Quality of life in family members coping with chronic illness in a relative: An exploratory study.

Feigin, Rena; Barnetz, Zion; Davidson-Arad, Barnetz

doi:10.1037/a0013055

Cited by 7 publications

(5 citation statements)

References 39 publications

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“…This study found that differences in personality and outlook bear a direct impact (either positive or negative) on the quality of life, a finding that is corroborated by other studies (Feigin, Barnetz, & Davidson-Arad, 2008;Langius-Eklöf, Lidma, & Wredling, 2009). However, surprisingly the personality factor did not play a vital role in the issue of disclosure.…”

Section: Downloaded By [University Of Wisconsin-milwaukee] At 19:53 0supporting

confidence: 88%

Breaking Through the Silence: The Experience of Living With HIV-Positive Serostatus, and Its Implications on Disclosure

Feigin

Sapir

Patinkin

et al. 2013

Social Work in Health Care

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AIDS has reached pandemic proportions and despite advances in medical treatment both the medical and social consequences of HIV-positive serostatus continue to be of concern throughout the world. In countries with greater access to antiretroviral therapy (ARV), HIV/AIDS it is no longer defined as fatal, but rather a chronic disease, thereby this study seeks to understand the experience of individuals living with HIV-positive serostatus, a multifaceted disease, from the time the infection is diagnosed through the four post-diagnosis years, and in particular its implications on the issue of disclosure. A qualitative analysis was conducted, based on 13 in-depth interviews with participants who are HIV-positive and the data was analyzed by inductive content analysis. The results identify six themes, four central elements that compose the experience of living with HIV: the emotional experience, the stigma attached to HIV, the inner dialogue, and disclosure. A three-phase coping process and personality differences were found, all of which will be discussed. The issue of disclosure was found to be cardinal and problematic in its impact on the patient's wellbeing.

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Section: Downloaded By [University Of Wisconsin-milwaukee] At 19:53 0supporting

confidence: 88%

Breaking Through the Silence: The Experience of Living With HIV-Positive Serostatus, and Its Implications on Disclosure

Feigin

Sapir

Patinkin

et al. 2013

Social Work in Health Care

Self Cite

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“…However, as Giné et al, note, there is no way to ensure that this instruction of responding on behalf of the family has been followed by the family representative [ 58 ]. Feigin et al [ 95 ] understand that the participation of brothers and sisters of the child with disabilities, in addition to the parents, is a requirement of the systemic nature of the family.…”

Section: Discussionmentioning

confidence: 99%

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Mora

Ibáñez

Balcells‐Balcells

2020

IJERPH

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Background: In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method: A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on “family quality of life” or “quality of family life” in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results: The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0–6 nor do they cover all disabilities. Conclusions: The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.

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“…QoL of family members related to someone with a chronic illness is lower, specifically, in self-expression, individual growth, and realization of their potentials. 86 Therapy inventions can target those identified areas to resolve emotional and personal conflicts which could prevent emotional burnout. 87 Individualized therapy could focus on other topics unique to the caregiver population, such as the stress between commitment to the sick relative and the needs of the other members in the family.…”

Section: Discussionmentioning

confidence: 99%

A Review of Psychosocial Factors of Marfan Syndrome: Adolescents, Adults, Families, and Providers

et al. 2019

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The purpose of this article was to review the current literature on psychosocial implications of Marfan syndrome (MFS) and its impact on adolescents, adults, their families and to provide important considerations for providers. Since the previous reviews in 2015, numerous studies have been published that are included in the current review. This literature review was conducted using PubMed, Medline, PsychINFO, ERIC, Web of Science, and Academic Search Premier databases and only articles that studied psychosocial factors that influence MFS patients as adolescents, adults, family members, or their interactions with providers were included in this review. Of the 522 articles reviewed, 41 were selected based on the inclusion and exclusion criteria. All articles were peer-reviewed. MFS has various implications that can impact one's life; studies have shown that MFS causes a negative impact on an individual's formative years, quality of life, reproductive decision-making, work participation, and satisfaction with life. Clinicians and multidisciplinary teams should be aware of these factors to provide support focusing on coping strategies for the patient and their family.

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Quality of life in family members coping with chronic illness in a relative: An exploratory study.

Cited by 7 publications

References 39 publications

Breaking Through the Silence: The Experience of Living With HIV-Positive Serostatus, and Its Implications on Disclosure

Breaking Through the Silence: The Experience of Living With HIV-Positive Serostatus, and Its Implications on Disclosure

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

A Review of Psychosocial Factors of Marfan Syndrome: Adolescents, Adults, Families, and Providers

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