Quality of life of the family of children with asthma is not related to asthma severity

Abstract

The quality of life for the family is an important outcome of childhood asthma. The aim of the study was to describe the quality of life in Eastern European families who have a child with asthma. The Pediatric Quality of Life Inventory Family Impact Module was completed by the parents of 527 children with asthma. The median overall score was 75.0 (Interquartile range 63.9; 87.5). The following factors were independently associated with lower quality of life: waking with asthma symptoms ≥one night a week (odds ratio 7 2.53 [1.34; 4.75]), regular use of symptoms reliever medication (2.47 [1.57; 3.87]), female gender (1.97 [1.27; 3.05]), additional difficulties such as anxiety and financial 9 hardship (3.81 [2.45; 5.93]). Lower socioeconomic status of the family and exposure to 10 moulds at home also doubled the odds for lower quality of life. Asthma severity and 11 control were associated with quality of life in univariate, but not multivariate analysis. Conclusion: Multiple factors, several of which are not related to asthma, contribute to the family burden of having a child with asthma. Clinicians should be mindful of the impact of asthma on the child and the family, and consider exploring factors not directly related to childhood asthma.

Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt

“…The total PedsQL™ FIM and parental HRQoL of caregivers of children with CKD was lower in our population compared with other studies of caregivers of children with other chronic diseases (asthma [ 26 ], osteogenesis imperfecta [ 27 ], sickle cell disease [ 8 ], asthma and heart diseases [ 3 ], chronic gastrointestinal disorders [ 2 ], chronic pain [ 7 ], nephrotic syndrome [ 28 ], disabilities [ 29 ], and different chronic conditions [ 15 ]).…”

Health-related quality of life assessment using EQ-5D-Y questionnaire in a group of Egyptian asthmatic children

“…Asthma control is probably the most valuable determinant of HRQoL whatever the level of disease severity is. [32][33][34] Nevertheless, a proportion of our asthmatic children (13%) reported no problems in all the 5 dimensions. This was previously reported by Bergfors et al who used the PAQLQ in addition to the EQ-5D-Y and found that 50% of their asthma children had a health profile of 11111 denoting no problem.…”

Effect of parental depression on asthmatic children’s problem behavior and academic performance: using actor and partner interdependence model of parental variables

“…Depression is a negative emotion with mutual transfer phenomenon, and the transfer phenomenon of depression can be strong and rapid in relationships in which daily stress is experienced in the same space where parents raise children [19]. In particular, because parents of asthmatic children have greater psychological burden of performing many roles as parents since they continuously experience the disease process and growth of children at the same time [4], the transfer phenomenon of parental depression is strong and fast and ultimately becomes the cause of marital conflict and negatively influences the growth and development process, resulting in problem behavior and affecting academic performance of children. Since this study found that maternal depression has a direct influence on children's internalizing and externalizing problem behavior, the effect of maternal depression on children appears to be greater than that of paternal depression.…”

“…The health issues of children with asthma is emerging to be a social problem because in many cases it is a disease that requires repetitive and long-term treatment, and the financial burden of parents raising children with asthma is relatively greater than parents raising normal children [3]. Furthermore, parents of asthmatic children have the greater psychological burden of performing many roles since they experience the disease process and growth of their children at the same time [4].…”