Quality of life in cancer patients--an hypothesis.

Calman, Kenneth C.

doi:10.1136/jme.10.3.124

Cited by 966 publications

(581 citation statements)

References 8 publications

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“…In addition to crisis theory, a number of other theoretical frameworks may be useful in explaining adaptation processes, including judgment theories such as Helson's adaptation level theory (Helson, 1964;De Haes and Van Knippenberg, 1985;Brickman et al, 1978;Parducci, 1995) and social comparison theories (Festinger, 1954;Taylor and Lobel, 1989;Van der Zee et al, 1995); control theories (Powers, 1978) such as the self-regulation theory (Carver and Scheier, 1982;Leventhal and Nerenz, 1983); discrepancy theories (Calman, 1984;Michalos, 1985); uncertainty in illness theory (Mishel 1988;Padilla et al, 1992); stresscoping theories (Lazarus and Folkman, 1984;Folkman, 1997); and response shift theories (Breetvelt and Van Dam, 1991;Howard et al, 1979;Golembiewski et al, 1976;Sprangers and Schwartz, 1999). While these theories vary widely in level of abstraction and breadth of coverage, they make important and convincing attempts to explain changes in perceived QL.…”

Section: Discussionmentioning

confidence: 99%

Explaining quality of life with crisis theory

Sprangers

Tempelaar²,

Heuvel³

et al. 2002

Psycho-Oncology

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Based on the premises of crisis theory, we expected cancer patients in‐crisis to report a poorer quality of life (QL) and cancer patients post‐crisis to report a similar level of overall QL in comparison to healthy individuals. To explain these hypothesized findings, we expected the coping resources and strategies of patients in‐crisis to be equally effective and those of patients post‐crisis to be more effective as compared to those of healthy individuals.The sample consisted of: (a) 217 consecutive cancer patients in the acute phases of their illness (patients in‐crisis); (b) 192 disease‐free cancer patients (patients post‐crisis); and (c) 201 randomly selected healthy individuals. Established measures of QL, self‐esteem and neuroticism (coping resources) and coping behavior (coping strategies) were mailed. As expected, patients in‐crisis reported a poorer QL (p<0.001) and patients post‐crisis a similar overall QL as compared to healthy individuals. There were no significant or systematic differences between the mean levels of coping resources and strategies between the respective groups. Two‐way analysis of variance indicated a group X coping resource interaction effect on overall QL for self‐esteem (p<0.01). As expected, the amount of variance of overall QL explained by self‐esteem was largest for patients post‐crisis (27%) and comparable for patients in‐crisis and healthy individuals (10 and 11%). Patients in‐crisis were not able to make their coping resources and strategies more effective, whereas patients post‐crisis seemed to have enhanced the effectiveness of self‐esteem in restoring their QL as compared to healthy persons. Copyright © 2002 John Wiley & Sons, Ltd.

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Section: Discussionmentioning

confidence: 99%

Explaining quality of life with crisis theory

Sprangers

Tempelaar²,

Heuvel³

et al. 2002

Psycho-Oncology

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“…Only few studies ask for sexual satisfaction as an area of subjective QL. Subjective QL reflects the difference between an individual's hopes, expectations, and desires and what he or she considers as reality (Calman, 1984).…”

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confidence: 99%

Subjective quality of life and sexual functioning after germ-cell tumour therapy

et al. 2003

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Purpose: To evaluate the influence of germ-cell tumour therapy on sexual functioning and subjective quality of life (QL). To investigate the communication about sexual problems between patients, their partners, and doctors. In all, 474 patients treated for germ-cell tumours at the Department of Internal Medicine III, Ludwig-Maximilians-University Munich, from 1979 to 2000 were asked to complete a self-report questionnaire concerning psychosocial dimensions and subjective QL (QLS; Henrich and Herschbach, 2000). In total, 341 patients returned a completed questionnaire (response rate, 71.9%). The median age at survey was 41.9 years and the median follow-up period after therapy was 9.6 years. Persisting sexual sequelae were lower than in the current literature: decreased sexual desire (7.1%), erection (10.0%), orgasm (10.2%), ejaculation (28.8%), sexual activity (8.5%), and sexual satisfaction (4.8%). In QL the satisfaction with 'friends/acquaintances' (Po0.001) and 'family life/children' (Po0.001), is lower than in the healthy population. Correlations between functional scales and subjective QL were highly significant. There is a strong correlation between sexual satisfaction and global life satisfaction (Spearman's Rho: 0.48; Po0.01). A total of 61.4% of patients were not offered communication about sexual problems by their doctors and 21.2% were unable to talk with their partner about sexual issues. In conclusion, moderating psychosocial variables (e.g. personality factors, cognitive processes) should be investigated to clarify the relationship between life satisfaction (subjective QL) and functional impairments. Communication about sexual problems should be offered as a standard to patients treated for germ-cell tumours.

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“…A QV sofre influência de vários fatores relacionados a: estratégias de adaptação psicossocial 10 , traços de personalidade do indivíduo 11 , sua história e expectativas em relação a vida 12 , seu auto-conceito 10 e auto-eficiência 13 , suporte social que recebe das pessoas que lhe são significativas 13 , seu locus de controle 10-13-14-15 e percepção de controle de crises. Dentre estes fatores, esta última foi a variável subjetiva pesquisada neste estudo.…”

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Qualidade de vida em epilepsia e percepção de controle de crises

Salgado

Souza

2001

Arq. Neuro-Psiquiatr.

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RESUMO -As avaliações afetivo-cognitivas do sujeito são importantes fatores que controlam a maneira como o indivíduo sente o impacto da doença no cotidiano de sua vida. Neste sentido, a percepção de controle de crises é mais importante na avaliação da Qualidade de Vida (QV) do que as variáveis que caracterizam a doença, como sua severidade, tipo, duração e frequência de crises. Este estudo considerou a relação das variáveis subjetivas (percepção de controle de crises) e das características da doença, para avaliar a QV. .oram avaliados 60 sujeitos com diagnóstico de epilepsia, aleatoriamente selecionados no ambulatório de epilepsia do HC/UNICAMP, com idade entre 18 e 70 anos (M=37,05; DP=11,25), através do Questionário de Qualidade de Vida 65. As variáveis da doença não apresentaram relação significativa com a QV, com exceção da frequência de crises que apareceu associada à piora na QV, entre crises controladas e crises com frequência acima de 10 por mês (p=0,021). A percepção do controle de crises apareceu significantemente associada à QV (p= 0,005).PALAVRAS-CHAVE: qualidade de vida, percepção de controle de crises, epilepsia. Quality of life in epilepsy and perception of seizures controlABSTRACT -The individual affective-cognitive evaluations are important factors that control the way he feels the disease impact in his life. Then, the perception of seizure control is a more important factor to evaluate Quality of Life (QoL) than the illness characteristics, such as the severity, type, sickening period and seizure frequency. This study searched for the relationship among the subjective variables (perception of seizure control) and the illness characteristics to evaluate QoL. The sample consisted of 60 individuals with chronic epilepsy, aging 18 to 70 (M=37.05; SD=11.25), chosen at randon from the ambulatory of epilepsy -HC/ UNICAMP, by the Questionnaire 65. The illness characteristics were not significant, except the seizures frequency, when associated to the impairment in QoL among controlled seizures and seizures with frequency higher than 10 per month (p=0.021). The perception of control was significantly associated to QoL (p=0.005).KEY WORDS: quality of life, perception of seizures control, epilepsy. A epilepsia não pode ser considerada um estado, ela é um distúrbio episódico; no entanto, é um distúrbio estigmatizado 1 . Devinsky e Penry 2 apontam para a diferenciação existente entre crise e epilepsia. Segundo os autores, a crise tem um limite de duração, ela termina, enquanto que a epilepsia, para muitas pessoas, é uma condição crônica, que limita os pacientes em suas atividades diárias. A epilepsia afeta cada pessoa de forma diferente. Apenas os portadores de epilepsia percebem as limitações e restrições de cada dia. Todas as crises tem um significado dependente da história de vida de cada sujeito, determinando assim padrões de resposta em relação à doença. A epilepsia tem um impacto maior na saúde mental e social do que na saúde física, comparando-a com outras doenças crônicas 3 . Uma doença crônica afeta...

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Quality of life in cancer patients--an hypothesis.

Cited by 966 publications

References 8 publications

Explaining quality of life with crisis theory

Explaining quality of life with crisis theory

Subjective quality of life and sexual functioning after germ-cell tumour therapy

Qualidade de vida em epilepsia e percepção de controle de crises

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