Quality of life in parents of seriously Ill/injured children: a prospective longitudinal study

Graj, Ella; Muscara, Frank; Anderson, Vicki; Hearps, Stephen; McCarthy, Maria

doi:10.1007/s11136-020-02624-0

Cited by 11 publications

(10 citation statements)

References 59 publications

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“…The child’s illness forces the parents to modify their current roles, acquire new skills and satisfy the new needs of the child. This difficult situation may theoretically have negative consequences for the child’s parents, siblings and family relations, but such an experience may also strengthen the family [ 1 , 2 , 3 , 7 , 8 ].…”

Section: Discussionmentioning

confidence: 99%

“…A similar situation was confirmed by other researchers, also in countries where equality of duties is the main model. The role includes spending time in the hospital, administering medications and providing care for health problems [ 2 , 3 , 4 , 5 , 6 , 7 , 8 , 9 , 10 , 11 ].…”

Section: Discussionmentioning

confidence: 99%

“…Psychosocial care for the patient and their family is extremely important. It turns out to be an inseparable element of comprehensive care that should be covered by every family in which a child has been diagnosed with cancer [ 1 , 7 , 8 ].…”

Section: Introductionmentioning

confidence: 99%

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Influence of a Child’s Cancer on the Functioning of Their Family

Lewandowska¹

2021

Children

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Background—A child’s cancer affects their entire family and is a source of chronic stress for a sick child, as well as for their parents and siblings. It deprives them of the feeling of security; introduces uncertainty, fear and anxiety; and destabilises their life. It mobilises the family since they have to reconcile the treatment and frequent appointments at the hospital with the hardships of everyday life. The emotional burden they have to deal with is enormous. Recognition of the needs of such a family allows for the implementation of support, psychosocial care and psychoeducation, as well as the provision of reliable information. Patients and Methods—A population survey was conducted between 2015 and 2020. Caregivers of children diagnosed with cancer were invited to participate in the study to assess their problems and needs. Results—All respondents in their legal status were parents of children with cancer. The study included 800 people, where women accounted for 85% and men accounted for 15%. The mean age of the mother was 38.09, SD = 7.25, and the mean age of the father was 41.11, SD = 7.03. The occurrence of problems negatively correlated with both the age of the parents (p < 0.0001) and the level of education (p < 0.0001). Parents who admitted having financial problems more often reported problems of a different kind; moreover, financial problems were more often reported by parents of children who were ill for a longer time (p = 0.01). Conclusions—Parents of children suffering from cancer reported numerous psychological, social and somatic problems. The identification of problems through screening should translate into specific interventions, thus creating support for the families of children with cancer. Promoting coping with difficult emotions and the ability to solve problems when a child is ill has a positive effect on the functioning of the family.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Influence of a Child’s Cancer on the Functioning of Their Family

Lewandowska¹

2021

Children

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“…While spillover effects have been studied primarily in the context of chronic disease, acute illness and hospitalization likewise impact caregivers QOL and result in both financial and informal caregiving costs. Parents or caregivers report decreased QOL, especially during the acute hospitalization period ( 22 , 23 ). Families of hospitalized children commonly describe significant financial costs ( 24 ), most often related to their child's medical care.…”

Section: What Are Family Spillover Effects?mentioning

confidence: 99%

What's the Cost? Measuring the Economic Impact of Pediatric Sepsis

et al. 2021

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Sepsis, life-threatening organ dysfunction secondary to infection, hospitalizes nearly 75,000 children each year in the United States. Most children survive sepsis. However, there is increasing recognition of the longer-term consequences of pediatric sepsis hospitalization on both the child and their family, including medical, psychosocial, and financial impacts. Here, we describe family spillover effects (the impact of illness on caregivers) of pediatric sepsis, why measurement of family spillover effects is important, and the ways in which family spillover effects can be measured.

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“…An increasing number of studies have recently investigated how emotional/behavioral problems in children are associated with chronic disorders such as migraines; however, knowledge of the relationship between these problems and parental stress is still limited [ 14 , 15 , 16 , 17 ]. In general, parents of children with chronic medical, neurological or psychiatric conditions show elevations of perceived stress levels and a reduction of parental quality [ 18 , 19 , 20 , 21 , 22 ], and specifically, children with headaches seem to be at a high risk for psychological maladjustment, including internalizing disorders [ 23 , 24 ]. Within this perspective, the literature has reported how managing a problematic child can become a significant source of stress for parents, especially for the mother as the primary caregiver [ 21 , 25 ].…”

Section: Introductionmentioning

confidence: 99%

Pediatric Chronic Migraine Severity and Maternal Stress

Smirni

Carotenuto

2021

Pediatric Reports

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Primary headache is an increasing phenomenon in pediatric age, and very often, it causes disabling limitations in children’s daily activities, negatively affecting family well-being. There are conflicting data in the literature on the impact of children’s migraines on parental experienced stress. This study aimed to evaluate maternal stress in a sample of school-aged children with a migraine without aura (MwoA) and its correlation with migraine intensity and frequency. A total of 474 mothers aged between 31 and 55 participated in the study: 237 were mothers of children with MwoA, and 237 were mothers of typical developing children. All participants were administered the Parent Stress Index-Short Form (PSI-SF) for the assessment of parental stress; the Pediatric Migraine Disability Assessment (PedMIDAS) was administered to children with MwoA to assess the presence of a related disability migraine. The results showed a significantly higher rate of stress in mothers of MwoA children (p < 0.001) in all the domains explored by the PSI-SF and a statistically significant correlation between the maternal stress total score and the intensity and frequency of migraine attacks (p < 0.0001). This study highlights the need for the holistic contribution of the family to be considered in the clinical management of pediatric migraines.

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Quality of life in parents of seriously Ill/injured children: a prospective longitudinal study

Cited by 11 publications

References 59 publications

Influence of a Child’s Cancer on the Functioning of Their Family

Influence of a Child’s Cancer on the Functioning of Their Family

What's the Cost? Measuring the Economic Impact of Pediatric Sepsis

Pediatric Chronic Migraine Severity and Maternal Stress

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