Quality of Life Among Patients With Congenital Heart Disease After Valve Replacement

IntroductionPrevalence of congenital heart disease (CHD) has increased in recent years, and patients with CHD have to deal with sequelae of the multiple medical and surgical treatments that can affect different aspects of their life which could be reflected in their quality of life (QoL). In Iran, to the best of our knowledge, QoL of adult patients with CHD has not been investigated, so this study aimed to investigate the QoL of adult patients with CHD referred to two Iranian outpatient settings.MethodsIn 2022, a double center, cross-sectional study was performed on adult patients with CHD receiving out-patient care at Besat Clinic in Kerman, Iran, and Clinic of Shahid Rajaee Hospital in Tehran, Iran. Inclusion criteria were documented diagnosis of CHD based on guidelines, ejection fraction of above 45% and age of 18–55 years. We recruited a sample of 120 individuals using a simple random sampling method. At the day of referring to the adult congenital heart diseases clinic, after ensuring their written consent to participate in the study, we asked patients to fill in two questionnaires of demographic questionnaire and Persian version of the Ferrans and Powers Quality of Life Index. Data were analyzed using descriptive statistics and chi square via SPSS-22.ResultsA total of 101 patients with a mean age of 31.05 years participated in the study. Demographic and socio-economic factors had no significant relationship with the patients’ QoL. But factors related to the disease were significantly different among QoL groups (P-value > 0.05).DiscussionAdults with CHD had a low QoL, which is not related to their demographic and socio-economic factors. That is, the existence of the disease alone and its accompanying complications can affect the QoL of these people. Hence, the mental health of adult patients with CHD should be monitored during their routine cardiac care.

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“…Previous studies (13,36,37) showed that higher FC leads to worse QoL. In our study, FC had the same significant impact (Pvalue = 0.032).…”

Section: Discussionsupporting

confidence: 83%

Quality of life in adult patients with congenital heart disease: Results of a double-center study

et al. 2023

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“…In another study conducted by Kamphuis et al similar findings were reported; health-related quality of life was poorer in patients with the history of complex CHD surgery compared with the general population (27). Pragt et al exhibited that the quality of life in CHD patients with prosthetic valve was lower than the general population (28). Since no statistical significance was observed in the current study, further carefully designed studies with a greater sample size are necessary to demonstrate any potential relationship between age, sex, type of disease, a history of corrective cardiac surgery and satisfaction with life in CHD patients.…”

Section: Discussionmentioning

confidence: 67%

Comparison of Life Satisfaction in Patients with Congenital Heart Diseases

Farzinfar

Abtahi

Ordoubadi

2019

Zahedan J Res Med Sci

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Background: Congenital heart diseases (CHD) constitute a wide range of heart abnormalities. Major advances in surgical treatments have led to a rapidly growing number of surviving individuals. Living well to most people is as important as living longer. Currently, there are few studies on this group of patients regarding their satisfaction with life. Objectives: This study attempts to compare satisfaction with life among CHD patients. Methods: In this cross-sectional study, patients with cyanotic and acyanotic CHD were enrolled. Satisfaction with Life was assessed using SWLS. Results: Eighty patients (52.05% females) with cyanotic (21.3%) and acyanotic CHD were enrolled. The patients with cyanotic CHD were as satisfied with their life as the patients with acyanotic CHD. There were no statistical significant differences between cyanotic and acyanotic patients regarding satisfaction with life. Younger age was associated with a higher degree of satisfaction with life. Women and patients with a history of corrective cardiac surgery were more satisfied with their life. Correlations between satisfaction with life and age and sex were not statistically significant. Conclusions: We found that the patients with cyanotic CHD were as satisfied with their life as acyanotic patients. The results of our study indicate that life satisfaction was not associated with age, sex, and the history of corrective cardiac surgery.

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“…A few strengths of this study are as follows: first, patients after SAVR had severe physical and psychological symptoms, which seriously reduced their QoL (Mair et al, 2012;Pragt et al, 2019).…”

Section: S Tudy S Treng Ths and Limitationsmentioning

confidence: 99%

“…Anxiety, psychological distress and irritability are also commonly experienced (Styra et al, 2020 ; Terrosu et al, 2022 ). In addition, surgical aortic valve replacement (SAVR) is still the standard treatment for AVD patients, but the self‐management ability such as medication compliance, disease management capacity and psychological challenges faced by patients after SAVR may also reduce their original QoL (Mair et al, 2012 ; Pragt et al, 2019 ). The conception of QoL encompasses multiple dimensions, covering physical, psychological, social and mental health indices (Yuan et al, 2021 ).…”

Section: Introductionmentioning

confidence: 99%

Mediating effects of general self‐efficacy on social support and quality of life in patients after surgical aortic valve replacement

et al. 2023

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AimTo explore whether general self‐efficacy can mediate the relationship between social support and quality of life in patients after surgical aortic valve replacement.DesignA cross‐sectional design.MethodsThe final analysis included 283 patients who underwent surgical aortic valve replacement from May 2021 to September 2021. They completed a set of questionnaires, including the Chinese version of the General Self‐Efficacy Scale, the Chinese Questionnaire of Quality of life in Patients with Cardiovascular Diseases and the Social Support Rating Scale. The PROCESS Macro in SPSS was used to analyse the mediating effect.ResultsQuality of life and all of its dimensions were significantly related to social support and general self‐efficacy. A significant indirect effect of social support existed through general self‐efficacy in relation to quality of life with the mediation effect ratio of 32.82%.

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Quality of Life Among Patients With Congenital Heart Disease After Valve Replacement

Cited by 9 publications

References 31 publications

Quality of life in adult patients with congenital heart disease: Results of a double-center study

Quality of life in adult patients with congenital heart disease: Results of a double-center study

Comparison of Life Satisfaction in Patients with Congenital Heart Diseases

Mediating effects of general self‐efficacy on social support and quality of life in patients after surgical aortic valve replacement

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