Quality of life among aging spinal cord injured persons: long term rehabilitation outcomes

Eisenberg, Myron G.; Saltz, Constance Corley

doi:10.1038/sc.1991.74

Cited by 63 publications

(36 citation statements)

References 10 publications

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“…21,22 Life satisfaction is considered to embody an assessment of life as a whole, based on how well personal goals match with personal achievement. 19 Adjustment to the consequences of SCI is an immense, complex procedure and considerable research effort has been made to assess those factors associated with good or bad adjustment.…”

Section: Discussionmentioning

confidence: 99%

“…Several objective and subjective determinants of quality of life after an SCI have been studied. 2,11,[18][19][20][21][22][23][24] Some authors found that life satisfaction among persons with SCI is relatively good and in a few studies even better than their peers. 21,22 Other findings indicate that people with SCI who live at home report a lower level of satisfaction with life.…”

Section: Introductionmentioning

confidence: 99%

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Participation and satisfaction after spinal cord injury: results of a vocational and leisure outcome study

Schönherr

Groothoff

Mulder³

et al. 2004

Spinal Cord

101

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Participation and satisfaction after spinal cord injury Schonherr, Marleen C.; Groothoff, J.W.; Mulder, GA; Eisma, WH; Schönherr, M.C. Take-down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim.Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum. Objectives: Insight in (1) the changes in participation in vocational and leisure activities and (2) satisfaction with the current participation level of people with spinal cord injuries (SCIs) after reintegration in society. Design: Descriptive analysis of data from a questionnaire. Setting: Rehabilitation centre with special department for patients with SCIs, Groningen, The Netherlands. Subjects: A total of 57 patients with traumatic SCI living in the community, who were admitted to the rehabilitation centre two to 12 years before the current assessment. Main outcome measures: Changes in participation in activities; current life satisfaction; support and unmet needs. Results: Participation expressed in terms of hours spent on vocational and leisure activities changed to a great extent after the SCI. This was mainly determined by a large reduction of hours spent on paid work. While 60% of the respondents successfully reintegrated in work, many changes took place in the type and extent of the job. Loss of work was partially compensated with domestic and leisure activities. Sports activities were reduced substantially. The change in participation level and compensation for the lost working hours was not significantly associated with the level of SCI-specific health problems and disabilities. As was found in other studies, most respondents were satisfied with their lives. Determinants of a negative life satisfaction several years following SCI were not easily indicated. Reduced quality of life was particularly related to an unsatisfactory work and leisure situation. Conclusions: Most people with SCI in this study group were able to resume work and were satisfied with their work and leisure situation.Spinal Cord (2005) 43, 241-248.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Participation and satisfaction after spinal cord injury: results of a vocational and leisure outcome study

Schönherr

Groothoff

Mulder³

et al. 2004

Spinal Cord

101

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“…This ®nding was replicated in a number of studies; 22 ± 27 only two studies involving (older) veterans report equal or better QOL than the comparison groups involved. 28,29 Most research has not compared the subjective QOL of persons with SCI with that of non-disabled peers, but has focused on sources of happiness and satisfaction in persons with a spinal injury. Family relationships, living arrangements, social life and passive recreation tend to be domains with which satisfaction is high, while low satisfaction ratings are common for ®nances, sexual life, and employment.…”

Section: Quality Of Life After Spinal Cord Injurymentioning

confidence: 99%

Quality of life after spinal cord injury: a meta analysis of the effects of disablement components

1997

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While objective measures of impairment, disability and handicap can serve as outcome measures for the providers of medical and vocational rehabilitation services, for persons with spinal cord injury (SCI) themselves the only relevant measure of quality of life (QOL) is their own judgment as to their well-being. Subjective QOL in persons with SCI has been measured as happiness, psychological well-being, morale and life satisfaction. Various studies have reported inconclusive or contradictory ®ndings, likely due to small sample size, sample composition, measures used, and other methodological issues. A meta analysis was performed to try to resolve these apparent discrepancies.A total of 22 studies, with an average sample size of 102, was retrieved. Information on the relationship between QOL and impairment, disability, and handicap, if provided, was abstracted. Findings include the following: persons with SCI tend to report lower subjective well-being than non-disabled people; the relationship between impairment and QOL is weak (mean correlation: 70.05; 95% con®dence interval: 70.12 to 0.02), and generally not found to be statistically signi®cant; the association between disability and QOL is somewhat stronger (mean r: 70.21; con®dence interval: 70.27 to 70.14), but not found consistently; the relationship between QOL and (aspects of) handicap is strongest (range for mean r: 70.17 to 70.48), and fairly consistently found.The number of studies available is too small to make analysis of factors that explain contradictory ®ndings possible. Further use of subjective QOL measures in research on longterm outcomes of SCI is recommended, in order to properly re¯ect the perspective of the patients/clients themselves.

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“…6,12 ± 15 Indeed, few studies examining older veterans have SCI groups have reported equal or better quality of life than the control group used. 16 The QOLINQ has also been used with people injured more than 20 years ago with approximately 75% of participants rating their current quality of life as either good or excellent and similarly so for 10 years previously. However, 20 years previously (nearer to the time of injury) only 56% of participants rated their quality of life as either good or excellent, suggesting an increase in quality of life over time.…”

Section: Introductionmentioning

confidence: 99%

Reported quality of life of people with spinal cord injuries: a longitudinal analysis of the first 6 months post-discharge

Kennedy

Rogers

2000

Spinal Cord

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Study design: A repeated measures design was employed with measures taken on two observational periods during the ®rst 6 months post-discharge from hospital. Objectives: To investigate the perceived importance of speci®c needs implicated in the development of quality of life (QOL), and the extent to which these aspects have been achieved, in a group of people with spinal cord injury (SCI) living in the community. Setting: The National Spinal Injuries Centre, Stoke Mandeville Hospital and the general community. Methods: The study sample comprised 24 spinal cord injured patients discharged from a national rehabilitation centre following a rehabilitation programme. The Quality of Life and Needs Assessment Questionnaire was completed by participants at 1 and 6 months post discharge. Results: No signi®cant di erences were found between the importance that participants attributed to speci®c needs at months 1 and 6 post discharge. Moreover, no signi®cant di erences were found between the extent to which these needs were met at 1 and 6 months post discharge. Conclusion: The reported quality of life of people who have a spinal cord injury remains stable during the ®rst year following discharge. Spinal Cord (2000) 38, 498 ± 503

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Quality of life among aging spinal cord injured persons: long term rehabilitation outcomes

Cited by 63 publications

References 10 publications

Participation and satisfaction after spinal cord injury: results of a vocational and leisure outcome study

Participation and satisfaction after spinal cord injury: results of a vocational and leisure outcome study

Quality of life after spinal cord injury: a meta analysis of the effects of disablement components

Reported quality of life of people with spinal cord injuries: a longitudinal analysis of the first 6 months post-discharge

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