Quality of life in <scp>G</scp>reek family members living with leg ulcer patients

Kouris, Anargyros; Efstathiou, Vasiliki; Chatzimichail, Iakovoula; Zakopoulou, Niki; Zouridaki, Eftychia

doi:10.1111/wrr.12326

Cited by 13 publications

(19 citation statements)

References 13 publications

(31 reference statements)

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“…In another study, where the health-related QoL, self-esteem, and functional status had been investigated in leg ulcer patients and a control group, significant differences for physical functioning, emotional role, bodily pain, general health, and vitality could be found. 44 Kouris et al 45 confirmed a significant impairment in QoL, self-esteem, anxiety, and social isolation in a case-control study of leg ulcer patients. …”

Section: Depression and Painmentioning

confidence: 96%

Depression and quality of life in patients with chronic wounds: ways to measure their influence and their effect on daily life

Renner¹,

Erfurt‐Berge²

2017

CWCMR

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Depression is a very common comorbidity in patients with chronic wounds. At least 30% of those patients suffer from depressive symptoms or anxiety. To measure impairment on daily life, different quality of life (QoL) questionnaires can be used as well as specialized questionnaires to evaluate different levels of depression. In this review, we present some of the current measurement tools and effects of depression on QoL. Depression is often associated with wound duration, odor of wounds, and furthermore with pain and immobility. On the other hand, depression might reduce wound healing itself via psychoimmunological effects. QoL, in general, is reduced in patients with chronic wounds, but especially in the case of pain, immobility and older age, and sometimes independent to wound status (healed or active). Treating medical and health care personnel should establish depression and QoL questionnaires in daily practice and should consider the psychological health of their patients as part of their treatment.

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Section: Depression and Painmentioning

confidence: 96%

Depression and quality of life in patients with chronic wounds: ways to measure their influence and their effect on daily life

Renner¹,

Erfurt‐Berge²

2017

CWCMR

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“…In addition, FDLQI scores were found to be higher in caregivers of patients whose age was between 10 and 20 . Family members living with leg ulcer patients also showed highly affected QoL and their mean FDLQI score was reported to be 14.4 and clearly related to the patients' QoL . In this study, no cases of vitiligo, leg ulcers or epidermolysis bullosa were included.…”

Section: Discussionmentioning

confidence: 85%

“…The FDLQI has been translated into many languages . In addition to validation studies on groups of various skin diseases, the impact of specific skin diseases on patients' family members' QoL has been investigated . The QoL of family members of vitiligo patients showed a mean FDLQI score of 10.3 and their lives were shown to be affected in various aspects .…”

Section: Discussionmentioning

confidence: 99%

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Japanese version of the Family Dermatology Life Quality Index: Translation and validation

Higaki

Tanaka

Futei

et al. 2017

The Journal of Dermatology

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Skin conditions affect the quality of life (QoL) of patients and their family members. To assess family members' life quality, a quality-of-life questionnaire uniquely designed for family members is necessary. We translated the Family Dermatology Life Quality Index (FDLQI), originally created and validated by Basra et al., into Japanese, and evaluated its reliability and validity. For psychometric evaluations, 150 dermatology patients and their family members were included. The Japanese version of FDLQI showed high test-retest reliability (intraclass correlation coefficient=0.95) and internal consistency reliability (Cronbach's alpha=0.86). FDLQI scores significantly correlated with DLQI scores (r=0.58, p < 0.01, Spearman's rho) and global question (GQ) which measured the patients' skin condition on a visual analogue scale (r = 0.36, p < 0.01). Family members of patients with inflammatory skin diseases showed higher FDLQI scores than those with isolated lesions, but the difference was not statistically significant (5.98 ± 4.61, 4.22 ± 3.52, respectively, p=0.062, Mann-Whitney U-test). Responsiveness to change was demonstrated in a groupin which patients' skin condition was assessed as improved (n = 37, r = 0.46, p < 0.01) but not in that in which patient's skin condition became worse. The difference of the change between the two groups was statistically significant (p<0.01). Additionally, the change in FDLQI scores and GQ were significantly correlated (r = 0.40, p<0.01). Exploratory factor analysis suggested essential unidimensionality of the instrument. We showed acceptable validity and responsiveness of this Japanese version of FDLQI. Further clinical epidemiological studies are required to confirm this.Key words: Family, FDLQI, Psychometric evaluations, QoL, Validation, Skin disease INTRODUCTIONMany skin diseases influence patients' life quality in various aspects of their lives. The disability of patients can also influence the life quality of patients' family members. The influence can be serious for partners or other family members, as well as the caregivers of children. [1][2][3] This secondary impact on the quality of life (QoL) of close family members has been shown to be serious in emotional aspects but may also be seen in the physical wellbeing, social, and financial aspects of their lives. 1,2 Understanding the disability experienced by family members is essential to create educational and supportive programs to improve their life quality. 4 To evaluate their QoL accurately, a comprehensive questionnaire specific for family members is necessary. The Family Dermatology Life Quality Index (FDLQI) is a unique QoL measure designed for family members of 3 dermatology patients, developed and validated by Basra et al. 5,6 It has been shown to be a practical and useful tool to assess the life quality of family members.In this study, we translated the FDLQI into Japanese and carried out a psychometric study in Japanese patients and their family members or partners. METHODSThe study was approved by the...

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“…Italian, Persian and Ukrainian versions have been published. Other articles have described the use of the FDLQI …”

Section: Resultsmentioning

confidence: 99%

Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology‐specific instruments

Sampogna

Finlay

Salek

et al. 2017

Acad Dermatol Venereol

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The patient is the centre of a web of relationships and the impact of his/her disease on family members and caregivers must be taken into account. The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, DFI; Parents' Index QoL Atopic

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Quality of life in Greek family members living with leg ulcer patients

Cited by 13 publications

References 13 publications

Depression and quality of life in patients with chronic wounds: ways to measure their influence and their effect on daily life

Depression and quality of life in patients with chronic wounds: ways to measure their influence and their effect on daily life

Japanese version of the Family Dermatology Life Quality Index: Translation and validation

Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology‐specific instruments

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