Quality of life in palliative care

Tassinari, Davide; Maltoni, Marco

doi:10.1007/s12682-009-0003-4

Cited by 4 publications

(4 citation statements)

References 61 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Prestando attenzione anche alla dignità della vita, se ha senso parlarne in una persona che la vita sta perdendo. Ma attenzione a non fare della qualità della vita un nuovo mito a cui tutto sacrificare, nel tentativo utopico di eliminare dall'esistenza dell'uomo il limite che lo contraddistingue e che lo rende unico nelle sue caratteristiche che possiede in modo ontologicamente peculiare (8).…”

Section: Il Ruolo Delle Terapie Palliative E Dell'hospiceunclassified

Eutanasia in dialisi

Timio

2014

G Clin Nefrol Dial

View full text Add to dashboard Cite

Quando il supporto vitale offerto dalla dialisi è vissuto in termini di graduale peggioramento della qualità della vita, quando si esaurisce la prospettiva di lenire il dolore e la sofferenza legati alla dipendenza da una macchina e quando viene meno qualsiasi progetto esistenziale, qualche paziente in dialisi avverte acutamente che non rimane altro che il ricorso al suicidio. Può essere il suicidio assistito, che viene praticato in alcune nazioni europee, ma non in Italia, e l'eutanasia nelle due forme: attiva (commissiva) o passiva (omissiva) quale si verifica quando si interrompe il trattamento dialitico. Viene riportata la storia di tre dializzati che, a vario titolo, possono essere inseriti nelle tre categorie descritte, ognuna delle quali presuppone la libera scelta, il rispetto della scelta, il supporto del medico e la valorizzazione della dignità del malato. (Bioethics)

show abstract

Section: Il Ruolo Delle Terapie Palliative E Dell'hospiceunclassified

Eutanasia in dialisi

Timio

2014

G Clin Nefrol Dial

View full text Add to dashboard Cite

show abstract

“…Patients in hospice/palliative care can experience "total pain" (Saunders, 1967;Tassinari & Maltoni, 2009). This means they can experience complex and multiple problems or pain arising from the physical, psychological, financial and spiritual domains (Hilliard, 2003).…”

Section: Different Aspects Of Health Addressed By Music Therapy In Hospice/palliative Carementioning

confidence: 99%

“…This means they can experience complex and multiple problems or pain arising from the physical, psychological, financial and spiritual domains (Hilliard, 2003). Despite the fact that hospice and palliative care aims to provide "total care" (Tassinari & Maltoni, 2009) with holistic approaches, patients indicated their unmet needs in terms of emotional, psychological (Rainbird et al, 2009), psychosocial and spiritual needs, isolation, communication with staff, loss of autonomy, control and activities, in addition to pain and symptom management (Ventura et al, 2014;Davies, 2004).…”

Section: Different Aspects Of Health Addressed By Music Therapy In Hospice/palliative Carementioning

confidence: 99%

“…One concern I had in using this framework was that it is not specific to the context of hospice palliative care, albeit it is specific to the context of music therapy. However, in the light of the definitions of QoL suggested by other health professionals, Ruud's framework does address all of the multidimensional needs of patients in the physical, emotional, social and spiritual domains which affect life quality for patients at the end of life (Hilliard, 2003;2005b;Saunders, 1967;Tassinari & Maltoni, 2009;Clements-Cortés, 2015).…”

Section: Quality Of Lifementioning

confidence: 99%

See 1 more Smart Citation

How did Music Therapy Contribute to Patients’ Quality of Life in a Hospice and Palliative Care Setting?

Jeong¹

View full text Add to dashboard Cite

<p>This qualitative research explores how I, as a student music therapist, contributed to patients’ quality of life (QoL) in a hospice and palliative care setting. The study principally focuses on the different music therapy and personal approaches that I used and which seemed to contribute to patients’ QoL. The research was carried out at a hospice in New Zealand and I had sessions with in-patients, day hospice patients and out-patients who were all at varying stages of illness. In this research, secondary analysis of data is used to answer my research question. The data used in this study are the clinical notes and reflexive journals that I gathered while working with 67 patients in a total of 194 sessions. Because QoL is a broad complex concept, I have chosen to use a conceptual framework suggested by music therapy theorist Even Ruud (1997) to put a structure to answering my research question. In thematic analysis, the data were both deductively and inductively analysed. The findings describe music therapy methods, activities, strategies and techniques as well as personal approaches I employed which seemed to promote a sense of affective awareness, agency, belonging and meaning, and coherence of life in patients receiving hospice and palliative care. This study indicated that Ruud’s (1997) framework has particular meaning in the context of hospice palliative care and that the framework could be extended for use in hospice and palliative care. The clinical vignette further provide an exploratory view of the use of music therapy techniques and the quality of relationships, and how both of these contributed to increasing a patient’s QoL. In the discussion, the findings are further explained in the light of other studies. In particular, ‘being with’ patients underpinned all of the musical and personal approaches that I made in working with hospice patients and this is evaluated as an overarching point. Although Ruud’s (1997) idea of QoL was a good fit in my study, the study may suggests how his model could address ways in which affective awareness, agency, belonging and meaning and coherence of life can be supported with various music and personal approaches in the context of music therapy in hospice and palliative care settings.</p>

show abstract

Well-Being in Palliative Care: Perspective of the Patient Versus Health Care Practitioners

Ponte¹,

Pais-Ribeiro²

2014

Psicologia, Saúde & Doenças

View full text Add to dashboard Cite

RESUMO-Os CP são cuidados globais, ativos, rigorosos e especializados destinados aos doentes que padecem de uma doença grave e/ou incurável, avançada e progressiva. São prestados por uma equipa interdisciplinar que atua no controlo de sintomas e responde às suas múltiplas necessidades, pretendendo auxiliar o doente a viver bem até ao final dos seus dias. O presente estudo teve como objetivo comparar a perspetiva do doente e dos profissionais de saúde acerca do bem-estar do doente paliativo. Participaram 74 doentes e 78 profissionais de saúde recrutados em quatro unidades/serviços de cuidados paliativos de diferentes regiões do país. Tratou-se de um estudo transversal, exploratório, de comparação entre grupos. Foram utilizados um item de avaliação global do bem-estar e uma questão referente ao grau de importância de nove fatores importantes ao fim de vida. Recorreu-se ao teste t de Student para comparar o nível de bem-estar e os fatores preponderantes para o maximizar. A análise de dados revelou, com exceção da importância da ausência de dor, a existência de diferenças estatisticamente significativas entre os grupos em todas as dimensões avaliadas. O bem-estar do doente paliativo é apontado como razoável pelos próprios doentes e elevado pelos profissionais de saúde. O distanciamento de opiniões também se verifica ao nível da importância de diferentes fatores para o bem-estar, pela menor importância atribuída pelos profissionais de saúde a aspetos considerados prioritários pelos doentes. Concluiu-se que os profissionais de saúde são incapazes de substituir adequadamente o ponto de vista do doente caso este não se possa expressar. Palavras-chave-doentes paliativos, bem-estar, profissionais de saúde, comparação de perspetivas ______________________________________________________________________

show abstract

Quality of life in palliative care

Cited by 4 publications

References 61 publications

Eutanasia in dialisi

Eutanasia in dialisi

How did Music Therapy Contribute to Patients’ Quality of Life in a Hospice and Palliative Care Setting?

Well-Being in Palliative Care: Perspective of the Patient Versus Health Care Practitioners

Contact Info

Product

Resources

About