Quality of life in adults with sickle cell disease: an integrative review of the literature

Freitas, Sandra; Ivo, Maria Lúcia; Figueiredo, Maria Stella; Gerk, Maria Auxiliadora de Souza; Nunes, Cristina Brandt; Monteiro, Fernando de Freitas

doi:10.1590/0034-7167-2016-0409

Cited by 29 publications

(26 citation statements)

References 25 publications

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“…The sociodemographic characteristics of the pre-final sample in this study on the PMQ were similar to those of other investigations of patients with sickle cell anemia, highlighting the prevalence of single women, low schooling levels, poor physical condition and associated diseases. This corroborates the studies of [29] and [30], revealing a significant effect on a number of phases of life [3, 31–33]. There were no significant differences in age and sex for PMQ scores, similarly to that observed by [19].…”

Section: Discussionsupporting

confidence: 92%

Cross-cultural adaptation of the Pain Medication Questionnaire for use in Brazil

Galindo¹,

Marinho²,

Gatchel³

et al. 2019

BMC Med Res Methodol

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Background The Pain Medication Questionnaire (PMQ) assesses the risk of opioid abuse in people with non-oncological chronic pain. Methods This is a methodological study conducted at a hemotherapy centre in Recife, Pernambuco state, Brazil. A Cross-cultural adaptation was carried out by a committee of nine specialists, and we applied the PMQ to a pre-final sample of 40 individuals with sickle cell anemia, in addition to a sociodemographic and clinical questionnaire. Results The mean agreement indexes for PMQ equivalences were the following: semantic (0.996), idiomatic (0.970), experiential (0.991), conceptual (0.953), language clarity (0.991), practical relevance (0.906), and theoretical relevance (0.945). Assessment of the PMQ showed that 50% of participants obtained a score equivalent to medium risk of opioid abuse. Cronbach’s alpha coefficient for the adapted PMQ instrument was 0.705, ranging from 0.641 to 0.736 among its items. Conclusion The cross-cultural adaptation of the Pain Medication Questionnaire was satisfactory and easy to apply in the Brazilian population. It is clinically relevant, contributing professional practice and enlightening patients with sickle cell anemia on their behavioral dynamics with respect to opioid consumption. It will also contribute to teaching and research, because it is a useful tool for investigating the risk of abusive behavior in people with chronic pain.

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Section: Discussionsupporting

confidence: 92%

Cross-cultural adaptation of the Pain Medication Questionnaire for use in Brazil

Galindo¹,

Marinho²,

Gatchel³

et al. 2019

BMC Med Res Methodol

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“…This is consistent with previous studies in the United States, Brazil and other countries that have reported unemployment rates of 25-81% among SCD adults [22,23]. The frequent medical visits and hospitalizations, as well as pain episodes contribute to missing work days and potentially neurocognitive effects of SCD all likely to contribute to this finding [24]. Our study has limitations.…”

Section: Discussionsupporting

confidence: 91%

Characterization of HIV risks in a Brazilian sickle cell disease population

et al. 2020

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Background A low prevalence of HIV in sickle cell disease (SCD) patients has been reported in the literature though mechanisms for this are not understood. Methods HIV risk behaviors were compared between SCD cases and non-SCD controls using a self-administered audio computer-assisted self-interview. SCD cases were recruited from a multi-center SCD cohort established in Brazil; controls were recruited from SCD social contacts. Categorical variables were analyzed using Chi-Square or Fisher exact test. Continuous variables were compared using the Mann-Whitney U test. Results There were 152 SCD cases and 154 age/location matched controls enrolled at three participating Brazilian centers during 2016–17. No significant differences in number of sexual partners (lifetime or previous 12 months), male-to-male sex partners or intravenous drug use were observed. Cases received more transfusions, surgeries, and acupuncture treatment. Conclusions Besides the risk of transfusion-transmitted HIV, which is now exceedingly rare, SCD and non-SCD participants demonstrated similar HIV risk behaviors. Causes other than risk behaviors such as factors inherent to SCD pathophysiology may explain the reported low prevalence of HIV in SCD.

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“…Sickle cell disease is characterized by chronic hemolysis, recurrent pain episodes (which are described as sickle cell-related pain crises or vaso-occlusive crises, multiorgan dysfunction, and premature death. If these crises can be minimized, the risk of death of SCD patients can be minimized as well (13,14). A bone marrow transplantation list has been declared by the Turkish Social Security Institution, who also define frequent painful crises as 3 or more painful attacks experienced a year, and rare painful crises as less than three painful attacks experienced a year (15).…”

Section: Discussionmentioning

confidence: 99%

Evaluation of The Effect of Mortality, Life Expectancy and Treatment Modalities of Sickle Cell Patients on Mortality

Kaya¹

2020

Erciyes Med J

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Quality of life in adults with sickle cell disease: an integrative review of the literature

Cited by 29 publications

References 25 publications

Cross-cultural adaptation of the Pain Medication Questionnaire for use in Brazil

Cross-cultural adaptation of the Pain Medication Questionnaire for use in Brazil

Characterization of HIV risks in a Brazilian sickle cell disease population

Evaluation of The Effect of Mortality, Life Expectancy and Treatment Modalities of Sickle Cell Patients on Mortality

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