Quality of life impact of childhood skin conditions measured using the Children's Dermatology Life Quality Index (CDLQI): a meta-analysis

Olsen, Jonathan; Gallacher, John; Finlay, Andrew Y.; Piguet, Vincent; Francis, Nick

doi:10.1111/bjd.14361

Cited by 96 publications

(87 citation statements)

References 69 publications

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“…Although previous studies investigated the impact of AD on children and their family [8910], little is known in dynamics among various factors associated with QoL in children and their family, particularly severity of disease and psychosocial aspects of parents such as life satisfaction and parenting stress. Therefore, this study aimed to examine the family QoL and associated factors of children with AD and parents, particularly focused on disease severity and psychosocial factors of parents.…”

Section: Introductionmentioning

confidence: 99%

Family quality of life among families of children with atopic dermatitis

Jang

Hwang

Ahn

et al. 2016

Asia Pacific Allergy

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BackgroundAtopic dermatitis (AD) may cause emotional distress and impairs the quality of life (QoL) in children and their families.ObjectiveWe examined family QoL of children with AD and explored associated factors such as disease severity and psychosocial factors among parents of children with AD.MethodsStudy participants were 78 children (1 month to 16 years old) diagnosed with AD and their parents visiting an outpatient clinic of the Department of Pediatrics in Inha University Hospital. Data were collected using structured questionnaires and medical record review. Parents completed the Dermatitis Family Impact questionnaire (DFI), the Positive Affect and Negative Affect Schedule, the Satisfaction with Life Scale, and the Korean Parenting Stress Index. For children aged below 6-year-old, parents were asked to complete the Infants' Dermatologic Quality of Life. SCOring Atopic Dermatitis (SCORAD), Children's Dermatology Life Quality Index, and the Pediatric Quality of Life Inventory version 4.0 Generic Core Scale were also completed.ResultsThe mean age of parents and children were 37.4 ± 5.3 years and 65.1 ± 45.7 months, respectively. Among them, 87.2% of parents were mothers and 60.3% of children were boys. The mean score of DFI was 11.2 ± 6.0. The mean SCORAD score was 28.3 ± 16.1. Family who experienced strong negative emotionality had a 3.8 times higher probability of experiencing a lower QoL than parents who did not (odds ratio [OR], 3.82; p = 0.041). Family of children with higher severity of AD had a 6.6 times (OR, 6.55; p = 0.018) higher probability of experiencing a low family QoL than their less-severe counterparts. Families of girls with AD had a lower QoL (OR, 8.40; p = 0.003) than families of boys.ConclusionFamily QoL among parents of children with AD was low and associated with parent’s psychosocial characteristics as well as disease severity of the children. Considering parental involvement in AD management for children, emotional support for parents can be helpful in long journey of disease management.

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Section: Introductionmentioning

confidence: 99%

Family quality of life among families of children with atopic dermatitis

Jang

Hwang

Ahn

et al. 2016

Asia Pacific Allergy

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“…Although most psoriasis‐related HRQoL research has been focused on adult patients, there is increased interest in HRQoL in paediatric patients . Two recent meta‐analyses indicate moderate HRQoL impairment in paediatric patients with psoriasis comparable with that found for paediatric patients with eczema, and greater impairment than found in most paediatric skin diseases . As no psoriasis‐specific instrument currently exists for this population, studies have relied on generic or dermatology‐specific instruments.…”

mentioning

confidence: 99%

Health-related quality of life in adolescents with psoriasis: an interview-based study

et al. 2018

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SummaryBackground Psoriasis is a common skin disease affecting the physical, psychological and social well-being of patients and their families. Most research so far has been limited to adults, and little is known about the qualitative experiences of young people with psoriasis. Objectives To provide an in-depth understanding of the impact of psoriasis on adolescents' health-related quality of life (HRQoL). Methods Patients and their parents were recruited from a dermatology outpatient clinic, the Danish National Birth Cohort and the Danish Psoriasis Association. Thirty-six semistructured interviews were conducted with adolescents with psoriasis aged 12-17 years (n = 18), their parents (n = 14) and health professionals working with psoriasis (n = 4). Interviews were digitally recorded, transcribed verbatim and analysed using inductive thematic analysis. Results The participants reported psoriasis-related HRQoL challenges within six main themes: physical symptoms, feeling different, psoriasis-related worry about the future, increased attention, attempts to conceal skin, and treatment-related frustrations and worry. Taken together, a broad range of the reported difficulties appeared to arise from appearance-related concerns. The impact of psoriasis and its treatment on the adolescents' daily lives varied considerably. Conclusions This first in-depth, qualitative study of HRQoL in adolescents with psoriasis provides a conceptual framework for understanding the impact of psoriasis and its treatment on the physical, psychological and social aspects of their daily lives.

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“…Evaluating published CDLQI scores for a range of childhood skin conditions in 4082 people with AE, Olsen et al . found a mean ‘moderate’ effect of AE on HRQoL.…”

Section: Disease Impactmentioning

confidence: 99%

What's new in atopic eczema? An analysis of systematic reviews published in 2016. Part 3: nomenclature and outcome assessment

et al. 2019

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Summary This review forms part of a series of annual updates that summarize the evidence base for atopic eczema (AE). It presents the key findings from 11 systematic reviews published in 2016 that focus on AE outcome assessment, disease impact and nomenclature. Systematic reviews on the treatment and prevention of AE are summarized in Part 1 of this update, and systematic reviews on the epidemiology of and risk factors for AE are summarized in Part 2. Six reviews summarized what outcome measurement instruments have been used in published AE trials, or summarized validation studies for the available instruments. These reviews were used to inform consensus decisions by the Harmonising Outcome Measures for Eczema initiative. Although validated instruments exist for clinical signs and patient‐reported symptoms, there are currently no validated instruments for capturing quality of life or long‐term control. Four reviews examined the impact of AE on children and their families, but few studies were included. One birth cohort study found no association between AE and educational attainment at 11 years. AE has a moderate impact on health‐related quality of life and a substantial impact on family life. AE is a major risk factor for occupational hand dermatitis, and it is advised that young atopic individuals are informed about high‐risk occupations. Further efforts are required to standardize the nomenclature for AE, which is also commonly known as ‘atopic dermatitis’ or ‘eczema’, and preferred terms vary around the world.

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Quality of life impact of childhood skin conditions measured using the Children's Dermatology Life Quality Index (CDLQI): a meta-analysis

Cited by 96 publications

References 69 publications

Family quality of life among families of children with atopic dermatitis

Family quality of life among families of children with atopic dermatitis

Health-related quality of life in adolescents with psoriasis: an interview-based study

What's new in atopic eczema? An analysis of systematic reviews published in 2016. Part 3: nomenclature and outcome assessment

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