Quality of life in inflammatory bowel disease: Cross sectional survey of a community population

Medication beliefs among patients with inflammatory bowel disease who report low quality of life: a qualitative study

“…Because of the low prevalence of minority ethnic groups in the study area, only one perspective from a patient of Asian origin was gained and further research would be necessary for comparisons of patients from different cultural backgrounds. Participants were selected from those with the lowest quality of life scores from a previous community based survey of individuals with established IBD [22] to allow for narratives that drew upon a variety of experiences in terms of relapse frequency, disease severity and medicine taking. Rubin et al's findings indicate that these patients are most likely to be under specialist care for IBD and therefore provide a range of views from patients usually accessible to health care providers [22].…”

“…Participants were selected from those with the lowest quality of life scores from a previous community based survey of individuals with established IBD [22] to allow for narratives that drew upon a variety of experiences in terms of relapse frequency, disease severity and medicine taking. Rubin et al's findings indicate that these patients are most likely to be under specialist care for IBD and therefore provide a range of views from patients usually accessible to health care providers [22]. Further research would, however, be necessary to identify differences in medication beliefs in patients with better quality of life, with more recent onset of disease, under different care conditions and with different levels of actual adherence.…”

“…All those invited had scored in the lowest quartile of a disease specific health-related quality of life measure, the UK-IBDQ [21], in a previous study of a community population from the North East of England [22]. It was anticipated that these individuals would have a wide range of experience of relapse and medicine taking due to their low health-related quality of life scores.…”

The Fight for ‘Health-related Normality’: A Qualitative Study of the Experiences of Individuals Living with Established Inflammatory Bowel Disease (IBD)

“…A total of 283 fully completed UK-IBDQ questionnaires (Cheung et al, 2000) were received from a community-based population in the north-east of England as part of an earlier investigation (Rubin, Hungin, Chinn, & Dwarakanath, 2003). All participants had established IBD, defined as more than two years since diagnosis.…”