Quality of life of Nepali patients with ear disease before and after corrective surgery

Maile, Edward; Tharu, Puran; Blanchford, Hannah; Edmiston, Rachel; Youngs, Robin

doi:10.1111/tmi.12516

Cited by 18 publications

(24 citation statements)

References 23 publications

(29 reference statements)

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“…Nepal has a very high prevalence of ear disease, with 16.6% and 7.4% of the total population having hearing impairment and eardrum pathology, respectively . The majority of the affected Nepalese population have not sought medical advice for these problems, yet treatment in this population, including surgical intervention for CSOM, has been shown to significantly improve quality of life …”

Section: Introductionmentioning

confidence: 99%

“…6 The majority of the affected Nepalese population have not sought medical advice for these problems, 7 yet treatment in this population, including surgical intervention for CSOM, has been shown to significantly improve quality of life. 8 In this context, mass or selective screening for otological disease may be worthwhile. In Nepal, this has already been trialled through the use of "ear camps" where doctors or other trained healthcare personnel set up a temporary otology service in rural areas and invite the local community to attend for evaluation and treatment.…”

Section: Introductionmentioning

confidence: 99%

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A cross‐sectional evaluation of the validity of a smartphone otoscopy device in screening for ear disease in Nepal

Mandavia

Lapa

Smith³

et al. 2017

Clinical Otolaryngology

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Objectives Hearing loss is a neglected international health problem. The greatest burden of ear disease is in low‐income countries where there is also a lack of resources. In this context, screening for otological disease may be worthwhile. Cupris© has developed an otoscopy device that offers the possibility of low‐cost mass screening in remote communities. We evaluated the validity of this device in diagnosing ear disease and in determining whether referral to an ENT centre is warranted. Design Cross‐sectional study. Setting Outpatient clinic, Nepal. Participants All adults and children were invited to take part over a 2‐day period. The Cupris© device was used to record participants otological history and examination. Stored history and images were assessed in the United Kingdom by a Consultant‐grade ENT Surgeon, who provided a diagnosis and decided whether referral to an ENT centre was warranted. After screening with the Cupris© device, participants were immediately assessed by a UK trained ENT Consultant Surgeon using a standard otoscope (“standard assessment”). A diagnosis was recorded for each participant and a decision was made as to whether referral to an ENT centre was warranted. Outcomes Concordance in primary diagnosis (analysed per ear) and concordance in the decision to refer (analysed per patient). Cohen's kappa coefficient for inter‐rater agreement in diagnosis. Results Fifty‐six patients agreed to participate. In four patients, the quality of video recorded precluded a diagnosis or management plan. These patients were excluded from subsequent analysis, leaving 52 patients for analysis. The same diagnosis was reached for 99 of 104 ears when comparing the Cupris© device to standard assessment (95% concordance), with Cohen's kappa coefficient of 0.89. The decision as to whether a patient should be referred to an ENT centre for further assessment was the same for all 52 participants when comparing the Cupris© device to standard assessment. Conclusions When compared to standard assessment, the Cupris© device is a valid tool for the diagnosis of ear disease and decision for onward referral. It shows considerable promise for use by trained non‐medical workers, as a low‐cost and portable tool to screen for ear disease in remote settings, particularly in low‐ and middle‐income countries.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A cross‐sectional evaluation of the validity of a smartphone otoscopy device in screening for ear disease in Nepal

Mandavia

Lapa

Smith³

et al. 2017

Clinical Otolaryngology

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“…Besides Robinson et al [13], according to our knowledge, there is only one previous study reporting cholesteatoma surgical outcomes by means of the GBI [14]. By using the GBI, Maile et al [14] showed improved HRQoL among 31 Nepali patients after middle ear and/or mastoid surgery to eradicate cholesteatoma. The surgical method used or surgical outcome in terms of healing and hearing results was not reported [14].…”

Section: Introductionmentioning

confidence: 98%

“…A systematic review of the literature was conducted on the reported use of the GBI, with available data for tonsillectomy, cochlear and middle ear implantation in patients with vestibular schwannoma, and stapes surgery [12]. Besides Robinson et al [13], according to our knowledge, there is only one previous study reporting cholesteatoma surgical outcomes by means of the GBI [14]. By using the GBI, Maile et al [14] showed improved HRQoL among 31 Nepali patients after middle ear and/or mastoid surgery to eradicate cholesteatoma.…”

Section: Introductionmentioning

confidence: 99%

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The evaluation of canal wall up cholesteatoma surgery with the Glasgow Benefit Inventory

Westerberg

Mäki‐Torkko

Harder

2019

Eur Arch Otorhinolaryngol

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The aim of the study was to investigate the change in health-related quality of life (HRQoL) after canal wall up cholesteatoma surgery, using the Glasgow Benefit Inventory (GBI). Methods Data from a consecutive group of 47 adults scheduled for primary cholesteatoma surgery using canal wall up (CWU) with obliteration, from January 2005 to December 2009, were analysed. Information was extracted from a medical database, and complementary data from patient files and audiograms were collected and recorded retrospectively. The GBI questionnaire was used for the assessment of HRQoL after surgery. Results There was no finding of residual or recurrent cholesteatomas in the study group. Hearing was improved at 1 and 3 years postoperatively. No patient suffered a total hearing loss. The overall GBI scores showed an improved HRQoL after surgery. Twenty-nine (85%) patients benefitted from surgery, 1 (3%) had no change, and 4 (12%) expressed deterioration. Conclusions Cholesteatoma surgery using CWU with obliteration gives an improved HRQoL for the majority of patients. The GBI questionnaire provides complementary information to hearing and healing results after cholesteatoma surgery. Keywords Cholesteatoma • Health-related quality of life • Glasgow benefit inventory

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Validation and cross‐cultural adaptation of the Arabic version of the Ear Outcome Survey‐16 (EOS‐16)

Azar,

Mohsen

2024

Laryngoscope Investig Oto

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BackgroundThe Ear Outcome Survey‐16 (EOS‐16) has been validated according to the health‐related quality of life (HRQol) survey guidelines. It has important compatible aspects in evaluating patients with chronic otitis media (COM) suitable for consultation. This study aimed to develop and standardize the Arabic version of the EOS‐16 to be used by clinicians in the Arab world while maintaining the conceptual equivalence.MethodsA prospective cross‐sectional study was conducted in Damascus between July 2023 and November 2023 to develop an Arabic version of the EOS‐16. The translation was produced according to the cross‐cultural adaptation guidelines. Both experts' and participants' opinions as regards face validity were obtained in this study. Internal consistency was evaluated by the Cronbach alpha coefficient. Test–retest reliability was assessed using the intraclass correlation coefficient (ICC) and Pearson correlation.ResultsA total of 81 patients enrolled in the study, with an average age of 34.75 years and a standard deviation of 11.84 years with a sex ratio of 0.62 for females. All had inactive mucosal COM (dry perforation). The overall score of the EOS‐16 survey was 31.72 with a standard deviation of 13.42 suggesting bothering and influencing symptoms in COM patient's daily life. Excellent internal consistency was noted (Cronbach α = .89). Robust correlation was found between test–retest overall scores (r = .90). Reallocation of the items of the EOS‐16 improved the internal consistency of the subdivisions in COM patients.ConclusionThe Arabic version of the EOS‐16 is a simple, clear, reliable, reproducible, and valid HRQoL survey. It is a useful and important instrument that helps physicians in making decisions regarding the patient's treatment and follow‐up.

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Quality of life of Nepali patients with ear disease before and after corrective surgery

Cited by 18 publications

References 23 publications

A cross‐sectional evaluation of the validity of a smartphone otoscopy device in screening for ear disease in Nepal

A cross‐sectional evaluation of the validity of a smartphone otoscopy device in screening for ear disease in Nepal

The evaluation of canal wall up cholesteatoma surgery with the Glasgow Benefit Inventory

Validation and cross‐cultural adaptation of the Arabic version of the Ear Outcome Survey‐16 (EOS‐16)

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