Quality of life in caregivers providing care for lung transplant candidates

Lefaiver, Cheryl; Keough, Vicki; Letizia, Marijo; Lanuza, Dorothy M.

doi:10.7182/prtr.19.2.g226182714730n07

Cited by 10 publications

(23 citation statements)

References 43 publications

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“…Studies have shown that caregivers providing care for family diagnosed with cancer often benefit from being employed (Kim et al, 2006;Lefaiver et al, 2009). Working while caring for family members may offer respite for caregivers, provide opportunities to refresh psychological resources and concentrate on something other than their responsibilities at home.…”

Section: Discussionmentioning

confidence: 99%

Lived experiences of nurses as family caregivers in advanced cancer

Cicchelli¹,

McLeod²

2011

CONJ

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Section: Discussionmentioning

confidence: 99%

Lived experiences of nurses as family caregivers in advanced cancer

Cicchelli¹,

McLeod²

2011

CONJ

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“…During the waiting period, relatives tend to forsake their own needs, activities and friends in their daily life (8,14,15) and they experience an increased caregiver burden (16,17). Studies have shown economic strain for more than half of the relatives of patients on the waiting list (18,19). Therefore, different types of support and information are a matter of great importance for the relatives (8,20,21).…”

Section: Introductionmentioning

confidence: 99%

“…Transplant patients and their relatives felt that they had experienced something unique at the same time, which might contribute to a positive connectedness (9). Therefore it is important that healthcare professionals understand that patients and relatives undergo the process together (19). Despite the importance of relatives, healthcare professionals, to a great extent focus only on the needs of the patient (23).…”

mentioning

confidence: 99%

Relative's experiences before and after a heart or lung transplantation

2014

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Relative's experiences before and after a heart or lung transplantation.Ivarsson, Bodil; Ekmehag, Björn; Sjöberg, Trygve Relative's experiences before and after a heart or lung transplantation. Heart & Lung, 43(3), 198-203. DOI: 10.1016/j.hrtlng.2014 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal Take down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim. 1Relative's experiences before and after a heart or lung transplantation Bodil Ivarsson, RN, PhD (1,2) Björn Ekmehag, MD, PhD, (3), Trygve Sjöberg, PhD (1) Department of Cardiothoracic Surgery, Lund University and Skåne University Hospital (1) and Medical Services, Lund (2)

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“…Most relatives also report economic strain because of loss of income, extra costs of transportations and accommodation associated with medical visits during the period of care (Lefaiver et al, 2009, Rodrigue and Baz, 2007, Ulrich et al, 2004. While waiting, relatives tend to disregard their own needs, hobbies, and friends (Bohachick et al, 2001, Kurz, 2002, Meltzer and Rodrigue, 2001) and relatives experience an increased workload (Kurz, 2001, 4 McCurry and Thomas, 2002).…”

Section: Introductionmentioning

confidence: 99%

“…Healthcare professionals must be aware that most patients do not undergo the process alone but also have relatives and therefore healthcare professionals must give these persons targeted information and support (Lefaiver et al, 2009). In the nursing process, Travelbee (1971) stated that it is important to pay attention to relatives, acknowledge their significant support and the importance of their presence.…”

Section: Introductionmentioning

confidence: 99%

Waiting for a heart or lung transplant: Relatives’ experience of information and support

Ivarsson¹,

Ekmehag²,

Sjöberg³

2014

Intensive and Critical Care Nursing

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Waiting for a heart or lung transplant: Relatives' experience of information and support.Ivarsson, Bodil; Ekmehag, Björn; Sjöberg, Trygve Link to publication Citation for published version (APA): Ivarsson, B., Ekmehag, B., & Sjöberg, T. (2014). Waiting for a heart or lung transplant: Relatives' experience of information and support. Intensive & Critical Care Nursing, 30(4), 188-195. DOI: 10.1016/j.iccn.2014 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal 1 WAITING FOR A HEART OR LUNG TRANSPLANT: RELATIVES' EXPERIENCE OF INFORMATION AND SUPPORT Abstract ObjectivesTo describe the relatives' experiences of information and support while the heart or lung transplant candidates were waiting for a heart or lung transplantation. Methodology/designThe critical incident technique was used. Incidents were collected via interviews with 18 relatives (28-73 years old) of heart or lung transplant patients within four weeks of the patients being accepted onto the transplant waiting list. FindingssA total of 286 important events, both positive and negative, were identified and divided into two main areas: "Experiencing information and support" and "Reflecting upon information and support." "Experiencing information and support" was associated with "dissatisfaction with the health-care system", "being relatively satisfied", "supporting patients" and "the role of social networks." "Reflecting upon information and support" was associated with "finding strength" and "uncomfortable with emotions". Relatives experiences suggest that needs can be met through specific targeted information and support for them as well as mediating contact to previously transplanted persons. ConclusionThe findingss indicate a gap between the information and support that relatives need and receive, and that more attention should be paid to information and support for this group. By increasing awareness among healthcare professionals and the community, interventions can be developed that benefit relatives.

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Quality of life in caregivers providing care for lung transplant candidates

Cited by 10 publications

References 43 publications

Lived experiences of nurses as family caregivers in advanced cancer

Lived experiences of nurses as family caregivers in advanced cancer

Relative's experiences before and after a heart or lung transplantation

Waiting for a heart or lung transplant: Relatives’ experience of information and support

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