Quality of Life: Issues for Persons with Neuromuscular Diseases

Abresch, Richard T.; Seyden, N K; Wineinger, Mark A.

doi:10.1016/s1047-9651(18)30288-2

Cited by 76 publications

(49 citation statements)

References 14 publications

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“…Consistent with previous research, our study found that parents of boys with DMD have many unmet needs, despite living in a country like Canada where health care is publically funded [Abresch et al, 1998;Buchanan et al, 1979;Firth et al, 1983]. Their needs may be unmet due to a lack of awareness or inability of available resources to adequately target their children needs.…”

Section: Discussionsupporting

confidence: 87%

Psychosocial Support Needs of Families of Boys with Duchenne Muscular Dystrophy

Mah¹,

Biggar²

2012

Neuromuscular Disorders

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Section: Discussionsupporting

confidence: 87%

Psychosocial Support Needs of Families of Boys with Duchenne Muscular Dystrophy

Mah¹,

Biggar²

2012

Neuromuscular Disorders

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“…Sixty-eight percent of the participants were married, 42% had college or postgraduate degrees, and their mean income was between $15,000 and $25,000. Little is known about factors affecting the quality of life in persons with NMDs (Abresch, Seyden, & Wineinger, 1998), and thus the availability of this sample provided us with a unique opportunity to determine if the gratitude intervention could be effective in improving well-being in this population.…”

Section: Methods Participantsmentioning

confidence: 99%

Counting blessings versus burdens: An experimental investigation of gratitude and subjective well-being in daily life.

Emmons

McCullough

2003

Journal of Personality and Social Psychology

2,402

1,874

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The effect of a grateful outlook on psychological and physical well-being was examined. In Studies 1 and 2, participants were randomly assigned to 1 of 3 experimental conditions (hassles, gratitude listing, and either neutral life events or social comparison); they then kept weekly (Study 1) or daily (Study 2) records of their moods, coping behaviors, health behaviors, physical symptoms, and overall life appraisals. In a 3rd study, persons with neuromuscular disease were randomly assigned to either the gratitude condition or to a control condition. The gratitude-outlook groups exhibited heightened well-being across several, though not all, of the outcome measures across the 3 studies, relative to the comparison groups. The effect on positive affect appeared to be the most robust finding. Results suggest that a conscious focus on blessings may have emotional and interpersonal benefits.Reflect on your present blessings, on which every man has many, not on your past misfortunes, of which all men have some.-Charles Dickens (M. Dickens, 1897, p. 45)The construct of gratitude has inspired considerable interest in the general public. The prevalence of books targeted to general audiences on the topic (

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“…Improving the quality of life of persons with neuromuscular disease has always been a goal of rehabilitation medicine (Abresch et al, 1998). Yet little information has been provided regarding what factors are critical to achieving a high quality of life.…”

Section: Personal Goals In the Lives Of Persons With Neuromuscular DImentioning

confidence: 99%

Personal goals, life meaning, and virtue: Wellsprings of a positive life.

Emmons

2003

Flourishing: Positive Psychology and the Life Well-Lived.

378

241

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Nothing is so insufferable to man as to be completely at rest, without passions, without business, without diversion, without effort. Then he feels his nothingness, his forlornness, his insufficiency, his weakness, his emptiness. (Pascal, The Pensees, 1660/1950.As far as we know humans are the only meaning-seeking species on the planet. Meaning-making is an activity that is distinctly human, a function of how the human brain is organized. The many ways in which humans conceptualize, create, and search for meaning has become a recent focus of behavioral science research on quality of life and subjective well-being. This chapter will review the recent literature on meaning-making in the context of personal goals and life purpose. My intention will be to document how meaningful living, expressed as the pursuit of personally significant goals, contributes to positive experience and to a positive life.

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Quality of Life: Issues for Persons with Neuromuscular Diseases

Cited by 76 publications

References 14 publications

Psychosocial Support Needs of Families of Boys with Duchenne Muscular Dystrophy

Psychosocial Support Needs of Families of Boys with Duchenne Muscular Dystrophy

Counting blessings versus burdens: An experimental investigation of gratitude and subjective well-being in daily life.

Personal goals, life meaning, and virtue: Wellsprings of a positive life.

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