Quality of life issues in the development and evaluation of services for people with intellectual disability

McVilly, Keith R.; Rawlinson, Rosanne B.

doi:10.1080/13668259800033701

Cited by 39 publications

(30 citation statements)

References 62 publications

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“…Their ratings on a quality of life measure and a community belonging measure were moderately correlated suggesting that having activities, friends, and support was associated with higher life satisfaction. Establishing this link empirically is an important finding that is consistent with that of other studies that have examined the importance of activities (McVilly & Rawlinson, 1998), friendship (Lunsky & Benson, 1999), and social support (Lunsky & Benson, 2000) in life satisfaction. For adolescents with an intellectual disability, having activities, friends, and support in the community seem to be key factors.…”

Section: Discussionsupporting

confidence: 74%

“…In order to minimise this problem of acquiescence, this study has adopted some helpful strategies from the literature such as avoiding yes/no formats where possible (Burnett, 1989), use of pictograms (Finlay & Lyons, 2001), and use of simplified wording without altering the meaning of items (Baker & Bramston, 1997). In summary, assessing self-reported perceptions of complex emotions such as life satisfaction and sense of community remains a challenge, but one that can be minimised in order that the perspectives of people with an intellectual disability is understood (McVilly & Rawlinson, 1998). This study looks at how community connectedness is related to the perception of quality of life in adolescents.…”

Section: Why Community Is Important To Individual Well-beingmentioning

confidence: 99%

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Community Perspectives and Subjective Quality of Life

Bramston¹,

Bruggerman²,

Pretty³

2002

International Journal of Disability, Development and Education

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Community integration has increasingly become the focus of research and practice in the field of intellectual disability. Recent research has demonstrated that community integration needs to be more than simply living within a community, people need to use the community and feel like they belong. This study pioneers the use of a sense of community measure to better understand the degree to which feelings of belonging are associated with quality of life. One hundred and thirty two students from both urban and rural schools participated in this study. Half of them had an intellectual disability and the remainder were matched peers without a disability. Life satisfaction scores for adolescents with an intellectual disability were found to correlate significantly with reported levels of activity, friends and support in the neighbourhood. People with an intellectual disability reported lower usage of some community facilities and significantly lower social belonging and empowerment than their matched nondisabled peers. The groups did not differ significantly on the sense of community measure and the above patterns were true for both urban centres and rural towns.

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Section: Discussionsupporting

confidence: 74%

Section: Why Community Is Important To Individual Well-beingmentioning

confidence: 99%

Community Perspectives and Subjective Quality of Life

Bramston¹,

Bruggerman²,

Pretty³

2002

International Journal of Disability, Development and Education

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“…Alternatively, informants have appraised dimensions in the quality of life of people with mental retardation who cannot self-report (Campo et al, 1997;Felce & Perry, 1995). The validity of relying on informants to measure another person's quality of life has been questioned (McVilly & Rawlinson, 1998), since the concept of quality of life is, in essence, "deeply personal" (Parmenter, 1992). The final response is summarised by Felce & Perry (1995) who assert that for people with little or no language "…quality of life assessment in such situations must be restricted to objectively measurable phenomena, interpreted via norms and ranges relating to the general population" [e.g.…”

Section: The Assessment Of Mood To Contribute To the Appraisal And Immentioning

confidence: 99%

“…Research into quality of life became the "pre-eminent issue of the 1990s" in the field of mental retardation (McVilly & Rawlinson, 1998). Parmenter (1992) highlights the limitation of early models of quality of life, which focused primarily on objective indicators, such as the physical environment and activities for daily living.…”

Section: The Assessment Of Mood To Contribute To the Appraisal And Immentioning

confidence: 99%

The assessment of mood in adults who have severe or profound mental retardation

Ross

Oliver

2003

Clinical Psychology Review

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Empirical literature examining the emotional lives of adults with severe and profound mental retardation is limited. One area to have received attention is mood. It is proposed that the utility of assessment of mood extends beyond psychiatric diagnosis to issues such as the appraisal of quality of life for individuals with limited or no expressive language. Two themes related to the assessment of mood are evident in contemporary literature. First, attempts have been made to clarify the presentation of affective disorders, especially depression, and to improve the assessment of depressive symptomatology in adults with mental retardation. A review of current methods for assessing depression indicates significant problems with reliability and validity.There is a need to develop appropriate assessment methods for use in relation to adults with severe and profound mental retardation who are unable to self-report and behavioral methodology might be useful in this respect. Second, there is an emerging argument that the presentation of depression in adults with mental retardation, particularly in individuals with severe disabilities, includes challenging behaviors, referred to as "atypical symptoms".Methodological and conceptual issues related to this argument warrant closer examination.Finally, it is noted that research drawing on more rigorous methodology is required to interpret the emotional states of individuals with severe and profound mental retardation.

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“…Third, the emotional experiences of this population could serve as an indicator of their quality of life. Research on quality of life in the field of intellectual disability has become an important issue since the 1990s (McVilly & Rawhinson, 1998). Evaluating quality of life involves a subjective appraisal of ''deeply personal'' aspects such as feelings and emotions (Ross & Oliver, 2003).…”

mentioning

confidence: 99%

The Emotional Experience of People With Intellectual Disability: An Analysis Using the International Affective Pictures System

Bermejo¹,

Mateos²,

Sánchez-Mateos³

2014

American Journal on Intellectual and Developmental Disabilities

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The present study provides information on the emotional experience of people with intellectual disability. To evaluate this emotional experience, we have used the International Affective Pictures System (IAPS). The most important result from this study is that the emotional reaction of people with intellectual disability to affective stimuli is very similar to that of the control groups. The way in which people with intellectual disability express basic affect to emotional stimuli in terms of happy-sad and calm-nervous is very similar to that of the general population. However, there are also some differences in how basic affect is expressed in the affective dimensions that might be relevant to our understanding of the emotional life of people with intellectual disability.

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Quality of life issues in the development and evaluation of services for people with intellectual disability

Cited by 39 publications

References 62 publications

Community Perspectives and Subjective Quality of Life

Community Perspectives and Subjective Quality of Life

The assessment of mood in adults who have severe or profound mental retardation

The Emotional Experience of People With Intellectual Disability: An Analysis Using the International Affective Pictures System

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