Quality of life in dementia: a systematically conducted narrative review of dementia-specific measurement scales

Bowling, Ann; Rowe, Gene; Adams, Sue K.; Sands, Paula; Samsi, Kritika; Crane, Maureen; Joly, Louise; Manthorpe, Jill

doi:10.1080/13607863.2014.915923

Cited by 165 publications

(196 citation statements)

References 47 publications

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“…Due to the pragmatic character of this study, reflecting daily care for persons with dementia in LTCF, only one (contact) nurse of the patient (instead of two nurses) filled the instrument; this is a limitation of the study because the developers of the QUALIDEM advise to use the answers reached by a consensus between two nurses. In the present study only the 18 questions suitable for very severe dementia (GDS 7) were used, because these questions are reliable for use in patients with mild dementia as well as those with very severe dementia [18,32,55]. A short instrument that can be filled out by one person would be more feasible [20,56].…”

Section: Discussionmentioning

confidence: 99%

“…The differences in the rating of QOL between self-report and proxy report generally depend on variables such as depressive symptoms and severity of dementia and should be recognized [55,61,62,63,64]. The QUALIDEM was developed to measure QOL in persons with dementia; however, observational instruments always have the possibility of observer bias [65].…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

Klapwijk

Caljouw

Pieper

et al. 2016

Dement Geriatr Cogn Disord

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Background: To determine which characteristics are associated with quality of life (QOL) in residents with moderate to very severe dementia in long-term care facilities (LTCFs). Material and Methods: This was a cross-sectional analysis of a cluster randomized controlled study in 12 Dutch LTCFs that enrolled 288 residents, with moderate to severe dementia assessed with the Reisberg Global Deterioration Scale (Reisberg GDS) and QOL with the QUALIDEM. Characteristics that were hypothesized to be associated with the six domains of QOL (applicable to very severe dementia) included demographic variables, activities of daily living (Katz ADL), cognitive performance (Cognitive Performance Scale; CPS), pain (Pain Assessment Checklist for Seniors with Limited Ability to Communicate; PACSLAC-D), neuropsychiatric symptoms (Neuropsychiatric Inventory-Nursing Home Version; NPI-NH) and comorbidities. Results: Multivariate logistic regression modelling showed associations with age in the domain Social isolation [odds ratio, OR, 0.95 (95% confidence interval, CI, 0.91-0.99)], ADL level in the domain Positive affect [OR 0.89 (95% CI 0.83-0.95)] and the domain Social relations [OR 0.87 (95% CI 0.81-0.93)], severity of dementia in the domain Social relations [OR 0.28 (95% CI 0.12-0.62)] and in the domain Social isolation [OR 2.10 (95% CI 1.17-3.78)], psychiatric disorders in the domain Positive affect [OR 0.39 (95% CI 0.17-0.87)] and pulmonary diseases in the domain Negative affect [OR 0.14 (95% CI 0.03-0.61)] of the QUALIDEM. Neuropsychiatric symptoms were independently associated with all six domains of the QUALIDEM [OR 0.93 (95% CI 0.90-0.96) to OR 0.97 (95% CI 0.95-0.99)]. Pain was associated with the domains Care relationship [OR 0.92 (95% CI 0.84-1.00)] and Negative affect [OR 0.92 (95% CI 0.85-1.00)]. Conclusion: QOL in dementia is independently associated with age, ADL, dementia severity, pain, psychiatric disorders, pulmonary diseases and neuropsychiatric symptoms. It is possible to detect persons with dementia at risk for a lower QOL. This information is important for developing personalized interventions to improve QOL in persons with dementia in LTCFs.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

Klapwijk

Caljouw

Pieper

et al. 2016

Dement Geriatr Cogn Disord

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“…In dementia, important domains of QOL include cognitive function, function in ADL, meaningful use of time and social behavior, and a favorable balance between positive emotion and absence of negative emotion. Several disease-specific QOL measures have been developed for the assessment of QOL in dementia influenced by Lawton’s model; however, there is still no consensus on a generic definition of QOL [21-23]. Although different conceptualizations of the multifaceted QOL converge on emotional, social, and physical well-being with dimensions and domains common to all, different people value different things [23-25].…”

Section: Introductionmentioning

confidence: 99%

Quality of Life in People with Young-Onset Alzheimer’s Dementia and Frontotemporal Dementia

Hvidsten

Engedal

Selbæk

et al. 2018

Dement Geriatr Cogn Disord

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Aims: The aims of this study were to compare quality of life (QOL) in people with young-onset Alzheimer’s (AD) and frontotemporal (FTD) dementia, explore variables associated with QOL, and compare QOL in young-onset dementia (YOD) and late-onset dementia (LOD). Methods: Cross-sectional data from a Nordic multicenter study of 50 community-dwelling participants with AD and 38 with FTD were included. A comparison group consisted of 100 people with LOD. QOL was measured using self-reported Euro-QOL 5-Dimension and the proxy version of Quality of Life in Alzheimer’s Disease (QOL-AD) questionnaire. Neuropsychiatric symptoms and needs were assessed using the Cornell Scale for Depression in Dementia (CSDD), Neuropsychiatric Inventory (NPI), and Camberwell Assessment of Needs in the Elderly. Multiple linear regression and multilevel modeling was used to determine variables associated with QOL. Results: We found no differences between the two YOD groups in QOL. The variables associated with QOL were scores on the CSDD, NPI, and unmet needs. The proxy QOL-AD score in YOD was significantly higher compared to LOD (median 36.0 [IQR 10.0] vs. 33.0 [IQR 9.0]). Conclusion: The QOL in Nordic people with YOD was better compared to people with LOD. Our results show depressive symptoms to be associated with QOL irrespective of age and diagnosis.

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“…Folglich fällt auch die Abgrenzung zu nahen Konstrukten wie "Wohlbefinden", "Glück" oder "subjektive Gesundheit" schwer [8,12,15]. Über die subjektiven Lebensqualitätstheorien alter Menschen in unterschiedlichen Lebensumständen ist wenig bekannt [2]. In einer Metaanalyse [21] konnte gezeigt werden, dass bei der Beurteilung der eigenen Lebensqualität die psychische Gesundheit die größte Rolle spielt, wohingegen bei der Beurteilung der eigenen Gesundheit die körperliche Funktionsfähigkeit in den Fokus rückt.…”

Section: Hintergrund Und Fragestellungunclassified

Subjektive Theorien zu Lebensqualität und Gesundheit im Alter

Kada¹,

Hedenik²,

Griesser³

et al. 2017

Z Gerontol Geriat

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Quality of life in dementia: a systematically conducted narrative review of dementia-specific measurement scales

Abstract: The lack of consensus on measuring QoL in dementia suggests a need for a broader, more rigorously tested QoL measure.

Cited by 165 publications

References 47 publications

Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

Quality of Life in People with Young-Onset Alzheimer’s Dementia and Frontotemporal Dementia

Subjektive Theorien zu Lebensqualität und Gesundheit im Alter

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