Quality of life in adolescents and young adults with CHD is not reduced: a systematic review and meta-analysis

Schrøder, Morten; Boisen, Kirsten A; Reimers, Jørgen; Teilmann, Grete; Brok, Jesper

doi:10.1017/s104795111500181x

Cited by 30 publications

(31 citation statements)

References 48 publications

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“…The results highlight that even after surgical intervention, children and young adult patients with complex CHD had worse cardiac-related HRQOL compared with those with moderate and mild CHD. The review also provides an update to existing reviews on general HRQOL, important in this rapidly changing field 9. The findings demonstrate that postoperative patients with CHD have worse overall and domain-specific HRQOL than their age-matched healthy controls.…”

Section: Discussionmentioning

confidence: 95%

“…Several meta-analyses on HRQOL for patients with CHD have identified worse cognitive functioning and more distress postoperatively in children and adolescents,8 and worse physical functioning in adolescents9 and adults,10 particularly in complex CHD. However, inconsistencies are present, with one meta-analysis indicating no difference in HRQOL for people with CHD and their age-matched controls 9.…”

Section: Introductionmentioning

confidence: 99%

“…However, inconsistencies are present, with one meta-analysis indicating no difference in HRQOL for people with CHD and their age-matched controls 9. No meta-analysis was found that focused on cardiac-related HRQOL in children and young adults with CHD following surgical correction; an important gap given most CHD surgical patients require lifelong medical and/or cardiac care.…”

Section: Introductionmentioning

confidence: 99%

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Health-related quality of life in congenital heart disease surgery in children and young adults: a systematic review and meta-analysis

et al. 2018

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Section: Discussionmentioning

confidence: 95%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Health-related quality of life in congenital heart disease surgery in children and young adults: a systematic review and meta-analysis

et al. 2018

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“…The first meta‐analysis on QoL in CHD was published in 2015 . Schroder et al included studies on adolescents or young adults with mild, moderate or complex CHD and reported QoL as a single index score.…”

Section: Introductionmentioning

confidence: 99%

Quality‐of‐life research in adult patients with congenital heart disease: current status and the way forward

Moons

Luyckx

2019

Acta Paediatrica

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Over the past four decades, the number of papers on quality of life (QoL) in congenital heart disease (CHD) has grown exponentially. However, firm conclusions have been hard to draw, because conceptual issues occurred and methodological differences prevented direct comparisons of studies. In general, QoL in CHD patients is good and it can be even better than in healthy peers when measured as life satisfaction. When QoL is measured as physical functioning, patients with complex CHD do worse than patients with moderate or mild defects or healthy individuals. APPROACH-IS was a large-scale international project that confirmed international variations in QoL, with Australian patients reporting the best QoL. Poor QoL was predicted by older age, being a job seeker, unemployed or disabled, never having married and those with worse functional status. Perceived illness and religion and spirituality were also significant predictors for QoL. On the other hand, country-specific characteristics and healthcare system factors did not play a significant role in explaining variances in QoL of patients with CHD around the globe. Future studies should rely on a sound conceptual basis, use longitudinal research designs, be conducted in international, multi-centre settings and evaluate interventions that promote patients' QoL.

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“…With the majority of patients born with congenital heart disease (CHD) nowadays surviving into adulthood [1,2], there has been increasing interest in the study of quality of life (QOL) in adults with congenital heart disease (ACHD) [3,4]. An initial QOL study in Maltese ACHD patients used vitality and mental health questionnaires from the 36-item short-form health survey (SF-36), which had previously been applied to the general Maltese population during the 2008 European Health Interview Survey [5].…”

Section: Introductionmentioning

confidence: 99%

Quality of life in Maltese Adults with Congenital Heart Disease: a Second Look – An APPROACH-IS Substudy

Caruana

Moons

Kovacs

et al. 2018

ICFJ

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HighlightsBackground A first quality of life (QOL) study among Maltese adults with congenital heart disease (ACHD) in 2016 found no significant differences when compared to the general population. The aims of the present study were to (1) compare QOL between Maltese and other European ACHD patients and (2) investigate medical predictors (i.e. number of surgical/non-surgical interventions, heart failure, arrhythmias, pacemaker/implantable cardioverter-defibrillator, cardiac hospitalisation during preceding year, follow-up frequency, other medical conditions, mood/anxiety/psychiatric disorders) of QOL in Maltese patients. MethodsData collected during "Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease-International Study" (APPROACH-IS) was used. QOL was measured using linear analog scale (LAS) and Satisfaction With Life Scale (SWLS). QOL in 109 Maltese and 1510 European participants was compared. Multivariable logistic regression was used to test the predictive value of medical factors on QOL in Maltese patients. ResultsThere were no significant differences in QOL between the two cohorts [mean LAS Malta 80.51 (95% CI 77.96,83.07) vs. European 79.43 (95% CI 78.65,80.21) (p=0.776); mean SWLS Malta 26.00 (95% CI 24.94,27.06) vs. European 26.26 (95% CI 25.95,26.57) (p=0.288)] and no significant differences when cohorts were divided by gender and age. Only a mood/anxiety/other psychiatric disorder significantly predicted poorer QOL on both scales in Maltese patients (LAS (ß=-.389, p<0.001), SWLS (ß=-.352, p=0.001)).

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Quality of life in adolescents and young adults with CHD is not reduced: a systematic review and meta-analysis

Abstract: For the first time in a meta-analysis, we have shown that quality of life in adolescents and young adults with CHD is not reduced when compared with age-matched controls.

Cited by 30 publications

References 48 publications

Health-related quality of life in congenital heart disease surgery in children and young adults: a systematic review and meta-analysis

Health-related quality of life in congenital heart disease surgery in children and young adults: a systematic review and meta-analysis

Quality‐of‐life research in adult patients with congenital heart disease: current status and the way forward

Quality of life in Maltese Adults with Congenital Heart Disease: a Second Look – An APPROACH-IS Substudy

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