Quality of Life and Parental Adjustment in Pediatric Pulmonary Hypertension

Mullen, Mary P.; Andrus, Jason M.; Labella, Madelyn H.; Forbes, Peter; Rao, Sneha; McSweeney, Julia; Kulik, Thomas J.; DeMaso, David R.

doi:10.1378/chest.13-0636

Cited by 36 publications

(30 citation statements)

References 30 publications

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“…[629][630][631] In addition, involvement of an experienced PH team during even routine surgical and dental procedures can reduce complications related to anesthesia in children with PH. 78,79,632 Recommendations concerning the potential harm of pregnancy in young women with PH, 633 caution with intense exercise, 134,634 and the availability and use of supplemental oxygen for airplane travel, 635 as well as the growing awareness that family issues are especially critical for childhood disease, 636 are also highlighted. …”

Section: Outpatient Care Of Children With Phmentioning

confidence: 99%

Pediatric Pulmonary Hypertension

Abman¹,

Hansmann²,

Archer³

et al. 2015

Circulation

884

405

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Abstract-Pulmonary hypertension is associated with diverse cardiac, pulmonary, and systemic diseases in neonates, infants, and older children and contributes to significant morbidity and mortality. However, current approaches to caring for pediatric patients with pulmonary hypertension have been limited by the lack of consensus guidelines from experts in the field. In a joint effort from the American Heart Association and American Thoracic Society, a panel of experienced clinicians and clinician-scientists was assembled to review the current literature and to make recommendations on the diagnosis, evaluation, and treatment of pediatric pulmonary hypertension. This publication presents the results of extensive literature reviews, discussions, and formal scoring of recommendations for the care of children with pulmonary hypertension. Key Words: AHA Scientific Statements ◼ bronchopulmonary dysplasia ◼ congenital diaphragmatic hernia ◼ congenital heart disease ◼ genetics ◼ persistent pulmonary hypertension of the newborn ◼ sickle cell disease © 2015 by the American Heart Association, Inc., and the American Thoracic Society.Circulation is available at http://circ.ahajournals.org DOI: 10.1161/CIR.0000000000000329 †Deceased. The American Heart Association and the American Thoracic Society make every effort to avoid any actual or potential conflicts of interest that may arise as a result of an outside relationship or a personal, professional, or business interest of a member of the writing panel. Specifically, all members of the writing group are required to complete and submit a Disclosure Questionnaire showing all such relationships that might be perceived as real or potential conflicts of interest.This document was approved by the American Heart Association Science Advisory and Coordinating Committee on May 12, 2015, the American Heart Association Executive Committee on July 22, 2015, and the American Thoracic Society on July 24, 2015.The online-only Data Supplement is available with this article at http://circ.ahajournals.org/lookup/suppl/doi:10.1161/CIR.0000000000000329/-/DC1. The American Heart Association requests that this document be cited as follows: Abman SH, Hansmann G, Archer SL, Ivy DD, Adatia I, Chung WK, Hanna BD, Rosenzweig EB, Raj JU, Cornfield D, Stenmark KR, Steinhorn R, Thébaud B, Fineman JR, Kuehne T, Feinstein JA, Friedberg MK, Earing M, Barst RJ, Keller RL, Kinsella JP, Mullen M, Deterding R, Kulik T, Mallory G, Humpl T, Wessel DL; on behalf of the American Heart Association Council on Cardiopulmonary, Critical Care, Perioperative and Resuscitation, Council on Clinical Cardiology, Council on Cardiovascular Disease in the Young, Council on Cardiovascular Radiology and Intervention, Council on Cardiovascular Surgery and Anesthesia, and the American Thoracic Society. Pediatric pulmonary hypertension: guidelines from the American Heart Association and American Thoracic Society. Circulation. 2015;132:2037-2099 Copies: This document is available on the World Wide Web site of the American Heart Associat...

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Section: Outpatient Care Of Children With Phmentioning

confidence: 99%

Pediatric Pulmonary Hypertension

Abman¹,

Hansmann²,

Archer³

et al. 2015

Circulation

884

405

View full text Add to dashboard Cite

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“…En relación con nuestros resultados, estos parecen indicar que los estudios que analizan las diferentes estrategias de afrontamiento familiar se centran principalmente sobre acontecimientos estresantes negativos para la familia y que suelen desencadenar algún tipo de crisis familiar, como son la aparición de una enfermedad crónica (16,18,24,29,35,37) , accidentes (17) , discapacidades (8) , pérdida del trabajo y problemas financieros derivados de este (19) , entre otros, y en la mayoría de los casos, son los niños los que las padecen (16,18,20,23,24,29,30,(32)(33)(34)37) .…”

Section: Discussionunclassified

“…Estas fueron: 6 estudios sobre estrategias de afrontamiento familiar en las enfermedades crónicas (16,18,24,29,35,37) , 6 sobre el Trastorno del Espectro Autista (TEA) (20,23,30,(32)(33)(34) , 4 sobre enfermedades mentales (25,27,31,36) , 2 sobre adicciones (22,26) , 2 sobre accidentes y discapacidad (8,17) , 2 sobre reajuste familiar (21,28) , y el restante, sobre la pérdida del trabajo y las dificultades financieras (19) .…”

Section: Dussel Et Al 2011 (19)unclassified

Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Martínez-Montilla

Amador-Marín

Guerra-Martín

2017

eglobal

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Introducción: La salud familiar ha constituido una preocupación para todos aquellos que trabajan con la familia. La forma que tiene la familia de enfrentarse a los acontecimientos y proceso vitales estresantes es conocida como afrontamiento familiar y tiene repercusión en la salud familiar. El objetivo del estudio fue conocer las estrategias de afrontamiento familiar y su relación con la salud familiar. Metodología: Se realizó una revisión de la literatura científica a través de las siguientes bases de datos: PubMed/Medline, SCOPUS, PsycINFO y Dialnet, desde 2010 hasta 2016. Resultados: Las estrategias iniciales de búsqueda identificaron un total de 1074 resultados, siendo finalmente seleccionados 23 estudios. En cuanto a las principales situaciones familiares estresantes fueron: enfermedades crónicas, Trastornos del Espectro Autista (TEA), enfermedades mentales y adicciones, accidentes y discapacidad, reajuste familiar, problemas laborales y financieros. Y las principales estrategias de afrontamiento familiar fueron: positivas como búsqueda de información, búsqueda de apoyo familiar, social o espiritual, aceptación y mejora de la autoestima. Y las negativas fueron negación, ocultación, desconexión, auto-culpa, distanciamiento emocional, consumo de sustancia, entre otros. Conclusiones: Los acontecimientos estresantes alteran el equilibrio dinámico familiar, de ahí la importancia de que la unidad familiar posea buenas estrategias de afrontamiento. Por otro lado, es importante que los profesionales de la salud conozcan los principales estresores, así como las estrategias de afrontamiento familiar positivas, para mediante la promoción de la salud, poder prevenir los problemas derivados de un inadecuado afrontamiento familiar.Palabras clave: Salud de la familia; Estrategias de Afrontamiento; Ajuste psicológico; Salud. ABSTRACT:Introduction: Family health has been a concern for all those working with the family. The way how the family has to face the stressful events and vital process is known as family coping and has impact on family health. The objective of the study was to find family coping strategies and their relationship to family health.

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“…Pediatric pulmonary hypertension (PH) is a severe and often chronic condition 1,2 associated with significantly reduced quality of life for patients, parents, and caregivers. 3 It typically requires lifelong care and is associated with a significant burden of health care costs. 4 Nearly all PH therapies are used off-label in children because evidence for their use is available only from adult data that have been extrapolated to the pediatric population.…”

Section: What This Study Addsmentioning

confidence: 99%

Trends in Hospitalization for Pediatric Pulmonary Hypertension

Maxwell¹,

Nies

Ajuba-Iwuji³

et al. 2015

Pediatrics

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BACKGROUND AND OBJECTIVES: Pulmonary hypertension (PH) has been associated with substantial morbidity and mortality in children, but existing analyses of inpatient care are limited to small single-institution series or focused registries representative of selected patient subgroups. We examined US national data on pediatric PH hospitalizations to determine trends in volume, demographics, procedures performed during admission, and resource utilization.

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Quality of Life and Parental Adjustment in Pediatric Pulmonary Hypertension

Cited by 36 publications

References 30 publications

Pediatric Pulmonary Hypertension

Pediatric Pulmonary Hypertension

Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Trends in Hospitalization for Pediatric Pulmonary Hypertension

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