Quality of life of living kidney donors: the short-form 36-item health questionnaire survey

Isotani, Shuji; Fujisawa, Masato; Ichikawa, Yasuji; Ishimura, Takeshi; Matsumoto, Osamu; Hamami, Gaku; Arakawa, Soichi; Iijima, Kazumoto; Yoshikawa, Norishige; Nagano, S; Kamidono, Sadao

doi:10.1016/s0090-4295(02)01865-4

Cited by 88 publications

(70 citation statements)

References 11 publications

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“…Studies were from 19 countries; most were conducted in the United States (43% of studies) followed by Germany (10%), Canada (6%), India (4%), Sweden (4%), Australia (4%), the Netherlands (4%) and Switzerland (4%). During follow-up, 46 studies assessed the physical health of donors (29)(30)(31)(32)(33)(34)(35)(36)38,(40)(41)(42)(43)(44)(45)(46)(48)(49)(50)(51)(53)(54)(55)(56)(57)(58)(59)(60)(61)(63)(64)(65)(66)(67)(68)(69)(70)(71)(72)(73)(74)(75)(76)(77)(78)(79) and 26 reported that some donors had faced graft failure or recipient death (29,(31)(32)…”

Section: Description Of Studiesmentioning

confidence: 99%

“…The majority were married and employed at the time of follow-up. Twenty-three studies described the use of routine preoperative screening (30)(31)(32)34,40,45,46,(49)(50)(51)53,54,56,60,61,63,67,70,71,73,74,77,78) and 3 reported that some donors had a psychiatric history prior to donation (30,34,63).…”

Section: Description Of Donorsmentioning

confidence: 99%

“…Twenty-nine studies compared the psychosocial functioning of donors to nondonor controls from diverse sources, including the general population, medical outpatients, potential donors, healthy individuals, or family members of the recipient (32,36,(38)(39)(40)42,45,47,48,51,54,55,57,(59)(60)(61)(63)(64)(65)(66)(67)69,(71)(72)(73)(74)(75)78,79). Demographics or other relevant descriptors were provided for the control group in four studies (36,38,40,64).…”

Section: Description Of Controlsmentioning

confidence: 99%

“…Many used standardized instruments such as the Short-Form 36 health survey (45,48,51,54,55,57,59,60,(63)(64)(65)(66)68,69,75,(77)(78)(79) and the Beck Depression Inventory (39,64,72). Investigator-developed questionnaires were also used in a majority of studies (29)(30)(31)(32)(33)35,36,38,(40)(41)(42)(43)(44)(45)(46)(47)(48)(49)54,(56)(57)(58)60,64,67,(69)(70)(71)(72)(73)…”

Section: Description Of Questionnairesmentioning

confidence: 99%

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Psychosocial Health of Living Kidney Donors: A Systematic Review

Clemens

Thiessen‐Philbrook

Parikh

et al. 2006

American Journal of Transplantation

242

210

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Knowledge of the psychosocial benefits and harms faced by living kidney donors is necessary for informed consent and follow-up. We reviewed any English language study where psychosocial function was assessed using questionnaires in 10 or more donors after nephrectomy. We searched MEDLINE, EM-BASE, Web of Science, Psych INFO, Sociological Abstracts and CINAHL databases and reviewed reference lists from 1969 through July 2006. Independently, two reviewers abstracted data on study, donor and control group characteristics, psychosocial measurements and their outcomes. Fifty-one studies examined 5139 donors who were assessed an average of 4 years after nephrectomy. The majority experienced no depression (77-95%) or anxiety (86-94%), with questionnaire scores similar to controls. The majority reported no change or an improved relationship with their recipient (86-100%), spouse (82-98%), family members (83-100%) and nonrecipient children (95-100%). Some experienced an increase in self-esteem. A majority (83-93%) expressed no change in their attractiveness. Although many scored high on quality of life measures, some prospective studies described a decrease after donation. A small proportion of donors had adverse psychosocial outcomes. Most kidney donors experience no change or an improvement in their psychosocial health after donation. Harms may be minimized through careful selection and follow-up.

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Section: Description Of Studiesmentioning

confidence: 99%

Section: Description Of Donorsmentioning

confidence: 99%

Section: Description Of Controlsmentioning

confidence: 99%

Section: Description Of Questionnairesmentioning

confidence: 99%

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Psychosocial Health of Living Kidney Donors: A Systematic Review

Clemens

Thiessen‐Philbrook

Parikh

et al. 2006

American Journal of Transplantation

242

210

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“…There is pressure within the medical community to "fix" week at sometimes six hours each and is compounded by physical risks that include a higher incidence of heart attack, stroke and other vascular problems that may lead to premature death. Interestingly, there is an argument that though the living kidney donor will not physically benefit by donating a kidney, they may derive some 45 psychological benefit from this act (Spanos & Nolan, 1989;Isotani, et al, 2002 In many instances, the discussion of living organ donation amongst ethicists lends itself to three main areas of exploration. These include autonomy, coercion and informed consent.…”

Section: The Price Of the Gift -Gift Giving Exchange And Consequencementioning

confidence: 99%

The living donor study: the concepts and frames of living kidney donors

Cunningham¹,

Leach²,

Fawcett³

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This thesis explores the concepts and frames of living kidney donors through the use of recorded and transcribed conversations between living kidney donor patients and their transplant team. It offers insight into the expectations of living kidney donors as they prepare themselves to gift a kidney to someone they know.Living kidney donor frames are represented as particularly resilient and well-defined, shielding them from messages delivered by their transplant team. Those frames incorporate their acceptance as living kidney donors, the risk to themselves and their own personal definitions of autonomy and choice.With the intention of using phenomenological discourse analysis to examine the recorded and transcribed data, ten potential living kidney donors and their recipients were invited to take part in a PhD project entitled the Living Donor Study at the Princess Alexandra Hospital, in Queensland Australia. Transcriptions were analysed using line-by-line and axial coding and living donor transcripts were repeatedly compared with one another in order to reach an appropriate level of saturation and provide evidence of re-emerging concepts and frames.Data for the Living Donor Study were obtained during the living kidney donor's initial transplant assessment clinic visit. The purpose of this project was to examine prospective accounts of the living donation experience using conversations with their transplant team as opposed to using retrospective questionnaires and interviewing methods. By eliminating much of the subjectivity that is common in ex post facto interviews, I was able to identify many of the concepts that assist living kidney donors in framing their experience and how those frames impact upon their expectations of the transplant assessment clinic and their upcoming donation.

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Health-Related Quality of Life of Living Kidney Donors

Ku¹,

Kim²

2010

Handbook of Disease Burdens and Quality of Life Measures

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Quality of life of living kidney donors: the short-form 36-item health questionnaire survey

Cited by 88 publications

References 11 publications

Psychosocial Health of Living Kidney Donors: A Systematic Review

Psychosocial Health of Living Kidney Donors: A Systematic Review

The living donor study: the concepts and frames of living kidney donors

Health-Related Quality of Life of Living Kidney Donors

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