Quality of life from childhood to adulthood: Perspectives from adult patients with pediatric‐onset intestinal failure
Marie L. Neumann,
Swapna Kakani,
Amy Ladner
Abstract:Adult patients with pediatric onset short bowel syndrome (SBS) or intestinal failure (IF) have been described as a distinct population warranting further research. The aim of this exploratory study aimed was to offer initial insights into this population's navigation of childhood, adolescence, and transition into adulthood. Both quantitative and qualitative data were collected from a convenience sample of adults with pediatric‐onset SBS/IF using a disease‐specific pilot survey; 14 questionnaires were completed… Show more
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