Quality of life after traumatic brain injury: The clinical use of the QOLIBRI, a novel disease-specific instrument

Truelle, Jean-Luc; Koskinen, Sanna; Hawthorne, Graeme; Sarajuuri, Jaana; Formisano, Rita; Wild, K. von; Neugebauer, E.; Wilson, Lindsay; Gibbons, Henning; Powell, J. Enoch; Bullinger, Monika; Höfer, Stefan; Maas, Andrew I. R.; Zitnay, George; Steinbüechel, Nicole von; Force, The Qolibri Task

doi:10.3109/02699052.2010.506865

Cited by 122 publications

(111 citation statements)

References 91 publications

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“…There is a need for comprehensive disease-specific instruments for HRQoL assessment in persons after TBI, such as the novel disease-specific scale Quality of Life in Brain Injury (QOLIBRI; Truelle et al, 2010;von Steinbuechel et al, 2005von Steinbuechel et al, , 2010avon Steinbuechel et al, , 2010b. There is a need to develop a multidimensional approach to outcome assessment and classification, including the patient's quality of life.…”

Section: Outcomementioning

confidence: 99%

Re-Orientation of Clinical Research in Traumatic Brain Injury: Report of an International Workshop on Comparative Effectiveness Research

Maas

Menon

Lingsma

et al. 2012

Journal of Neurotrauma

168

134

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During the National Neurotrauma Symposium 2010, the DG Research of the European Commission and the National Institutes of Health/National Institute of Neurological Disorders and Stroke (NIH/NINDS) organized a workshop on comparative effectiveness research (CER) in traumatic brain injury (TBI). This workshop reviewed existing approaches to improve outcomes of TBI patients. It had two main outcomes: First, it initiated a process of re-orientation of clinical research in TBI. Second, it provided ideas for a potential collaboration between the European Commission and the NIH/NINDS to stimulate research in TBI. Advances in provision of care for TBI patients have resulted from observational studies, guideline development, and meta-analyses of individual patient data. In contrast, randomized controlled trials have not led to any identifiable major advances. Rigorous protocols and tightly selected populations constrain generalizability. The workshop addressed additional research approaches, summarized the greatest unmet needs, and highlighted priorities for future research. The collection of high-quality clinical databases, associated with systems biology and CER, offers substantial opportunities. Systems biology aims to identify multiple factors contributing to a disease and addresses complex interactions. Effectiveness research aims to measure benefits and risks of systems of care and interventions in ordinary settings and broader populations. These approaches have great potential for TBI research. Although not new, they still need to be introduced to and accepted by TBI researchers as instruments for clinical research. As with therapeutic targets in individual patient management, so it is with research tools: one size does not fit all.

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Section: Outcomementioning

confidence: 99%

Re-Orientation of Clinical Research in Traumatic Brain Injury: Report of an International Workshop on Comparative Effectiveness Research

Maas

Menon

Lingsma

et al. 2012

Journal of Neurotrauma

168

134

View full text Add to dashboard Cite

show abstract

“…However, generic measures may not capture the particular problems of TBI, and the need for condition-specific HRQL instruments in TBI is emphasized (13,21). Recently, the Quality of Life after Brain Injury (QOLIBRI), a condition-specific instrument for measuring HRQL after TBI, was developed in an international collaborative process (22)(23)(24). The QOLIBRI captures the individuals' well-being and satisfaction with their functioning and self, and provides a more precise measure of the individual's experience of living with a TBI than generic measures.…”

Section: Introductionmentioning

confidence: 99%

Health-related Quality of Life 12 months after severe traumatic brain injury: A prospective nationwide cohort study

Søberg¹,

Røe²,

Anke³

et al. 2013

J Rehabil Med

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Objective: To assess health-related quality of life in individuals with severe traumatic brain injury at 12 months postinjury, applying the Quality of Life after Brain Injury (QO-LIBRI) instrument, and to study the relationship between injury-related factors, post-injury functioning and healthrelated quality of life. Design/subjects: The study is part of a prospective, Norwegian multicentre study of adults (≥ 16 years old) with severe traumatic brain injury, as defined by a Glasgow Coma Scale score of 3-8 during the first 24 h post-injury. A total of 126 patients were included. Methods: Socio-demographic data and injury severity variables were collected. Functioning at 3 and 12 months was assessed with the Glasgow Outcome Scale Extended (GOSE), the Functional Independence Measure (FIM), the Rivermead Post-concussion Questionnaire (RPQ), and the Hospital Anxiety and Depression Scale (HADS). Hierarchical regression analysis was applied.

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“…Part two focuses on impact, in regard to negative feelings and restrictions. The total score 0-100 acts as a HRQOL measurement for individuals following TBI, with higher scores indicating better HRQOL [39].…”

Section: Quantitative Data Collection-quality Of Life After Brain Injmentioning

confidence: 99%

Yoga after Traumatic Brain Injury: Changes in Emotional Regulation and Health-Related Quality of Life in a Case-Study

OTR¹

2017

IJCAM

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Purpose: The purpose of this study was to analyze changes in emotional regulation and health-related quality of life (HRQOL) following a yoga intervention for three participants with traumatic brain injury (TBI). Yoga was utilized as a modality to improve HRQOL and emotional regulation.Methods: A mixed method design was used to analyze changes in emotional regulation and HRQOL. Participants completed an eight-week yoga intervention and assessments were completed before and after the intervention. Outcome measures included the Difficulty in Emotional Regulation Scale (DERS) and Quality of Life after Brain Injury Scale (QOLIBRI, both are reliable and valid after TBI. The Change in score (percent change) were calculated for data from both assessments. Semi-structured interviews were completed, data were transcribed, and qualitative data were analyzed with a focus on emotional regulation and HRQOL.Results: On average, the three participants had a 16% improvement in DERS scores and 6% improvement in QOLIBRI scores following the yoga intervention. Analysis of the qualitative data indicate that participants identified improvements related to emotional regulation in the mind-body connection, peaceful and calm feelings, concentration and focus, and self-control. In relation to HRQOL participants noted social changes, physical changes leading to life changes, confidence to do things and self-development. Conclusion:Yoga is a potential intervention to address emotional regulation and HRQOL for individuals with chronic TBI. Emotional regulation and HRQOL are two important factors affected post-TBI that through this study were impacted by yoga as a focused mind-body intervention.

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Quality of life after traumatic brain injury: The clinical use of the QOLIBRI, a novel disease-specific instrument

Cited by 122 publications

References 91 publications

Re-Orientation of Clinical Research in Traumatic Brain Injury: Report of an International Workshop on Comparative Effectiveness Research

Re-Orientation of Clinical Research in Traumatic Brain Injury: Report of an International Workshop on Comparative Effectiveness Research

Health-related Quality of Life 12 months after severe traumatic brain injury: A prospective nationwide cohort study

Yoga after Traumatic Brain Injury: Changes in Emotional Regulation and Health-Related Quality of Life in a Case-Study

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