to be excellent (α = 0.927). The optimized leaflet was rated significantly better than the initial one. The UPIM-Check is a reliable and valid instrument, which enables end-users (e.g., patients) to assess and optimize the quality of PIM according to scientific criteria and the needs of end-users. A bottom-up approach was essential for developing and validating the UPIM-Check. End-users constantly contributed with their specific knowledge. Thus, their position as co-researchers was significantly strengthened.

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Quality, Readability, and Understandability of German Booklets Addressing Melanoma Patients

Cited by 14 publications

References 20 publications

Assessment of the Quality, Understandability, and Reliability of YouTube Videos as a Source of Information on Basal Cell Carcinoma: Web-Based Analysis

Assessment of the Quality, Understandability, and Reliability of YouTube Videos as a Source of Information on Basal Cell Carcinoma: Web-Based Analysis

Patient Attitudes and Their Awareness Towards Skin Cancer–Related Apps: Cross-Sectional Survey

Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (UPIM-Check)

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