Quality of Life of Families with Children with Intellectual Disabilities in Slovenia

Schmidt, Majda; Kober, Ralph

doi:10.1007/978-90-481-9650-0_19

Cited by 7 publications

(6 citation statements)

References 9 publications

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“…The results reported here for this study further the results reported in Schmidt & Kober (2010). In addition, the overall trends from our study were compared with those single studies from seven other countries (Australia, Belgium, Canada, Israel, Japan, Nigeria and USA) by Brown (2008, 2010).…”

Section: Discussionsupporting

confidence: 92%

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Assessment of the quality of life in families with children who have intellectual and developmental disabilities in Slovenia

Čagran

Schmidt

Brown

2011

J intellect Disabil Res

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The family members rated Importance high for all of the quality of family life domains, but it appears from the lower Opportunities scores that their opportunities are limited; this may result in fewer possibilities for attaining a better quality of life. The results of our research are useful to Slovene researchers who work in the areas of special pedagogy and rehabilitation, politicians, non-governmental organisations and social services. The quality of life of families with children with disabilities, their empowerment and their inclusion into community life should be significantly enhanced when consideration is given to all the family members' support and service needs.

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Section: Discussionsupporting

confidence: 92%

“…All the children attended special schools for students from Grades 2–8 in north‐eastern Slovenia. All families had more than 2 years experience with schooling of their children in these special classes and they were also receiving support services their children (for a full description, see Schmidt & Kober 2010).…”

Section: Methodsmentioning

confidence: 99%

Assessment of the quality of life in families with children who have intellectual and developmental disabilities in Slovenia

Čagran

Schmidt

Brown

2011

J intellect Disabil Res

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“…Emotional support has been found in a number of FQOL studies as the domain around which families experience lower satisfaction (Hoffman et al, 2006;Summers et al, 2007;Wang et al, 2004Wang et al, , 2006Zuna, Selig, Summers, & Turnbull, 2009). Additional research has documented that families have expressed a high need for more emotional support (Brown, Hong, et al, 2010;Schmidt & Kober, 2010;Steel et al, 2011).…”

Section: Summary Of Major Results and Connectionmentioning

confidence: 99%

Family Quality of Life of Turkish Families Who Have Children with Intellectual Disabilities and Autism

Meral

Cavkaytar

Turnbull

et al. 2013

Research and Practice for Persons with Severe Disabilities

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This study examined family quality of life (FQOL) of Turkish families who have children with intellectual disabilities (ID) and autism. To research the perceptions of FQOL and relevant predictive relationships, data were gathered from 3,009 families who have children with ID and autism. The data were collected by using a Socio-demographic Family Information Form, Beach Center Family Quality of Life Scale, and the Family Support Scale. The FQOL and subdomain perceptions of families who have children with ID and autism were slightly above a moderate level; the highest perceptions were in the Family Interaction domain, and the lowest perceptions were in the Physical/Material Well-Being domain. We computed significant positive correlations between overall FQOL perception and family social support domains as well as between overall FQOL perception and sociodemographic variables. In the prediction of overall FQOL perception, the variable that mostly explained total variance was emotional support. For the covariates of care support, household/income, information support, socioeconomic status, age of child, type of disability, and affiliation support, the ability to predict FQOL was weak. Conversely, age of mothers, employment status of mothers, and material support domain were not important predictors in FQOL.

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“…The team devised the Family Quality of Life Survey‐2006 (Brown et al, ), which has been used in research in more than 25 countries to date (e.g., USA, Canada, Australia, Nigeria, Japan, South Korea, Malaysia, and many European countries) (Brown, ; Rillotta, Kirby, Shearer, & Nettelbeck, ). This survey was also used in the first research in Slovenia addressing the quality of life of families that have children with intellectual disabilities (Čagran, Schmidt, & Brown, ; Schmidt & Kober, ).…”

Section: Introductionmentioning

confidence: 99%

Quality of Life Among Families of Children With Intellectual Disabilities: A Slovene Study

Schmidt

Brown

2016

Policy Practice Intel Disabi

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The main goal of the study was to provide and contrast data on quality of life for families in Slovenia that have children with intellectual disabilities and developmental disabilities (IDD) and families that have children with intellectual disabilities and autism spectrum disorders (ASD). The sample comprised 25 families with children with IDD and 19 families with children with ASD selected from schools in several villages in Slovenia. The data were collected using the FQOLS-2006. The data analysis exploring the relationship between the two study groups (IDD and ASD) using the six measurement dimensions (Importance, Attainment, Satisfaction, Opportunities, Initiative, Stability) showed the mean ratings for all six measurement dimensions were higher for the IDD group than for the ASD group, although both groups rated Importance quite highly. Within the nine domains examined, there were some differences between the two groups. For the two main outcome measures, Attainment and Satisfaction, the scores for Satisfaction were consistently higher for the IDD group than for the ASD group. A combination of qualitative and quantitative data revealed that two of the nine domains, Family Relationships and Community Interaction, appear to contribute positively to family quality of life for both groups in this sample, while family life relating to the other seven domains requires remediation. Data from this family quality of life study provides evidence to suggest to policy makers and service providers that there might be a substantial amount of work to be done in the future to provide appropriate and efficient support for families with children with disabilities, especially for those with ASD, so that these families can lead lives of quality.

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Quality of Life of Families with Children with Intellectual Disabilities in Slovenia

Cited by 7 publications

References 9 publications

Assessment of the quality of life in families with children who have intellectual and developmental disabilities in Slovenia

Assessment of the quality of life in families with children who have intellectual and developmental disabilities in Slovenia

Family Quality of Life of Turkish Families Who Have Children with Intellectual Disabilities and Autism

Quality of Life Among Families of Children With Intellectual Disabilities: A Slovene Study

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