Quality of transitional care of children with chronic diseases: a cross-sectional study

Abstract

Objective: To analyze which factors may be associated with the quality-of-care transition of children with chronic diseases from the hospital to their home. Method: A cross-sectional, quantitative study, carried out in two hospitals in Southern Brazil, from February to September 2019. Participants included 167 family members of children with chronic disease. Data collection took place through a demographic questionnaire, and the use of the Brazilian version of the Care Transitions Measure (CTM-15). Results: The average score for the quality of care transition was 90.1 (sd = 19.5) (0–100). Factor 1, “Health management preparation”, was the one with the highest self-perceived average, 92.3 (sd = 11.6), while Factor 4, “Care plan”, had the lowest average, 86.3 (sd = 21.3). The quality of care transition was higher for patients living in municipalities belonging to health regions other than the hospital’s. Conclusion: The quality of care transition for children with chronic diseases, perceived by the children’s family members, in the discharge process from the hospital to home, was considered high. Living in a health region other than the hospital’s region was associated with better perception of the quality of care transition.

Development of a measurement instrument to assess patient safe transition at hospital discharge

“…The instrument available in the Brazilian literature to assess transitional care quality portray the patients' and caregivers' experience (13) . However, a number of authors who used this instrument report the influence of the patients' feelings of gratitude for the care received in the research results as a limitation, with a tendency to produce more auspicious data than reality (23)(24) . Therefore, an assessment from the health providers' perspective contributes to the construction of knowledge about the theme.…”

Construção de instrumento de avaliação da transição segura do paciente na alta hospitalar

“…Os instrumentos disponíveis na literatura para avaliar a qualidade da transição do cuidado retratam a experiência dos pacientes e cuidadores (13) . Entretanto, autores que utilizaram esses instrumentos relatam como limitação a influência do sentimento de gratidão dos pacientes pelo cuidado recebido nos resultados das pesquisas, com uma tendência em produzir dados mais auspiciosos do que a realidade (23)(24) .…”