Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24

Marrón, S.E.; Gómez-Barrera, Manuel; Aragonés, Lucía Tomás; Goñi-Navarro, Ana; Vilarrasa-Rull, Eva; Diaz‐Díaz, R.M.; Aranibar, F.J. Garcia-Latasa de; Campos-Rodenas, Ricardo; Barrio, Victoria Fuentelsaz Del; Gilaberte, Yolanda; Gracia‐Cazaña, Tamara; Morales-Callaghan, Anna María; Ros-Abarca, Sandra; Madrid-Alvarez, María Blanca; Puig, Lluís

doi:10.2340/00015555-3905

Cited by 4 publications

(6 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The maximum achievable score is 30 points, and the higher the score, the bigger the impact on QoL. HSQoL-24 is a new Spanish HS-specific questionnaire that was translated into and validated in English in 2021 [16,17]. It consists of 24 items divided into six life domains.…”

Section: Quality Of Lifementioning

confidence: 99%

Self-Reported Hidradenitis Suppurativa Severity: Is It Useful for Clinical Practice?

Krajewski

Marrón

Aragonés

et al. 2022

Dermatol Ther (Heidelb)

View full text Add to dashboard Cite

show abstract

Section: Quality Of Lifementioning

confidence: 99%

Self-Reported Hidradenitis Suppurativa Severity: Is It Useful for Clinical Practice?

Krajewski

Marrón

Aragonés

et al. 2022

Dermatol Ther (Heidelb)

View full text Add to dashboard Cite

show abstract

“…Both the Spanish and English versions of the questionnaire showed very good internal consistency and reliability. The instrument presented high correlation coefficients with SKINDEX-29 and DLQI [9].…”

Section: Quality Of Lifementioning

confidence: 92%

“…In order to evaluate the influence of the disease on the patients' quality of life, all the participants were asked to complete the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24) questionnaire [8,9], a new Spanish HS-specific questionnaire which was also recently translated into and validated in English [9]. The instrument was a self-administered questionnaire consisting of 24 items that evaluate six life domains (psychosocial, economic, occupational, relationships, personal, and clinical) over a 4-week recall period [9]. Each item was scored on a five-point Likert scale.…”

Section: Quality Of Lifementioning

confidence: 99%

“…Each item was scored on a five-point Likert scale. The total score was calculated by adding together the results from all the items, resulting in a maximum of 96 and a minimum of 0 points [9]. The higher the score, the bigger the impact of the disease on the patient's quality of life.…”

Section: Quality Of Lifementioning

confidence: 99%

“…Newer methods of measuring the PROs of HS patients, although they have been developed, still do not fully reflect the physical aspects of the disease [7]. Recently, a new, promising HS-specific instrument called Hidradenitis Suppurativa Quality of Life-24 (HSQoL24) was developed, validated, and translated into English by Marrón et al [8,9].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

The Use of HSQoL-24 in an Assessment of Quality-of-Life Impairment among Hidradenitis Suppurativa Patients: First Look at Real-Life Data

Krajewski

Marrón

Gómez-Barrera

et al. 2021

JCM

View full text Add to dashboard Cite

Hidradenitis suppurativa (HS) is a chronic inflammatory skin disorder with well-documented effects on patients’ quality of life (QoL). The aim of this study was to evaluate the QoL of patients with HS via the use of a newly developed questionnaire: Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24). This study was performed on a population of 342 HS patients. Their QoL was assessed via the HSQoL-24 questionnaire. The perceived impairment of QoL due to HS in the studied group was considered to be serious (mean HSQoL-24 score: 58.3 ± 21.0 points). Women tended to experience a significantly higher impact from the disease than men (61.6 ± 19.2 points vs. 51.1 ± 23.1 points, p < 0.001). The HS severity had an effect on the perceived QoL, with statistically significant differences being evident between the self-assessed HS severity groups. The level of QoL impairment correlated positively with the number of affected body areas (r = 0.285, p < 0.001) and the duration of the disease (r = 0.173, p = 0.001), while the patients’ age at disease onset correlated negatively with the HSQoL-24 global score (r = −0.182, p = 0.001). Patients living in their family house scored higher than other groups. The least affected were patients who lived alone. The study shows that the HSQoL-24 questionnaire is a reliable, HS-specific tool for measuring the QoL among patients with HS in real-life clinical settings.

show abstract

The Dermatology Life Quality Index (DLQI) used as the benchmark in validation of 101 quality‐of‐life instruments: A systematic review

Vyas,

Johns,

Abdelrazik

et al. 2024

Acad Dermatol Venereol

View full text Add to dashboard Cite

BackgroundThe validation of psychometric measures requires use of other established and standardized validated measures. The Dermatology Life Quality Index (DLQI) is the most widely used tool to measure the burden of skin diseases and assess effectiveness of interventions based on patients' perspective.ObjectivesThe objective of this study was to systematically analyse peer‐reviewed publications describing use of the DLQI in validation of other patient‐reported outcome (PRO) and quality‐of‐life (QoL) measures.MethodsSeven databases were searched for papers published between January 1994 and December 2022 for articles containing data using DLQI in the validation of other PRO/QoL measures. The methodology followed PRISMA guidelines. The protocol was prospectively registered on PROSPERO.ResultsOf 1717 screened publications, 122 articles including 30,727 patients from 34 different countries with 41 diseases met the inclusion criteria. The DLQI was used in validation of 101 measures: 80 dermatology‐specific QoL measures, mostly disease‐specific, and 21 generic measures. Of these studies, 47 were cross‐cultural adaptations, 116 single arm, 100 were cross‐sectional, 18 longitudinal and six randomized placebo controlled. DLQI was used for 14 known group, and correlation for 10 construct, 101 convergent, 10 concurrent, 10 divergent/discriminant and three criterion validity tests using Mann–Whitney (2), Spearman's (80), Pearson's correlation (26) and Student's t‐test (1). The DLQI was used in responsiveness analysis in 13 studies.ConclusionsThis review identified widespread use of the DLQI in validation of other dermatology PRO/QoL measures and confirmed the central role that the DLQI plays as a benchmark in instrument development and validation across dermatology and beyond. The use of the DLQI by so many developers of other instruments has provided a common standard for comparability.

show abstract

Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24

Cited by 4 publications

References 28 publications

Self-Reported Hidradenitis Suppurativa Severity: Is It Useful for Clinical Practice?

Self-Reported Hidradenitis Suppurativa Severity: Is It Useful for Clinical Practice?

The Use of HSQoL-24 in an Assessment of Quality-of-Life Impairment among Hidradenitis Suppurativa Patients: First Look at Real-Life Data

The Dermatology Life Quality Index (DLQI) used as the benchmark in validation of 101 quality‐of‐life instruments: A systematic review

Contact Info

Product

Resources

About