Quality of life, self-care knowledge access, and self-care needs in patients with colon stomas one month post-surgery in a Chinese Tumor Hospital

A systematic review of the supportive care needs of people living with and beyond cancer of the colon and/or rectum

“…Of these, 98 were excluded due to various reasons (Figure 1). Fifty-four studies (Anderson et 139 al., 2013;Andersson et al, 2010;Bain and Campbell, 2000;Bain et al, 2002;Baravelli et al, 2009;Beaver et al, 140 2010Beaver et al, 140 , 1999Beckjord et al, 2008;Boudioni et al, 2001;Browne et al, 2011;Carlsson et al, 2010;Cha et al, 141 2012;Di Fabio et al, 2008;Dunn et al, 2006;Galloway and Graydon, 1996;Hansen et al, 2013;Harrison et al, 142 2011;Ho et al, 2016;Holm et al, 2012;Husson, 2013;Jefford et al, 2011;Jorgensen et al, 2012;Kidd, 2014;143 Klemm et al, 2000;Knowles et al, 1999;Lam et al, 2016;Landers et al, 2014;Li et al, 2012;Lithner et al, 144 2015Lithner et al, 144 , 2012Macvean et al, 2007;McCaughan et al, 2012;Morrison et al, 2012;Nikoletti et al, 2008;Northouse 145 et al, 1999;Papagrigoriadis and Heyman, 2003;Pullar et al, 2012;Ran et al, 2016;Rozmovits et al, 2004;146 Russell et al, 2015;Sahay and Gray, 2000;…”

“…Where reported, 30% (518/1747) had a stoma. Seventeen studies focused on the post-treatment period only (Anderson et al, 2013;Baravelli et al, 2009;Beaver et al, 2010;Beckjord et al, 2008;Di Fabio et al, 2008;Ho et al, 2016;Holm et al, 2012;Husson, 2013;Jefford et al, 2011;Klemm et al, 2000;McCaughan et al, 2012;Morrison et al, 2012;Russell et al, 2015;Salkeld et al, 2004;Salz et al, 2014;Santin et al, 2015;Taylor et al, 2012), 13 studies focused on the post-operative period only (Andersson et al, 2010;Browne et al, 2011;Cha et al, 2012;Galloway and Graydon, 1996;Harrison et al, 2011;Jorgensen et al, 2012;Lithner et al, 2015Lithner et al, , 2012Nikoletti et al, 2008;Northouse et al, 1999;Ran et al, 2016;Salamonsen et al, 2016;Sanoff et al, 2010), 2 studies examined the transition from the pre-operative to the post-operative period (Carlsson et al, 2010;Worster and Holmes, 2008), whilst 2 studies specifically explored 193 needs during curative (Kidd, 2014) and during palliative treatment (Sjövall et al, 2011). The remaining 19 studies 194 relied on mixed samples of patients, who were at different treatment phases.…”

“…Support with establishing dietary changes/timing of meals (especially to avoid gas from the stoma or having to change the stoma bag) (Andersson et al, 2010;Beaver et al, 2010;Nikoletti et al, 2008) 80%; 80%-80% 6. Support with performing wound/stoma care (81%) (Northouse et al, 1999;Ran et al, 2016) 60%; 50%-70% 7. Help in maintaining a normal daily life (Harrison et al, 2011;Sjövall et al, 2011) 74%; 73%-75%…”

A literature review about self‐care on ostomy patients and their caregivers

“…17 Therefore, self-care promotion represents a relevant issue in chronic illness care for both research and clinical practice. 13,25 Retrieved studies showed through secondary analysis that good levels of self-care are positively correlated to general health status and quality of life and negatively correlated to pain, disability and costs; showed statistically significant correlations between self-care levels and health outcomes. First, the development of chronic illnesses self-care theories is strongly required in to explain the meaning of self-care and to guide self-care promotion programs in clinical practice.…”

“…17 and plays a vital role on rehabilitation following ostomy creation. 13,25 Retrieved studies showed through secondary analysis that good levels of self-care are positively correlated to general health status and quality of life and negatively correlated to pain, disability and costs; showed statistically significant correlations between self-care levels and health outcomes. 17…”