Quality of life in thyroid cancer—assessment of physician perceptions

James, Benjamin C.; Aschebrook‐Kilfoy, Briseis; White, Michael G.; Applewhite, Megan K.; Kaplan, Sharone P.; Angelos, Peter; Kaplan, Edwin L.; Grogan, Raymon H.

doi:10.1016/j.jss.2017.11.069

Cited by 31 publications

(32 citation statements)

References 17 publications

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“…Investigators from the University of Wisconsin reported that patient-perceived voice changes were frequent (57%) after thyroidectomy, even in the absence of vocal cord paralysis (28), and that 80% of patients had at least one swallowing-related symptom (29). Physicians have underestimated the prevalence of physical symptoms associated with thyroid cancer treatments (30).…”

Section: Discussionmentioning

confidence: 99%

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Patients' View on the Management of Papillary Thyroid Microcarcinoma: Active Surveillance or Surgery

Yoshida

Horiuchi

Okamoto

2020

Thyroid

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Background: Clinical practice guidelines have endorsed both active surveillance and surgery as viable management options for papillary thyroid microcarcinoma (PTMC). However, patients' perceptions on the options have rarely been addressed. Methods: A cross-sectional survey was conducted on 50 patients with PTMC who were under either active surveillance (n = 20) or postoperative follow-up (n = 30). The primary outcome was anxiety, which was measured using the State-Trait Anxiety Inventory (STAI). A questionnaire that comprised six items about PTMCrelated symptoms and concerns, which were measured with a visual analog scale, was also administered. Cohen's d effect size was calculated to express group differences. Multiple regression analysis was used to examine the relationships between state anxiety and other variables. Results: The median age and observation period were 61.5 years (range, 40-83 years) and 4.1 years (range, 0-8.6 years), respectively. The female/male ratio was 38/12. Compared with the surgery group, the active surveillance group showed higher scores in both state anxiety and trait anxiety, with corresponding effect sizes of 0.55 (confidence interval [CI]-0.03 to 1.1; p = 0.068) and 0.63 (CI 0.02-1.2; p = 0.037), respectively. Trait anxiety (b = 0.83) and observation time (b =-1.57) were the significant predictors of state anxiety. Moderate effect sizes were observed for ''discomfort in the neck'' (-0.53; CI-1.11 to 0.04); ''weak voice'' (-0.46; CI-1.03 to 0.12); and ''nervous about neck appearance'' (-0.64; CI-1.23 to-0.07), in favor of active surveillance. Conclusions: State anxiety among patients with PTMC seemed to be a reflection of an individual's trait rather than management. Understanding the patients' view appears to be key to improve shared decision-making.

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Section: Discussionmentioning

confidence: 99%

“…Active surveillance may be a viable or even a desirable option for PTMC, and its indications have been expanding to include larger tumors (32,33). Understanding the patients' view is critical to convey information and use appropriate words in physician/patient communication to improve shared decision-making (30,34).…”

Section: Discussionmentioning

confidence: 99%

Patients' View on the Management of Papillary Thyroid Microcarcinoma: Active Surveillance or Surgery

Yoshida

Horiuchi

Okamoto

2020

Thyroid

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“…12 Patient expectations may affect postoperative satisfaction and health-related QOL in patients undergoing treatment, 13 and contribute to the diminished QOL experienced by survivors. [2][3][4][5][6][7][8][9]11 The informational and psychosocial support needs of patients with thyroid cancer specifically merit further study. 11,20,26,27 In this study, we analyzed patient-reported feedback from English-speaking thyroid cancer survivors regarding their treatment experiences to determine the types of informational resources and support that could potentially be useful for this specific population in the pretreatment setting.…”

Section: Discussionmentioning

confidence: 99%

“…[2][3][4][5][6][7][8][9]11 The informational and psychosocial support needs of patients with thyroid cancer specifically merit further study. 11,20,26,27 In this study, we analyzed patient-reported feedback from English-speaking thyroid cancer survivors regarding their treatment experiences to determine the types of informational resources and support that could potentially be useful for this specific population in the pretreatment setting. This data reflects common patient priorities that may not be considered by providers, including physical and psychosocial issues that should be addressed in the treatment counseling process, as well as the format in which the information should be delivered.…”

Section: Discussionmentioning

confidence: 99%

“…The gap between thyroid cancer patient information and psychosocial needs, and support provided at the time of diagnosis and during treatment has previously been studied, 11,[23][24][25] but merits further investigation. The primary objective of this paper was to survey a large cohort of thyroid cancer survivors with respect to expectations and recollected experiences in order to better understand the pretreatment counseling and the information and support needs of this specific population.…”

Section: Introductionmentioning

confidence: 99%

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What the thyroid cancer patient wants to know: ThyCa survey by the American Head and Neck Society Endocrine Surgery Section

Dhillon

Karcioglu

Bloom³

et al. 2020

Head & Neck

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Objective To survey a large cohort of thyroid cancer survivors from ThyCa on information needs and expectations of their treatment to better understand the pretreatment counseling, information, and support needs of this population. Methods Anonymous survey of thyroid cancer survivors. Results One thousand one hundred twenty‐four patients with thyroid cancer participated in the survey. Three hundred sixty‐two (37.44%) reported not having had a full understanding of their treatment plan and 407 (46.41%) reported that their thyroid cancer treatment did not conform to expectations. Patients diagnosed at younger ages were significantly more likely to report inadequate understanding of the treatment, failure of treatment to meet expectations, and call for greater attention to psychological well‐being. Older patients were more likely to report unexpected effects on speech and swallowing. Regardless of age, patients most frequently called for greater attention to management of energy levels (endorsed by 61% of respondents), psychological well‐being (50%), and weight changes (48%). Conclusions Improvements are needed in age‐specific communication of thyroid cancer diagnosis and treatment.

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Papillary Thyroid Microcarcinoma—If It Is Such a Good Cancer, Why Operate?

Sawka

Goldstein

2019

JAMA Otolaryngol Head Neck Surg

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Quality of life in thyroid cancer—assessment of physician perceptions

Cited by 31 publications

References 17 publications

Patients' View on the Management of Papillary Thyroid Microcarcinoma: Active Surveillance or Surgery

Patients' View on the Management of Papillary Thyroid Microcarcinoma: Active Surveillance or Surgery

What the thyroid cancer patient wants to know: ThyCa survey by the American Head and Neck Society Endocrine Surgery Section

Papillary Thyroid Microcarcinoma—If It Is Such a Good Cancer, Why Operate?

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