Quality of life among parents of children with cancer or brain tumors: the impact of child characteristics and parental psychosocial factors

Litzelman, Kristin; Catrine, Kris; Gangnon, Ronald E.; Witt, Whitney P.

doi:10.1007/s11136-011-9854-2

Cited by 101 publications

(90 citation statements)

References 58 publications

(56 reference statements)

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“…Unfortunately, there is even more evidence of the need of effective socioemotional attention in this services (Abu-Saad Huijer et al, 2013;Castillo-Martínez et al, 2009;DeasySpinetta, 1993;Litzelman et al, 2011;Pek et al, 2010), findings to which this work is added. Most of the existing interventions have been oriented to the families, leaving the patients aside; situation that poses a challenge of providing socioemotional attention to the patients, considering it could favor the adaptation and reintegration to their daily contexts.…”

Section: Discussionmentioning

confidence: 90%

“…This justify why most of the existing interventions are designed for caregivers and relatives of children and adolescents with cancer (Fedele et al, 2013;Kazak, 2005;Marsland et al, 2013;Mehranfar et al, 2012;Wakefield et al, 2015). These efforts are not to be dismissed, considering that the parents' pressure and stress directly influence the children and adolescents' clinic characteristics and QOL (Litzelman et al, 2011). The self-esteem level is influenced by many factors, among which is the type of tumor, where other studies have found that children with hematologic malignity tend to have better self-esteem than those with solid tumors that require amputations (Pek et al, 2010).…”

Section: Discussionmentioning

confidence: 99%

“…However, it has not been possible to eliminate symptoms occasioned by the disease or its treatment, which are physical (pain and nausea), psychological (sadness, preoccupations, self-esteem diminution, fear) and social (modifications in school, family and friends environment), which affects directly in the quality of life (Abu-Saad Huijer et al, 2013;Litzelman et al, 2011).…”

mentioning

confidence: 99%

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Sociodemographic Factors and Quality of Life in Children and Adolescents under Cancer Treatment

González-Ramírez¹,

Gómez-Martínez²,

Luna-Flores³

et al. 2017

PSYCH

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The evaluation of quality of life in children and adolescents with cancer has become an increasing necessity, because of the different areas of the patient's and its families lives that get affected by this disease. The aim of this research was to determine the association between quality of life and sociodemographic variables in children and adolescents with cancer and their families. We developed a transversal and analytic study that included a sample of fifty-nine patients from four to 16 years old, along with its parents. The participants answered the KINDL survey in its children, adolescents, and parents versions (α = 0.77). The results indicated that the lower scores of quality of life were in the socioemotional areas, particularly in school. We observed an affectation to quality of life that increases with age. Additionally, differences in the perception of quality of life of the patients and parents were found. This study provides scientific evidence about the necessity to develop personalized and opportune socioemotional interventions for the pediatric oncology services.

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Section: Discussionmentioning

confidence: 90%

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

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Sociodemographic Factors and Quality of Life in Children and Adolescents under Cancer Treatment

González-Ramírez¹,

Gómez-Martínez²,

Luna-Flores³

et al. 2017

PSYCH

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“…Sin embargo, en este estudio no resultaron significativas las correlaciones del tiempo de cuidado con estas variables; esto en coincidencia con Rubira et al (24,50) . Las discrepancias posiblemente se deban a que en cuidadores de niños con cáncer se ha observado esta relación con la calidad de vida y no con trastornos emocionales específicos como los que se evaluaron en el presente estudio (15,25,(57)(58)(59)(60)(61)(62) . Las áreas que más se han afectado en la vida de los cuidadores de la muestra evaluada coinciden con el hecho de que la enfermedad del paciente impacta en la vida familiar, principalmente al aumentar las demandas del cuidador se alteran sus tareas domésticas y la relación que tiene con los otros hijos y con la pareja, lo cual ocasiona redistribución de roles, dificultades en la comunicación, alteraciones en las relaciones sexuales, distanciamientos e incluso infidelidades.…”

Section: Discussionunclassified

“…En el caso del cuidado de un niño con enfermedad crónica se produce un esfuer-zo físico, una limitación financiera, efectos emocionales y un aislamiento social que finalmente impacta la salud física y emocional del cuidador, porque este le da prioridad a las necesidades de su paciente sobre las propias, y toma las decisiones sobre esta base (22)(23)(24) . Esta situación puede llevar al cuidador a que desarrolle adicción al tabaco y/o al alcohol para poder cumplir las demandas del cuidado (25) . Los cuidadores tienen miedo de ser testigos del sufrimiento y dolor de su familiar, a fracasar en su rol, a que las consecuencias negativas asociadas al cuidado afecten su forma de ser, a tomar decisiones equivocadas que lleven como consecuencia el malestar de los familiares.…”

Section: Introductionunclassified

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Pardo¹,

Cárdenas²,

Venegas³

2015

Psicooncología

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ResumenEl propósito del estudio fue identificar las variables psicológicas y las características del cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de niños con cáncer, en un hospital de la ciudad de México. La muestra no probabilística constó de 100 participantes, quienes contestaron una batería integrada por la encuesta de salud para el CPI, la escala de carga del cuidador de Zarit, los inventarios de ansiedad y depresión de Beck, la escala de apoyo familiar para CPI y la escala de modos de afrontamiento al estrés de Lazarus y Folkman. Los resultados confirmaron que las mujeres (en la mayoría de los casos la madre del paciente) actúan como CPI de niños con cáncer. Las variables predictoras de la carga en el modelo de regresión múltiple por pasos fueron la depresión (R 2 =0,228), el número de áreas afectadas en la vida del cuidador (R 2 =0,319) y la ansiedad (R 2 =0,348). En total las tres variables explicaron el 34% de la varianza. Mientras que el estilo de afrontamiento, el apoyo familiar, el tiempo de cuidado del paciente, las horas diarias de cuidado de éste y el número de actividades que realiza no resultaron variables relevantes en la predicción de la carga. Los hallazgos podrían ser útiles para diseñar intervenciones que promuevan el bienestar físico, social y emocional de esta población, previniendo que los cuidadores se conviertan en pacientes.Palabras clave: Niños con cáncer, cuidadores, carga, ansiedad y depresión. AbstractThe purpose of the study was to identify the psychological characteristics and care variables that predict the onset of primary informal caregivers burden (CPI) of children with cancer, in a hospital in Mexico City. The nonrandom sample consisted of 100 participants, who answered an integrated battery conformed by a health interview for the CPI, the load scale for the Zarit caregiver, the anxiety and depression of Beck inventory, the family support for the CPI scale and the scale modes of coping with stress by Lazarus and Folkman. The results confirmed that women react as CPI to children with cancer, and in most cases the patient's mother. The variables of burden model stepwise multiple regressions were depression (R 2 =0.228), the number of affected areas in the caregiver's life (R 2 =0.319) and anxiety (R 2 =0.348). In all the three variables explained 34% of variance. While coping style, family support, time to patient care, daily care hours and the number of activities carried out were not significant variables in predicting overload. The findings of this study could be useful for designing interventions that promote physical, social and emotional wellbeing of this population, preventing the patient from becoming caregivers.

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Risk of cardiovascular disease among parents of children diagnosed with cancer: a population‐based study from Denmark and Sweden

Liu

László

Wei

et al. 2023

Cancer Communications

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Quality of life among parents of children with cancer or brain tumors: the impact of child characteristics and parental psychosocial factors

Cited by 101 publications

References 58 publications

Sociodemographic Factors and Quality of Life in Children and Adolescents under Cancer Treatment

Sociodemographic Factors and Quality of Life in Children and Adolescents under Cancer Treatment

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Risk of cardiovascular disease among parents of children diagnosed with cancer: a population‐based study from Denmark and Sweden

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