Quality of life of asthmatic children and adolescents: Portuguese translation, adaptation, and validation of the questionnaire “Pediatric Quality of Life (PedsQL) Asthma Module”

Abstract

The instrument used in this study was considered valid, consistent, and reproducible and has acceptable psychometric properties for the Brazilian population.

Pediatric Asthma Therapy Assessment Questionnaire for the Brazilian population: Cross‐cultural adaptation and measurement properties

“…The comparison between our study and the original study 9 was limited since the latter was validated using generic measurement instruments. The original study was performed before the PACCI 22 and PedsQL‐Asthma 33 became available. In this sense, the pediatric ATAQ was compared with the PACCI because both were proxy‐reported measures, and the PACCI was also valid and reliable in a sample from a similar geographic location (northeast region of Brazil) 13 …”

School Education Program in Asthma and Allergic Diseases: PIPA and VIDA in Uruguaiana, Brazil

“…For the allergic child, the school should be considered an extension of the home and an important place for the correct management and control of allergic diseases [17,20]. For this end, it is fundamental to carry out an interdisciplinary work between school, family, health team, and the community, with the purpose of • Page 3 of 5 • one year after monitoring [24]; e) Encourage families to notify the school at the time of admission if the child has any allergic conditions; f) Instruct parents to obtain a written action plan with the child's diagnosis, the main signs and symptoms, and their correct assessment and interpretation from the attending physician or the primary health unit if reported by the child, and the step-by-step on the use of medication and the implementation of other procedures. This item is of particular importance because prescriptions and procedures may vary from child to child and must be strictly adhered to as recommended in the action plan; g) Ensure that these documents (action plan, medical prescriptions, written instructions for handling medications, written description of procedures) are kept in a place of quick and easy access by the school professional for whenever they are necessary; h) Provide videos with a demonstration of methods and review and periodically update relevant information; i) Any occurrence, whether light or severe, or changes in the child's state of health, must be communicated to the parents or guardians, or to their physician if authorized; j) Refer low-income student for medical evaluation regarding their school activities, either for the occurrence of symptoms or possible side effects of medication; k) Adequacy and adaptation of school activities, aiming at the participation of students in allergic processes in the most integrated way possible; l) Guide and promote, at school, the reduction of the factors with the potential to trigger allergic diseases, and maintain the proper cleaning and ventilation in classrooms for the management and control of allergic diseases in the school environment [9,25,26]; m) Compliance with stringent tobacco-related regulations and education about their toxic health effects should be carried out and monitored permanently; n) Guidance on the use of drugs and more complex procedures in an emergency [27]; o) Guidance on activities to be performed outside of school so that the allergic child's action plan and medications are available during transportation and activity.…”

Reduction of Exercise Capacity, Respiratory and Peripheral Muscle Strength in Severe Asthma

“…Quality of life was assessed using the Brazilian version of the Pediatric Quality of Life Inventory™ (PedsQL™) 3.0 Asthma Module [26,27] which contains 28 questions related to asthma in the following domains: asthma symptoms, treatment problems, worry and communication. The questions were answered on a Likert scale from 0 to 4 and, subsequently, the items are linearly inverted and transformed on a scale from 0 to 100, where the highest scores reflected better quality of life.…”