Quality of life and function following cardiac transplantation in adolescents

Pollock-BarZiv, Stacey M.; Anthony, Samantha J.; Niedra, R; Dipchand, Anne I.; West, Lori J.

doi:10.1016/j.transproceed.2003.08.028

Cited by 40 publications

(34 citation statements)

References 8 publications

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“…A positive pediatric study that was a survey of 10 adolescent HTx recipients reported excellent QOL and perceived well-being compared with norms from healthy adolescents. 18 QOL findings from current studies of adult and pediatric transplant recipients are not generalizable regarding understanding QOL outcomes in young adults who received transplants as children, given the development and transitional challenges associated with becoming young adults. We used the SF-36 because it has normative data.…”

Section: Quality Of Lifementioning

confidence: 92%

Quality of Life in Adult Survivors Greater Than 10 Years After Pediatric Heart Transplantation

Petroski

Grady

Rodgers

et al. 2009

The Journal of Heart and Lung Transplantation

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Section: Quality Of Lifementioning

confidence: 92%

Quality of Life in Adult Survivors Greater Than 10 Years After Pediatric Heart Transplantation

Petroski

Grady

Rodgers

et al. 2009

The Journal of Heart and Lung Transplantation

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“…[45][46][47] Children who receive heart transplants do not uniformly report significant improvements in HRQOL, with those transplanted at older ages reporting lowest HRQOL. [48][49][50] For children, the daily medications and constant surveillance after organ transplantation become particularly challenging as they develop increasing needs for independence and control. However, data suggest that adult survivors of pediatric HT report a good HRQOL.…”

Section: Adverse Eventsmentioning

confidence: 99%

Palliative Care and Cardiovascular Disease and Stroke: A Policy Statement From the American Heart Association/American Stroke Association

Braun¹,

Grady²,

Kutner³

et al. 2016

Circulation

195

143

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AbstrAct:The mission of the American Heart Association/American Stroke Association includes increasing access to high-quality, evidencebased care that improves patient outcomes such as health-related quality of life and is consistent with the patients' values, preferences, and goals. Awareness of and access to palliative care interventions align with the American Heart Association/American Stroke Association mission. The purposes of this policy statement are to provide background on the importance of palliative care as it pertains to patients with advanced cardiovascular disease and stroke and their families and to make recommendations for policy decisions. Palliative care, defined as patient-and family-centered care that optimizes health-related quality of life by anticipating, preventing, and treating suffering, should be integrated into the care of all patients with advanced cardiovascular disease and stroke early in the disease trajectory. Palliative care focuses on communication, shared decision making about treatment options, advance care planning, and attention to physical, emotional, spiritual, and psychological distress with inclusion of the patient's family and care system. Our policy recommendations address the following: reimbursement for comprehensive delivery of palliative care services for patients with advanced cardiovascular disease and stroke; strong payerprovider relationships that involve data sharing to identify patients in need of palliative care, identification of better care and payment models, and establishment of quality standards and outcome measurements; healthcare system policies for the provision of comprehensive palliative care services during hospitalization, including goals of care, treatment decisions, needs of family caregivers, and transition to other care settings; and health professional education in palliative care as part of licensure requirements.

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“…QALYs were calculated based on a previously published assessment of quality of life, the Visual Analog Quality of Life Scale (VAQOL), in adolescents. 11 Using the average score on the VAQOL scale (8.7), life expectancies were multiplied by a factor of 0.87 (utility score). Utility scores are used to measure functional status after transplantation (0 ϭ death, 1 ϭ perfect health).…”

Section: Cost-utility Analysismentioning

confidence: 99%