Quality of Life - Exemplified through Patients Living with Atrial Fibrillation

Høgh, Vibeke; Delmar, Charlotte; Riahi, Sam; Frederiksen, Kirsten

doi:10.4172/2167-1168.1000150

Cited by 5 publications

(4 citation statements)

References 68 publications

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“…13 Existing publications discuss HRQOL in atrial fibrillation with regard to treatment strategies 16,17 or the impact of socio-demographic and clinical variables. 18,19 However, to the best of our knowledge, none of the previous studies dealt with the relationship between acceptance of illness and HRQOL of atrial fibrillation patients.…”

Section: Introductionmentioning

confidence: 99%

Symptoms, acceptance of illness and health-related quality of life in patients with atrial fibrillation

Jankowska‐Polańska

Kaczan

Lomper

et al. 2017

European Journal of Cardiovascular Nursing

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Section: Introductionmentioning

confidence: 99%

Symptoms, acceptance of illness and health-related quality of life in patients with atrial fibrillation

Jankowska‐Polańska

Kaczan

Lomper

et al. 2017

European Journal of Cardiovascular Nursing

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“…Following the compilation of a list of possible PROMs, we undertook a rigorous evaluation of the identified PROMs that included an assessment of the overall validity of the PROMs, their content validity in terms of appropriateness of questions relating to bleeding events with AF, and how widely the PROM had previously been used in AF. This was informed by existing literature46 47 and included a clear justification as to why the PROM was used 48. In selecting the PROMs, we were also mindful to ensure the burden to participants was kept to a minimum, so also explored the number of questions within relevant PROMs.…”

Section: Methodsmentioning

confidence: 99%

“…This was informed by existing literature 46 47 and included a clear justification as to why the PROM was used. 48 In selecting the PROMs, we were also mindful to ensure the burden to participants was kept to a minimum, so also explored the number of questions within relevant PROMs. We worked with the two public and patient involvement representatives when assessing the PROMs for help in considering their usefulness to the study.…”

Section: Methodsmentioning

confidence: 99%

Can we collect health-related quality of life information from anticoagulated atrial fibrillation participants who have recently experienced a bleed? An observational feasibility study in primary and secondary care in Wales and through a UK online forum

Hutchings,

Lanyon,

Holland

et al. 2023

BMJ Open

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ObjectiveTo evaluate the feasibility of recruiting participants diagnosed with atrial fibrillation (AF) taking oral anticoagulation therapies (OATs) and recently experiencing a bleed to collect health-related quality of life (HRQoL) information.DesignObservational feasibility study. The study aimed to determine the feasibility of recruiting participants with minor and major bleeds, the most appropriate route for recruitment and the appropriateness of the patient-reported outcome measures (PROMs) selected for collecting HRQoL information in AF patients, and the preferred format of the surveys.SettingPrimary care, secondary care and via an online patient forum.ParticipantsThe study population was adult patients (≥18) with AF taking OATs who had experienced a recent major or minor bleed within the last 4 weeks.Primary and secondary outcome measuresPrimary outcomes– PROMs: EuroQol 5 Dimensions-5 Levels, Perception of Anticoagulant Treatment Questionnaire, part 2 only (part 2), atrial fibrillation effect on quality of life.Secondary outcomes– Location of bleed, bleed severity, current treatment, patient perceptions of HRQoL in relation to bleeding events.ResultsWe received initial expressions of interest from 103 participants. We subsequently recruited 32 participants to the study—14 from primary care and 18 through the AF forum. No participants were recruited through secondary care. Despite 32 participants consenting, only 26 initial surveys were completed. We received follow-up surveys from 11 participants (8 primary care and 3 AF forum). COVID-19 had a major impact on the study.ConclusionsPrimary care was the most successful route for recruitment. Most participants recruited to the study experienced a minor bleed. Further ways to recruit in secondary care should be explored, especially to capture more serious bleeds.Trial registration numberThe study is registered in the Clinicaltrials.gov database,NCT04921176.

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“…The association between AF and health‐related quality of life is complex . First of all, the population of patients with AF is heterogeneous in terms of symptom burden, diagnosis of AF and/or atrial flutter, duration of the arrhythmia, treatment, age and gender .…”

Section: Introductionmentioning

confidence: 99%

Association between the diagnosis of atrial fibrillation and aspects of health status: a Danish cross‐sectional study

Hoegh

Lundbye‐Christensen

Delmar

et al. 2015

Scandinavian Caring Sciences

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Participants diagnosed with AF report a clinically and statistically significantly lower physical health component score. No systematic differences in the MCS were found when comparing with the remaining participants in the cohort. As healthcare professionals caring for patients living with AF are not always expecting patients living with AF to experience a burden from their disease, the individual patients' experience of their situation, feelings, preferences, symptoms and needs leading to physical limitations should always be articulated.

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Quality of Life - Exemplified through Patients Living with Atrial Fibrillation

Cited by 5 publications

References 68 publications

Symptoms, acceptance of illness and health-related quality of life in patients with atrial fibrillation

Symptoms, acceptance of illness and health-related quality of life in patients with atrial fibrillation

Can we collect health-related quality of life information from anticoagulated atrial fibrillation participants who have recently experienced a bleed? An observational feasibility study in primary and secondary care in Wales and through a UK online forum

Association between the diagnosis of atrial fibrillation and aspects of health status: a Danish cross‐sectional study

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