Quality of life among Ardabil patients with beta-thalassemia major

Amani, Firouz; Fathi, Afshin; Valizadeh, Mehdi; Farzaneh, Esmaeil; Fattahzadeh-Ardalani, Ghasem

doi:10.18203/2320-6012.ijrms20151182

Cited by 2 publications

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“…Compared with the results of a study that was carried out by Safizadeh et al [25] of the QoL of thalassemia patients aged 16 years and older, higher mean scores of QoL were found in this study, whereas our findings were lower than the results of Haghpanah et al [24] and Amani et al [26]. The results of this study were primarily compared with the results of other studies conducted in Iran, because culture is an independent factor that influences the QoL of thalassemia patients [24,27].…”

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confidence: 94%

Associations between a health-promoting lifestyle and quality of life among adults with beta-thalassemia major

et al. 2016

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OBJECTIVESA health-promoting lifestyle (HPL) is a factor that affects the quality of life (QoL) in patients with beta-thalassemia (β-thalassemia). Due to the lack of studies of this issue, this study aimed to determine the association between HPL and QoL among adults with β-thalassemia.METHODSThis cross-sectional (descriptive-analytic) study was conducted among 389 adult patients with β-thalassemia in Tehran, Iran. The research instrument included a questionnaire consisting of three parts: demographic items, the Short-Form Health Survey and the Health-Promoting Lifestyle Profile. The data were analyzed using SPSS version 23.0. The results were considered significant at the conventional p<0.05 level.RESULTSThe mean age of the participants was 30.2±8.3 years. The mean score of the HPL dimensions was 127.28±21.53, and the mean score of the QoL domains was 61.44±23.38. The highest and the lowest mean scores of the HPL dimensions were found for spiritual growth (23.96±5.74) and physical activity (11.32±3.95), respectively. The QoL scores in all three domains (total, physical component summary score, and mental component summary score) were moderate. Health responsibility, physical activity, spiritual growth, and interpersonal relations were significant predictive factors of QoL in adults with β-thalassemia; these four dimensions explained 37.9% of the variance in QoL.CONCLUSIONSQoL and HPL were not at acceptable levels among patients with thalassemia. Therefore, educational interventions emphasizing spiritual growth, physical activity, and interpersonal relations are necessary for patients with thalassemia.

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