Quality of life and coping strategies in Lebanese Multiple Sclerosis patients: A pilot study

Farran, Natali; Ammar, Diala; Darwish, Hala

doi:10.1016/j.msard.2015.12.003

Cited by 32 publications

(19 citation statements)

References 25 publications

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“…Also coping strategies used by patients with MS play a key role in adjusting to the disease and affect patient’s overall quality of life. Farran et al [48] found that patients with MS using positive coping strategies had significantly higher scores of quality of life and lower depression. Not coming to terms with the disease, hopelessness, and depression negatively affect the perceptions of quality of life.…”

Section: Discussionmentioning

confidence: 99%

Informing patients with progressive neurological disease of their health status, and their adaptation to the disease

Bužgová

Kozáková

2019

BMC Neurol

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BackgroundProgressive neurological diseases, such as multiple sclerosis, Parkinson’s disease, Huntington’s disease, significantly interfere with patients’ lives, and those of their families. The aim of the research was to establish whether the extent of the information on patients’ health conditions, and the way patients learn this information from doctors affect their adaptation to chronic and progressive diseases.MethodsQualitative methodology was used for a total of 52 participants (patients with progressive neurological diseases, their family members, and health and social workers). Data were collected using individual, in-depth interviews and focus groups. Analysis of data for interpretation, conceptualization, and re-integration was performed by open, axial, and selective coding.ResultsIt was determined that adequate information about patients’ health status, and the use of coping strategies are related to their adaptation to their disease, and consequently, to their quality of life. The participants often considered the extent of the information provided, and the way they were informed to be inadequate. Receiving the diagnosis, the progression of the disease, and the end of life were found to be the most burdensome.ConclusionOur results show that Czech neurologist should develop better communication skills, particularly for informing patients with progressive neurological diseases. Open communication, emotional support, and support in selecting effective coping strategies can help patients adapt more readily to their disease, and improve their quality of life.

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Section: Discussionmentioning

confidence: 99%

Informing patients with progressive neurological disease of their health status, and their adaptation to the disease

Bužgová

Kozáková

2019

BMC Neurol

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“…The disease characteristics, the unpredictable nature of the disease, and functional disabilities experienced by people with MS seems to significantly affect their life (Riazi, Bradshaw, & Playford, 2012). Studies have also found that psychosocial factors such as lower coping, negative mood, reduced self-efficacy, and decreased perceived support effect their life and eventually lead to reduced quality of life in people with MS (Farran, Ammar, & Darwish, 2016). In addition, several studies have found that neuropsychiatric complications such as cognitive impairments and fatigue have major effect on their life (Campbell, Rashid, Cercignani, & Langdon, 2017).…”

Section: Introductionmentioning

confidence: 99%

Living with multiple sclerosis: A Jordanian perspective

Al‐Sharman

Khalil

Nazzal

et al. 2018

Physiotherapy Res Intl

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Background Multiple sclerosis (MS) symptoms are very heterogeneous and may lead to reduced physical, cognitive, and psychosocial functioning that can consequently impair aspects of individual's life. Many studies have examined the living experiences of individuals with MS and its impact on their daily lives. In developing countries and particularly in Jordan, there has been little attempt to conduct studies exploring the experiences of people living with MS. Such knowledge will provide a background to hidden aspects of human concepts, such as culture, perception, and attitudes about chronic diseases. Objective The purpose of this qualitative study was to explore and describe the daily living experiences and challenges of Jordanian individuals with MS. Methods A qualitative design was utilized. Sixteen individuals with MS took part in the study; they were interviewed and divided into 4 focus groups. Conversations were digitally recorded followed by a verbatim transcription. Transcripts were analysed using thematic analysis and validated via researcher triangulation and peer checking. Results Experiences of 16 Jordanian individuals with MS who participated in this study were categorized into the following major themes: (a) experiences related to the disease itself and (b) experiences related to the healthcare system. Disease‐related experiences include physical decline, psychosocial withdrawal, and fear of the future. Participants' experiences with the healthcare system include difficulty of diagnosis, poor communication and rapport with healthcare providers, and lack of awareness about MS and its rehabilitation. Conclusions Findings of this study suggests that more attention should be given to the people with MS in Jordan. In particular, awareness about the disease should be improved among healthcare providers and the general public. Furthermore, rehabilitation services should be emphasized during the management of MS disease.

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“…These results are in accordance with research conducted so far on coping strategies in MS patients. A study performed on 26 individuals in Mexico and 34 individuals in Lebanon, showed that reliance on active coping strategies leads to more positive assessment of quality of life (9,32).…”

Section: Discussionmentioning

confidence: 99%

The influence of personality traits and coping strategies on the quality of life of patients with relapsing-remitting type of multiple sclerosis

et al. 2021

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Introduction/Aim: Multiple sclerosis (MS) is a chronic and progressive autoimmune disease of the central nervous system that can reduce the quality of life. Personality traits and coping strategies are a significant factor in interpersonal variance regarding quality of life. The aim of this study was to examine relations between personality traits and coping strategies in patients with relapsing-remitting (RR) type MS, and to examine relations of personality traits, coping strategies and quality of life in patients with RR type MS. Methodology: Observational cross-sectional study included 66 patients (34 female and 32 male) with clinically definitive MS, based on the McDonald criteria. The following clinical scales were used to examine personality traits, coping strategies and quality of life: Revised NEO Personality Inventory (NEO-PI-R), Coping Strategies Inventory (CSI) and Multiple Sclerosis Quality of Life (MSQOL-54). Results: The average age of the patients was 41.6 ± 7.1 years. Pearson correlation coefficient shows that with regards to coping strategies, the only positive relation exists with neuroticism (r=.502). The correlation is negative between neuroticism, passive coping strategies and quality of life with physical (r=-.284, p<0.05) and mental health (r=-.289, r=-0.358, p<0.05), meaning that the patients with a higher level of neuroticism, and who rely on passive coping strategies, have a worse quality of life. Conclusion: This research shows the importance of personality traits and coping strategy assessments in patients with RR type MS. Participation in cognitive-behavioral therapy, with an accent on active coping strategies, can improve the quality of life in patients with MS.

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Quality of life and coping strategies in Lebanese Multiple Sclerosis patients: A pilot study

Cited by 32 publications

References 25 publications

Informing patients with progressive neurological disease of their health status, and their adaptation to the disease

Informing patients with progressive neurological disease of their health status, and their adaptation to the disease

Living with multiple sclerosis: A Jordanian perspective

The influence of personality traits and coping strategies on the quality of life of patients with relapsing-remitting type of multiple sclerosis

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